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JennyC

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by JennyC

  1. JennyC
    I called Triaminic about a month ago. This is their gluten free list according to a phone representative: Cough & Fever (Bubble gum) Flu, Cough & Fever Chest & Nasal Congestion Cold & Allergy Daytime Cold & Cough Nighttime Cols & Cough Thin Strips--Cold & Cough, Runny Nose... (He was talking so fast that I couldn...
  2. JennyC
    My son has had the nasal H1N1 and the seasonal flu vaccine and was completely fine.
  3. JennyC

    ARCHIVED Dr. Kenneth Fine (enterolab)

    JennyC replied to Joe G's topic in Doctors

    I feel absolutely no obligation to attempt to validate my son's diagnosis to you, or really even to educate you regarding celiac disease, but you may want to look up latent celiac disease. Ignorance is not always bliss.
  4. JennyC
    Safeway/Kroger brand condensed chicken & rice soup Rice Chex to munch on jello yoplait yogurt popsicles plain Lays Stax
  5. JennyC

    ARCHIVED Dr. Kenneth Fine (enterolab)

    JennyC replied to Joe G's topic in Doctors

    Wow. He sounds very "well off" to be able to afford such events. I bet he got that way by selling tests for unvalidated assays. That's just sad.
  6. JennyC
    First, my daughter is 5 years old. Her blood work came back as: Quantitative IgA : 77 MG/DL normal: 33-235 She is not IgA deficient. Her IgA would have to be below 33 to be considered IgA deficient. IgG Gliadin Antibody: 22 H Reference Range- >17 =Positive This is her only elevated result because it is greater than the upper limit...
  7. JennyC
    If you post a link I can try to help. Allergies are mediated by antibodies that are released from B-cells and the reaction usually involves mast cells and eosinophils, not T-cells. I have never come across the term T-cell allergy and I've had quite a bit of exposure to this subject area.
  8. JennyC
    Do you know what your RBC indices (MCV, MCH, MCHC) and hemoglobin and hematocrit are? What about your RBC morphology? Do you have ovalocytes or elliptocytes? Enlarged RBCs can have many causes. For example, it could be related to pernicious anemia, megaloblastic anemia or your liver could be depositing lipids onto your RBCs. Make sure they do plenty...
  9. JennyC
    I'm HLA-DQ 08 (0302) and 02 and I do not even have celiac disease, my son does. (But it's quite obvious where he got the gene! ) I don't have any autoimmune issues at this time, but I do experience intense inflammation very easily. It's not a death sentence. Just be sure to listen to your body.
  10. JennyC
    I'm so sorry. You should go to the principle. She obviously is not taking the health of your son, the law, or her career seriously. Keep us updated!
  11. JennyC
    Wellshire Kids Dinosaur shaped chicken nuggets and Wellshire corn dogs were glutening my son. He had sporadic D and I could never figure out why, and his tTG entered the upper limit of the normal reference range. It was not until there was a Chicago Tribune article about this company posted here, that I figured out that it was the chicken nuggets and corn...
  12. JennyC
    You many still have celiac even though your biopsy was normal, it's called latent celiac disease. This is my biggest pet peeve. Gastroenertologists can be so set in their ways! "Latent celiac disease is defined by a positive serology but no villous atrophy on biopsy. These individuals are asymptomatic, but later may develop symptoms and/or histologic...
  13. JennyC
    It's not uncommon to see a low positive on the blood dipstick during a urinalysis. The dipstick picks up red blood cells (RBCs), hemoglobin from lysed RBCs, and myoglobin from muscle break down. My point is that many things can cause a positive blood on the dipstick, and it really may not be a big deal, especially if her other urinalysis tests are normal...
  14. JennyC
    Lipid storage diseases are not associated with celiac disease, and if you had a true lipid storage disease it would have been apparent a long time ago. Even if it were asymptomatic for some outstanding reason, if would have been picked up by a CBC. If you feel like there is something going on in your body, then please find a doctor who will run some tests...
  15. JennyC
    The blood work can be done at the pediatrician office. In fact, that's where my son's initial testing was done. If they will not test your children, I would go some where else. Also make sure that they run the full celiac panel on your children. You should also keep in mind that it takes time for antibodies to develop in children, so false negatives are...
  16. JennyC
    Dr. Terry at Doernbecher Children's hospital at OHSU is great. She is also recommended by GIG. Here is her contact information: Open Original Shared Link
  17. JennyC
    Thank you so much for your reply. I will call the chef Monday. You are right about having a back up plan, it's a great idea.
  18. JennyC
    We are splurging on a trip to the Great Wolf Lodge next week. I spoke to the chef earlier this year and he seemed familiar with food allergies, but I definitely do not not my son to get sick on our vacation! They have a breakfast bar with yogurt and omelets that are gluten free, but I am concerned about cross contamination. They do have a microwave and...
  19. JennyC
    My sample was collected at a small doctor office. Maybe my sample sat in a refrigerator for a week or more. It may also depend when your sample arrives...they may only do certain tests on certain days. Maybe I was just unlucky.
  20. JennyC
    It totally depends on the lab they send it to. If they send it to ARUP it's pretty fast (about one week). Other labs vary. My tTG was ran at Quest Diagnostics and it took nearly one month to get my results.
  21. JennyC
    We are another example of a baby reacting to gluten in breast milk. My son was born two weeks early and weighed 7 lbs, 10 oz. He continued to gain weight normally until he was after 6 months old, but he went through a ton of breast milk! As an infant he spit up (practically vomited) after every time he ate. He also had three horrible FOUL smelling stools...
  22. JennyC
    Only numbers above the reference range are indicative of celiac disease. The values seen within the reference ranges can frequently be seen in the healthy population, and it also gives a little "wiggle room" for slight error that may be inherent in the test or differences between technologists in their reporting.
  23. JennyC
    ANA has nothing to do with celiac disease, except perhaps that autoimmune diseases are often present together. ANA stands for anti-nuclear antibodies, meaning that you're making antibodies against nuclear material. There are different types of nuclear antibodies dependent upon the exact material you are making an antibody against, or the manifesting autoimmune...
  24. JennyC
    This used to happen to me all the time until celiacmommy helped me with this problem. Reduce the butter down to about 1/3 of the amount called for. You should not have a problem if you do that. If you don't take out enough butter and this still happens, you can try adding more flour. Good luck!
  25. JennyC
    You have already gotten excellent advice. I thought that I would tell the reason my son's tTG became elevated. Wellshire's gluten free brand products, such as chicken nuggets and corndogs, have been shown to contain high levels of gluten. For a year he was eating them frequently and his tTG jumped from 4 to 17. After he quit eating their products his...
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