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YoloGx

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by YoloGx

  1. "Milk and yoghurt are the worst for me." Shows everyone is different. I can handle nonfat organic yogurt but not any other milk, cultured cheeses or whatever. Am glad to hear that the enzymes are really helping you. Are you taking pro-biotics too? Anyone here who also has to avoid all tocopherols in hand creams, soaps, lipstick etc.?? By avoiding...
  2. So is everyone assuming the mixed tocopherols in the cat food is OK? I have been getting IAMS regular for my two cats. The ingredients other than the tocopherols seem fine plus they love it. However I don't assume that the tocopherols really are safe since it was one ingredient in various creams and shampoos that was still "getting me" since normal tocopherols...
  3. I find this line of investigation interesting. How can we track down these seemingly impossible sources of gluten? etc.? We know something is wrong, but what is it? So here's my question. I have found cat food that is gluten free theoretically, however I wonder due to the presence of tocopherols. I am pretty sure they use the less expensive ones derived...
  4. You know what I am going to say, enzymes, probiotics, marshmallow root, dandelion caps, Oregon Grape root or yellow dock. In a real quick fix I use a teaspoon of baking soda in a glass of water and chase with more water. Yeah, I did the same thing with cheese. So many can use it but I can't either. Bea
  5. I was just reading that massive doses of pro-biotic bacteria does a lot to heal celiac. If you can get the enteric coated ones and make sure they have a number of strains. Also eating kefir or yogurt if you can tolerate them might help and/or cultured live sauerkraut. Bromelain/papain caps and pancreatin digestive enzymes could really help too. I have...
  6. Dear Nancy, If you have celiac or are otherwise gluten sensitive, you should not be taking homeopathics that have alcohol in them, as the Pekana does. They are wonderful, but not for us as far as I can tell. I tried writing to them but they never responded. I couldn't take them either. This could be a problem with some of the other remedies also. Many...
  7. I am glad the vinegar worked for you. I wonder though if it depends on what is causing the bone spurs? So here is the question, are there different causes for bone spurs? Does anyone here know? I am going to look this up too just because... I would think that if bone spurs are caused by lack of calcium absorption for someone the vinegar might not work...
  8. I have used E-zorb (advertised on the Internet) and have found it actually works esp. on the bone spurs. I had bone spurs in my neck that seem to have gone away!! No more pain! It is calcium that is made from plants devised by Chinese scientists originally. They did 20 years of research on it since so many Chinese have difficulty absorbing calcium. My...
  9. How very amazing and lucky you are to have such a doctor so on top of things. Yes your daughters should strictly avoid gluten. Even if they haven't noticed symptoms yet its certain to be lurking in the background, getting ready to ruin their immune system. Damaged villi tends to create leaky gut syndrome, however it can create other symptoms than D or...
  10. I too wish you luck and commiserate. I agree with the posts about just trying the gluten free diet to see if it helps or not. I have a feeling it will. For myself to really do the whole trick I had to avoid trace glutens too--even in shampoo, lotion and lipstick!! As well as in possible cross contamination like old toasters and wooden cutting boards etc-...
  11. Hi Nancy, All the peeing now you are off gluten could just be your body trying to get rid of excess toxins now that you are free of the offending gluten. However you need to ask if there is pain or not. If so there may be some inflammation which if left could become the beginning of an infection. Again I suggest the marshmallow root and uva ursi and...
  12. I lost weight years ago, and then gained some back with menopause especially since I was still having to eat frequent meals due to the "low blood sugar" -- which turned out to be because I needed the co-enzyme B vitamins!! However after I got trace glutened 3 or 4 times this winter and was ill with a bacterial infection for 2 months, I lost a lot of weight...
  13. Hi Welda, I agree it really is inspiring. I think of it as finally getting to be who I am thankfully after all these years of suffering. Its kind of like youth in old age. I even have a clearer mind and a better memory by going off all the trace glutens etc. Pretty weird but wonderful, eh? The other good thing is that with the experience I already have...
  14. Hi Del, Yes, this fibromyalgia link to gluten seems I agree to be quite strong. My older sister had what was considered fibromyalgia. She is the one who convinced me to avoid all trace glutens (3 years after I told her about my belief we had celiac--she went with it even further than I had!). This last fall I saw up on top of the roof of her rental...
  15. Thank you Del! After writing that I thought to myself, there is a story in here somewhere. Maybe I should develop it! It really could be that your grandmother did have celiac; I've read this observation of people with celiac having longevity several places, including scientific articles--and certainly have observed it. I think it relates to the Old Hunter...
  16. I know for me personally I am doing better than I ever did. I still have my off days but they are fewer and fewer depending on how successful I am to avoid trace gluten or some other source of poisoning. And when I don't feel so great (from some stray whatever) I take extra enzymes and pro-biotics, make myself a mash of dandelion etc. tea, go for a walk...
  17. Wow, thanks for your story Welda! I am so glad to hear you are finally feeling so well and having a productive life at last. I am on that road too though there are days I still get CC'd at this point and then feel pretty tired and achey even with all my enzymes etc. At least however I now avoid getting D and ill. But overall I feel so much better!...
  18. Taking digestive enzymes like bromelain/papain and pancreatin plus pro-biotics has helped me--esp. if I take them right away. If I don't have them, eating fresh papaya and pineapple and real live non sugary yogurt really helps. I tried Glutenzyme in a pinch and it really made a difference. I've noticed similar products out there. Afterwards I now also...
  19. Just wanted to say that for many corn is a common allergen. Also corn syrup is a sugar and as such can exacerbate candida overgrowth and other fungal conditions which could also create more inflammation and general toxicity as well as brain fog. Do consider trying the dandelion root and cleavers tea (perhaps etc?) I listed earlier to help detox and reduce...
  20. Hi Ken--again as said, congratulations on the new grandson!! And really getting the word out to other chefs like that is amazing! Its incredible that chefs are discovering 20% of their clients have food allergies, many of them to gluten! as well as dairy. I think in the not too distant future many strides will have been made along these lines in part due...
  21. Oh wow. I feel for you. However up until new products to help with CC come around you will likely continue to suffer. I find however meanwhile for me that taking Glutenzyme or some such similar product helps etc. Enzymes in general help (like bromelain/papain and pancreatin) plus pro-biotics etc. Plus Marshmallow Root caps and Slippery Elm help heal the lining...
  22. I am 58, going on 59 in August. I was first dxd when I was 4 months old after pneumonia and "failure to thrive." Only recently I found out what that meant, failure to grow due to celiac/sprue by being introduced to gluten. I was reintroduced to grains at age 4 and suffered with delicate health ever since. Gradually as a young adult I figured out I was...
  23. I agree if you have been diagnosed with DH you have been diagnosed with Celiac. Apart from that, if you ever have the misfortune to land in a hospital, it would be imperative for your doctor to know you have Celiac or are at least gluten intolerant. Has your doc not wondered why you are feeling better by the way? Or is that beyond his/her ken? All...
  24. I doubt their drugs would really be a "cure"--just a way to counteract the occasional CC when it happens like when one eats out. That I think could be helpful in a pinch rather than getting sick for a week etc. Though like I said previously there are natural enzyme treatments that do seem to work. Bea
  25. This seems good advice, esp. about less (or no) red meat. When my kidneys acted up similarly the only proteins I could eat was sprouted sunflower seeds and nonfat organic yogurt. No meat, no fish, no nada. And especially no citrus or anything like that. Mainly I ate salads. And lots of plain cranberry juice with stevia and water. The Dandelion and Marshmallow...
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