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April in KC

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by April in KC

  1. April in KC
    Hey Abi - I sympathize - hope your Sean figures out what's ailing him. It's good of you to push him to do the right things. Gluten can indeed be the enemy. I want to mention another long shot...you mentioned that your budgie is sick. When I was a child, I had a parakeet (budgie) and it became sick. I got very sick with GI problems (including...
  2. April in KC
    Outback - gluten-free menu - be sure to read the red notes about how to modify your order. They instruct you on the menu to order your veggies with "no seasonings". P.F. Chang's - gluten-free menu - yum is all I can say. First Watch (breakfast and lunch place in some cities) - look online at their suggested menu for eating gluten free. Chipotle - Burrito...
  3. April in KC
    You definitely need to examine the possibility of cross contamination. Also examine carefully what you are eating. Is it possible that you are eating something you think is safe but is not? You might throw out a sample day's diet for folks here to examine. My weight loss did not stop right away after gluten free. It did slow down after about...
  4. April in KC
    Definitely look at the personal care items, but also look really hard at what you are eating. Any items that are processed foods (things in a box, things in a bag, things with multiple ingredients, etc.) should be considered suspect. When I went gluten free I felt great. I started noticing that after a week or two I became MUCH more sensitive to cross...
  5. April in KC
    Good luck finding out! My GI symptoms are not very bad, but my neuro type symptoms were getting really bad prior to going gluten free. Fatigue, lack of motor coordination, headaches, etc. All much better now unless I eat the wrong thing by mistake! Have you studied the diet carefully to see what you would need to eliminate (cereals with barley malt...
  6. April in KC
    Thanks, guys. No need to aplogize for thread hijacking. It's all interesting to me. It is sooo strange that different forms and amounts of gluten (or other foods) can produce different reactions. The "drunk" feeling is just crazy, but it has happened to me at least ten times in the six months I have been gluten free. Less frequently as I get more careful...
  7. April in KC
    You guys are the best - thanks for all the replies! I have pretty much given up on 99% of restaurants, but the "business lunch" thing presents a problem. I have considered writing a card that has a suggested meal - grilled meat or fish, steamed veggies, potato with olive oil, etc., for cases when I have to eat out. Bland fare is not really my thing...
  8. April in KC
    Hi all, I am here and feeling frustrated with myself for not being able to tell the truth (quite) about this awful business of being intolerant to foods. Yesterday I took a risk I should not have taken, and I had a reaction. I had a business lunch to attend. My employer was going to be with me, it was a serious luncheon that included an executive...
  9. April in KC
    Meredith - Mine got better and better over 6 months (that's how far along I am now). It was more like a 2 steps forward, 1 step back thing than a constant forward march. Couple of things: Try to notice if yours gets triggered with your monthly cycle in addition to gluten. Mine did. Try to notice if yours gets triggered by salty or iodine containing...
  10. April in KC
    ArtGirl, I have not been on the boards much lately due to being busy, but when I do stop by I check the DH forum, since I have it. I just wanted to raise my hand and say Me! I had DH and stomach pain for a couple of years as a child, and it went away for years and years, only to return. Two decades silent, to be precise. During the "silent"...
  11. April in KC
    Hard to say. Usually DH is symmetrical - if you have it on one leg, you would have it on the other. For example, pre-gluten-free, I would get DH on both right and left elbows. Sometimes it would first appear on one elbow, but the other would match it within 12-24 hours. HOWEVER (big however) Now that I am gluten free, sometimes my DH comes...
  12. April in KC
    Oh, poor little man. I just want him to be well - all kids deserve that. It does sound like he is having some type of malabsorption problem. There are many possible causes, and Celiac is one. It's a decision you have to make about the endoscopy. I can see pros and cons, and I will tell you about a couple of testing options. Pros: You'll get "a look...
  13. April in KC
    Susie, I had a series of 7 - 9 week miscarriages after the birth of my first son. I do think gluten was related, because I had clusters of mouth sores before each miscarriage, and that is one of my current reactions to gluten now that I am gluten free. BUT, while my gluten intolerance was not discovered until later, there were other things discovered at...
  14. April in KC
    Some people get more sensitive to gluten after they go gluten free for a time. It could be that your current problem is due to this type of increased sensitivity. Or it could be something coincidental is happening unrelated to gluten. You can ask your physician for a "celiac panel" of blood tests - there should be about four tests in the panel - antigliadin...
  15. April in KC
    Thanks, Rachel. I know you post a ton - so I will do some searching to see what you have said. Can you by chance point to one of your posts where you list the foods you have trouble with? I'm curious to see if we have any other foods in common. Thanks! April
  16. April in KC
    Hi Claysmom - welcome to the board. I hope you stick around if you try the Gluten-free Casein-free diet for your son. - April
  17. April in KC
    Hi and welcome! What are her favorite foods, usually? Maybe we can all help by pointing out kid-friendly things you can substitute that are gluten free. Did your doc also tell you to avoid dairy for a while? You might want to - for anywhere from six weeks to six months. What is her nut sensitivity? Is it peanuts or tree nuts? If it's peanuts...
  18. April in KC
    I did a very quick scan, and I saw gluten (wheat and oat) ingredients in the PHYTOBRUSH, PHYTOPHANERE, PHYTOAPAISANT, and PHYTOCYANE. They were spelled out very plainly as wheat and oat derivatives. I might have missed an ingredient in one of the other products, but based on the way the others appeared, they would be plainly spelled out as well. You might...
  19. April in KC
    Your six and seven-year-olds may be old enough to test through standard blood work. Our six-year-old came back cleanly positive to AGA-IGA, AGA-IGG, Reticulin and Endomysial Antibodies (EMA) - every test in the Quest/LabOne Celiac panel. His 3-year-old brother and infant brother (both symptomatic) came back negative. So, in our family at least, 6 was old...
  20. April in KC
    Sarah, you're getting good responses, but I want to weigh in to say that breastfeeding and Neocate can go together succesfully. My two oldest never had a drop of formula, but I'm thankful I had Neocate with my youngest. My doc suggested this one time when I was at my wit's end - what about you doing a trial of Neocate while pumping for a few days to a...
  21. April in KC
    From your sig (and from your mention of having "hives" among your symptoms), it sounds like you might have a true wheat allergy mixed into your Celiac symptoms. If so, that's IgE mediated, and A FEW of your unpleasant symptoms might be relieved by taking an oral antihistamine like Benadryl every 4-6 hours (as long as you can have Benadryl). If the Benadry...
  22. April in KC
    Thanks for the replies! April
  23. April in KC
    In case you don't have time to search, here is a research study abstract that another member, eLaurie, found about a young woman with Celiac and premature ovarian failure: Open Original Shared Link Good luck on your journey! I hope you stick around, too. April
  24. April in KC
    Stephanie, I had a different long reply for you but lost it! My own struggles do not compare to yours, and I really sympathize with you. Three years! I will share part of my story, though, because I it may partly relate to what you asked. Yes, I do think gluten intolerance / DH / Celiac can affect your fertility in many possible ways. First of...
  25. April in KC
    Meredith, I almost mentioned hormones in my other post to you, but I wanted to stick with the question you asked. Then I saw this post. I do seem to have some type of hormonal fluctuations with my DH and Celiac symptoms. Are you still nursing, or weaned? I have three boys, and I just weaned my third son at 1 year. I only figured out the DH/Celiac...
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