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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995
Everything posted by confusedks
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ARCHIVED Anemia And Celiac?
confusedks replied to Kmbishop03's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
As far as the iron making people feel crappy, I was once told by an acupuncturist that iron is a "heavy" supplement. I no longer take it and was only able to take it for awhile (few days...literally). I used to take a liquid iron which was the only one I didn't react to. It was from a healthfood store here in LA called Full O' Life. It was called "Tasty Iron... -
ARCHIVED Anemia And Celiac?
confusedks replied to Kmbishop03's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
I was severely anemic...my ferritin was less than zero on the bloodwork. I had Iron IV's which helped for a little bit, but then the numbers started to drop really quickly. My doctor wanted to give me another set of 5 treatments about 3 weeks after the first set!!! I was surprised that it didn't "hold". They just kept telling me it was normal....when I... -
He wasn't hospitalized for the kidney stones when the weight loss happened. He had no appetite at all which is the reason for weight loss. He was in a lot of pain in his stomach. That's the only reason he lost so much weight. He was also dx'd IBS at the end of all of this because they didn't know what it was. Kassandra
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The reason I think he has Celiac is because he has had GI Symptoms his whole life. He was once hospitalized for what they thought was diverticulitis, but then it wasn't. He had such bad stomach pains, the only thing that helped him was morphine. He then lost about 25 lbs. which was A LOT because he is a small person. Nobody ever tested for Celiac, but he...
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I know when I went to a Mexican restaurant and they used oyster sauce, it had wheat in it. I'm not sure about the fish sauce though. Also, I thought I remember hearing once that we couldn't have fried rice because something they used in it. Kassandra
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ARCHIVED Lack Of Fiber Causing Loss Of Ummmpppphhh
confusedks replied to Cat5's topic in Coping with Celiac Disease
If you find you really need to take a supplement, you could try Colon Cleanse. You can buy it online or at Trader Joes, or any healthfood store. Also, how many gluten free replacement foods are you eating? I find that before I went gluten free, I was no longer eating the "high fiber" cereals, etc. so it can be hard to get things going. Kassandra -
My dad has had kidney stones for years and years and I was wondering if anyone had them before going gluten free and if they have now stopped? He has not been tested, but this may be enough to push him to get tested. I was wondering if anyone had experience with this? Kassandra
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ARCHIVED Positive Tests, Negative Biopsy, Useless Doctors
confusedks replied to gmb's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
I am all for Enterolab, but it does NOT DIAGNOSE CELIAC DISEASE!!! It tells you if you are reacting to gluten, but it does NOT diagnose Celiac Disease. I just wish I would have known this when I got tested with Enterolab. Kassandra -
ARCHIVED Teenager Going Gluten Free?
confusedks replied to cyberprof's topic in Parents, Friends and Loved Ones of Celiacs
Hello, I am 17 years old and without going into my lifetime of health problems, after finally ending up bed-ridden and going gluten free before testing, my doctor did diagnose me. It (being bed-ridden) was such a motivation for me to go gluten free that I would never go back on gluten or even gluten light. I understand being gluten free in High School... -
ARCHIVED Omg...i Might Be On To Something
confusedks replied to Rachel--24's topic in Food Intolerance & Leaky Gut
Jin, It was actually in Northern California. I flew up there. It was a lot of fun, except I was sick for 3 out of 4 days! But the food was good (well, the gluten free, soy free, nut free, dairy free food I was actually able to eat!) It was funny I was at celiac camp and needed "special food"!!!! Kassandra -
ARCHIVED Health Valley Cereals Okay?
confusedks replied to amberleigh's topic in Gluten-Free Foods, Products, Shopping & Medications
I was just at celiac camp and we had the rice one by this company. I don't think they would have served it if it wasn't gluten free since it was all celiacs. Kassandra -
Hey, I did take my birth control pill with the Vicodin (not at the same exact time...about an hour apart). The thing is I have been on BC and the Vicodin for at least 2 months. The doctor at camp said that it could have been from the vicodin because it can relax your esophagus and cause acid reflux. I don't know though. The reason for the vicodin is...
