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April in KC

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by April in KC

  1. April in KC
    It's not too early. My 7-year-old and I were both diagnosed in the same week in early 2007. At the time, I was nursing a 9-month-old who had serious skin rashes and food reactions that did not test out as "allergies." He had vomited cereals, so I wasn't feeding him cereals, but he was still getting gluten through nursing. When I was diagnosed and went...
  2. April in KC
    I have to admit that I did a 48-hour "self-test" when I first suspected gluten sensitivity. Not everyone would notice immediate improvement, but for me the 48 hours were very dramatic - great energy I had been missing for several years. I then went back on gluten and got tested within a week, and was positive for some of the antibodies. It really didn...
  3. April in KC
    All good questions/thoughts, ravenwoodglass. The minor CC reactions - about once a month (no longer tied to my menstrual cycle so I think they are CC reactions). I do have DH. It takes a little bigger reaction to give me D and mouth sores...that has only happened a couple times in the past year....which is a couple too many - but still did not involve...
  4. April in KC
    I would definitely ask for the panel. Damage can be patchy, so biopsies can miss it - you need all the puzzle pieces to help put it together.
  5. April in KC
    Hi Garth! I sympathize! It took me a little while to nail down that corn really messes with me, too. It seems that I can tolerate rice - but even with that, I don't eat it every day. AFter finding that corn was a problem, I grew a little suspicious of all the grains. Here's what I suggest...fulfill your carb cravings with some nice baking...
  6. April in KC
    Recently, I asked my GI to recheck my antibodies after a year gluten free. I have gained a needed 10 lbs in the last year - and my Celiac son's TTG antibodies have fallen in the same time period. Symptom-wise, i am sensitive to CC, and I eat more carefully than the rest of my gluten-free family. I have some lingering health issues I chalk up to a lifetime...
  7. April in KC
    No testicles here (I'm female), but I did have some tender/painful spots near my hip and groin on one side that have improved on the diet. In my case, I think that my gluten intolerance was contributing to the inflammation caused by another condition, endometriosis. I don''t really know if there is a direct causal relationship, but I do think that it's...
  8. April in KC
    I meant to add that my son with Celiac who vomited at night also has Eosinophilic Gastroenteritis - so you might consider this. It can also cause diarhhea - but can be triggered by a variety of food intolerances, not just gluten. The symptoms are slightly different - but do involve delayed reactions to food (and can include vomiting). Testing is done by...
  9. April in KC
    That's a good approach, but don't be surprised if he can't tell. I put a lot of stock into first impressions of foods, but after we have eaten them for a while, all bets are off. Even when I didn't like the spaghetti as a child, I still ate bread...and as a teen, I added pasta back in. During my adult years, I suspected many many foods before I ever suspected...
  10. April in KC
    Hi there - my oldest son (now 7) has Celiac plus some other issues (peanut allergy, eosinophilic gastroenteritis). Once a couple of years ago, before he was diagnosed with Celiac, a single incident happened that is just as you described. He went to sleep - we were downstairs with friends - and when I checked on him, he had thrown up in his sleep. No hives...
  11. April in KC
    Cheers, Walt. Maybe it's a guy thing, ha ha. Glad you're feeling better now.
  12. April in KC
    Your story sounds similar to ours. Our household went gluten-free when my oldest son and I were diagnosed with Celiac Disease in early 2007. My DH had a long history of GI troubles, but he always insisted/thought that his food triggers were not related to gluten. After we went gluten free at home, he was gluten free at home but still drank the occasional...
  13. April in KC
    Hi Debbie - I think it's a good idea to request a copy of the report following the biopsy - or ask the GI to go over it with you. Since it's possible for milk intolerance to cause villous atrophy (and in rare cases, other food proteins), that's why the GI might have been somewhat vague about whether it was wheat or milk causing the problems. The slides...
  14. April in KC
    The combination of high total IGE (likely if you have peanut allergy) and a leaky gut from Celiac is a bad combo - you probably are inclined to develop new allergies. I know my son is. If you like to research leaky gut - look up the word "zonulin" - and you will find out how evil gluten is - because zonulin props open spaces in the intestine wall -...
  15. April in KC
    Hi there, "dollamas...", liked your leet... My 7-year-old son has Celiac, peanut allergy (anaphylactic, RAST class 6, >100 kU/dl), soy allergy, pork allergy, orange allergy, environmental allergies, penicillin allergy and eosinophilic gastroenteritis. I have Celiac and have no IGE food allergies. I have some intolerances - hard to nail down, but...
  16. April in KC
    Gluten sensitivity is partially genetic, and partially triggered by environmental factors. You can have the right genes, but not develop gluten sensitivity until something happens - like stress, surgery, illness, pregnancy, or a change in diet where you increase your exposure to gluten. You can also develop new types of symptoms as time goes on. I...
  17. April in KC
    Hi - I will pass along my own experience with inhaled gluten. When I was first diagnosed and I was still very sick (presumably my antibodies were still very high) - just walking through the bread or flour aisle at the grocery store could send me on a desperate search to find the store's bathroom. It happened several times on different trips, so I know it...
  18. April in KC
    I have had Endo since my teenage years, confirmed with laparoscopies in my early 20s. I am now 36, diagnosed with Celiac a little over a year ago. I remember reading about an "Endo diet" more than 10 years ago - it didn't seem very plausible to me at the time. I wish I had tried it (but I probably would have screwed up & kept non-wheat forms of gluten...
  19. April in KC
    Hi there - it certainly sounds like your son has it, since he has positive blood work and he's feeling better on the diet. It is highly improbable that anything else would turn those test positive - the EMA or endomysial antibodies is only positive in Celiac Disease. The TTG or tissue transglutaminase can turn positive in some other autoimmune diseases...
  20. April in KC
    Hi there! This may not be it, but when I read your list I immediately spotted many foods we had to stop feeding to my SOY intolerant Celiac son: gluten-free pretzels (check, but the Glutino kind he used to eat contained soy flour) soymilk gluten-free waffle (if it's vans, it also has some type of soy flour) Did you replace the toaster you used to...
  21. April in KC
    I should have said one meal at a time, because that's more accurate.
  22. April in KC
    Congrats! I'm glad you enjoyed your gluten-free cornbread. One day at a time.
  23. April in KC
    Thanks! These look good.
  24. April in KC
    Hi Anna, I went gluten free a little over a year ago. Prior to going gluten-free, my symptoms included mouth sores and dermatitis herpetiformis (plus lots of other symptoms). After gluten-free, I noticed that my DH rash and mouth sores would come back every month during my period. This continued for several months, but things did gradually get better...
  25. April in KC
    Maybe it was in the taco seasoning?
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