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JennyC

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by JennyC

  1. The blood test used most frequently now is the Ttg. There are not false positives, but it is possible that there are false negatives. The biopsy is still the "gold standard" to most doctors, but that is slowly changing as blood tests are getting more accurate. There are many studies that show that blood work and dietary response are enough to diagnose...
  2. It is a Kraft product, and Kraft will always disclose gluten. It's a good idea to go to the Kraft website and take note of their brands. It's surprising how many brands are actually Kraft!
  3. If a company won't say for sure, then I refuse to buy their product. Barley must have some good qualities or else it would not be in almost every cereal! It's true that they have to list wheat, but I still stick to Yoplait who will disclose all gluten.
  4. I hope not. I just don't have the money to pay shipping to just give it away!
  5. I bought a 25 lb bag of Bob's Red Mill gluten-free flour 4 months ago when we first went gluten free. I don't care for it, and I would really like to get rid of it. Over half of it is left. If anyone wants it please let me know. I will ship it to anyone on the west coast. I am not charging anything for it, but I would like $15 for shipping. I don't...
  6. Go to their website and you can find a nearby store. My son is also picky eater. He said my nuggets that I made were "yucky." I hope your son will eat them.
  7. Bell & Evans all the way! My son refused Ian's. Bell & Evans taste just like Tyson's chicken nuggets. Make sure that you buy the ones in the red and black package. They also chicken strips as well. I buy mine at Whole Foods. My son loves them so much that he eats them BEFORE the french fries!
  8. I think that doctors are reluctant to change their ways. The gold standard biopsy is how they learned to diagnose celiac disease in med school. It's hard to teach an old dog new tricks! There are many studies and peer reviewed journal articles out there saying that positive blood work along with dietary response is sufficient to diagnose celiac disease...
  9. Is your child still getting a lot of dairy? Newly diagnosed celiac patients are usually lactose intolerant for at least 6 months. I already had my son on soy milk, and I started giving him half of a chewable Lactaid when he consumed dairy. You also have to make sure that you're checking everything. My son's toothpaste had gluten in it and I didn't realize...
  10. I have not yet explained that he has "celiac disease" but that talk will definitely come up long before he starts school. In his book The Trouble That Jack Has they use that term but we don't directly to him yet. He knows that gluten hurts his tummy. He is in the process of learning that gluten is wheat, barley, rye, and oats.
  11. Sounds like the doctor I took my son to, but I think my son's doctor was even more ignorant. My doctor said that if the biopsy was negative, then he doesn't have celiac disease and the blood work is wrong. I too started my son on the gluten free diet when I got his strongly positive blood work results. My son had an outstanding response. My son was...
  12. I can't stand garbanzo bean flour or soy flour and many pre-made flour mixes, like Bob's Red Mill, contain lots of it. I make my own. It's really easy. I have tried two different mixes and both have worked out fantastic. You would not even be able to tell that the things that I made were gluten free! I just make up a bunch in advance. 3 parts white...
  13. First, it will get better. I know it must seem impossible right now. My son was diagnosed about 4 months ago, and he is 3 years old. I told my son that a lot of foods he likes contain gluten and it makes him sick and we have to find new foods. He adjusted well and I hope your daughter will as well. There are even books for kids. My son has "The Trouble...
  14. I fed my son breast milk that I pumped for 9 months. He would never breastfeed from my body. If you need decrease your breastfeeding sessions you can maintain your milk supply by pumping thoroughly and often. I rented a hospital grade Medulla double breast pump. I pumped EVERY three hours during the day--NO exceptions. If it had been two hours and...
  15. You have to be very careful with cross contamination. Most people replace toasters, waffle irons, cutting boards, wooden spoons, pasta strainers, non-stick pots & pans, all cast iron, and anything that is scratched. Replace anything that you think would be difficult to clean thoroughly. I replaced everything...slowly. Everything that I had was old...
  16. I don't know your history, but I would continue to breastfeed and I would start a gluten free diet immediately. There have been studies that show gluten can pass through breast milk. If that is the problem then hopefully your baby will start to do better soon. You should be very strict with your gluten free diet, including cross-contamination issues. ...
  17. Thanks for the recipe. The waffles I made were "yucky."
  18. shrimp. I don't know what kind of sauces are pink, though. sugar cookies with pink frosting.
  19. You can also but 3 lb bags of some flours.
  20. That list is pretty old. Manufacturers can change the ingredients at anytime. That's why it's best to stick with companies that will clearly list their gluten. (See the link I just posted.) If you really feel that you need a list right now, I can email you one updated 2/07 if you send me a private message with your email address.
  21. Welcome! I hate to be the one to break it to you...but life is going to change majorly. I'm a college student with a young son and we used to eat out a few times a week before he was diagnosed. I don't feel that it's safe to eat out at those places anymore. Some people eat some items at Wendy's and other places, so it's best that you go to the websites...
  22. I know that you can order Bob's Red Mill flours in 25 lb bags online or by mail order. I don't really like many of their pre-made mixes, but I love buying their flours. I'm fortunate to live near their store, so I always go there to buy in bulk. Their mixed gluten-free flour is $34 for 25 lbs, white rice flour is $17.80 for 25 lbs and tapioca flour is...
  23. Here's the list. I bookmarked it. Thanks to who ever posted it! I called all the companies and I suggest that you do the same. One of the companies (Blue Bunny???) just did not have products that contain gluten, but they did not have a gluten policy. Everything on the list was fine, but it's always a good policy to call yourself. Open Original...
  24. It's unlikely since the growth plates in your bones should have closed years ago, thus preventing further growth. Perhaps you feel better and it is reflected in your posture! Sorry to be the bearer of bad news, but I'm glad that you're feeling better.
  25. I use any flour. Usually rice or my premade flour mix which consists of rice flour/potato starch/tapioca starch. Anything that will thicken and not leave a bad taste (Bob's Red Mill gluten-free flour).
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