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ARCHIVED Omg...i Might Be On To Something
confusedks replied to Rachel--24's topic in Food Intolerance & Leaky Gut
Kassandra, beautiful picture. I have a 17 year old son ... wink.gif laugh.gif LOL!!! That's so funny! I was gone at a celiac camp and we were all joking about meeting guys with celiac disease...but it didn't happen. Kassandra -
I went to a celiac camp in Northern CA and it was amazing! The only problem was that day 2 I woke up at 1 in the morning so nauseous that I couldn't sleep. After getting the Dr. on campus with us, I was given Antacid which made me way worse. Then I waited 5 hours for him to get me so Zofran (anti-nausea med) which helped, but I have been taking it every ...
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ARCHIVED Omg...i Might Be On To Something
confusedks replied to Rachel--24's topic in Food Intolerance & Leaky Gut
NoGluGirl, Thank you for your kind words about my pic. That pic was taken of me at my birthday dinner in July. I turned 17...so it wasn't my husband. Lol! Kassandra -
ARCHIVED Omg...i Might Be On To Something
confusedks replied to Rachel--24's topic in Food Intolerance & Leaky Gut
Susie, Thanks about the picture We definitely need to talk about back stuff! I have been a lot better lately...after not being able to walk, any improvement is WAY better. How are you felling? Kassandra -
Sorry for the double topic post and I figured it out! I needed to re-format the picture to a .gif file. Kassandra
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I can't get a picture in my avatar! Grr If I want to take a picture from my digital camera and make it my avatar...how do I do it? A step-by-step instruction would be helpful if someone wouldn't mind. Thank you!!! Kassandra
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ARCHIVED Omg...i Might Be On To Something
confusedks replied to Rachel--24's topic in Food Intolerance & Leaky Gut
I have a kind of random question. I am going for skin testing in a week or two. If we find out I have a mold allergy, and it is in our building...what do we do? Can I take something for it. We don't know if we can really move since we have wayyyy too many hospital and other medical bills. Any ideas? Sorry for interrupting the flow of conversation. ... -
ARCHIVED Are Their Any Prescriptions Remedies To Ease The Nausea?
confusedks replied to Rose-NC's topic in Gluten-Free Foods, Products, Shopping & Medications
I second Zofran. When I was in the hospital, I was glutened many times and they gave it to my through my IV as much as I was allowed (every 2 hours I think.) Then I had a TERRIBLE reaction to a narcotic pain medication and was so nauseous I couldn't open my eyes (I REFUSE to throw up) and they gave me more zofran and it was amazing! I now got a prescription... -
That was an interesting article. I don't really know what I thought about it...it was a little mean to her. I don't think she's nagging at all. It's so easy to just delete the "15 e-mails" which I only get about 4 a day...so I don't know where that number came from? Oh well. I am on day 4 of Flybabying and I am going to look at the saving dinner book...
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I would try calling the Celiac Disesase Foundation office. They gave me some info about doctors. They know of the best in the L.A. area. Kassandra
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I started yesterday. I am going into a new school year and I;m freaking out because I neglect laundry, my chores, etc. Instead of cleaning the kitchen sink, I do my bathroom sink because my mom does the kitchen sink. That would be great if we could all support each other! I'd love that! Kassandra About the emails, they are annoying, but they're really...
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ARCHIVED Enjoy Life Products Made My My Friends Day
confusedks replied to kml55's topic in Food Intolerance & Leaky Gut
I wish they'd make breads, and other things totally allergen free. I love sweets, but sometimes a frozen healthy meal would be nice! Kassandra -
ARCHIVED Omg...i Might Be On To Something
confusedks replied to Rachel--24's topic in Food Intolerance & Leaky Gut
Andrea, This is what I keep hearing...plain foods. Everyone tells me fruits, veggies, meats, etc. Whole type foods are the best and I know that...but AHH!! What about those of us who are crazy busy and don't have time to make "full meals" all the time?? I guess I'll get used to it. This makes me realize that people who have no other intolerances other...