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mftnchn

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by mftnchn

  1. mftnchn
    I'm on the SCD now, and it is working quite well for me. What I notice about both of your situations is that you are eating a number of foods quite hard to digest. I agree with Shay you might do fine doing SCD 2-3 months then adding to it. Some people though may need to do it much longer if their healing process is slower and they don't start making...
  2. mftnchn
    Yes you are on the right track. 20% or more of celiac have constipation, and another large group switch off between D and C. Now that you are gluten free you won't be able to get accurate blood tests or biopsy. So if you want a gold standard diagnosis you'll need to eat gluten for several weeks. Enterolab would still work for you up to a year gluten...
  3. mftnchn
    April, I do make my own yogurt. It is really easy, I've made yogurt for years. I was doing very well on the goat milk yogurt in the US but last week had a severe reaction to my first cup of yogurt here. I realized later I had also taken my mold shot. Pretty sure it is the shot but today will start testing the components of my yogurt started with the...
  4. mftnchn
    What specialist are you waiting for?
  5. mftnchn
    Good for you. Just remember that false negatives still happen pretty often even without being gluten-free prior. Especially for early disease. If your tests are negative and you want more confirmation you could then try Enterolab; you won't have to wait to go gluten free for Enterolab. You've already done the gluten challenge, maybe. Depends on how...
  6. mftnchn
    I don't know for a little one, especially who has been gluten-free this long. Is he still having symptoms or are you just checking? I had profound deficiencies of vitamins, minerals and amino acids. Most of the testing was not by conventional labs though. Vit D? Calcium/magnesium? Amino acids? Sorry, can't really say for sure.
  7. mftnchn
    Family history would be the biggest reason here. Constipation could be a celiac symptom. Mental illness as a primary celiac symptom wouldn't be considered probably by doctors. However, there is a clear component when you read patient reports here on the forum. If you are positive, I'd sure encourage her testing if she will comply with the diet.
  8. mftnchn
    I found I also became more noticeably sensitive after going gluten-free. My own thought about it is that my immune system was very suppressed. After going gluten-free it started waking up..and showing more sensitivity. I have other things going on though...lyme disease, metal toxicity, parasites, etc. Now I know that I haven't healed well enough on...
  9. mftnchn
    After trying a whole list of things that didn't really work for me, what has done the trick was something called Travacor. It is a neurotransmitter support combo that happened to have most of the things that I tested low in. Surprisingly it helped after the first day! The severe malabsorption caused a lot of deficiences for me...I'd try to get that checked...
  10. mftnchn
    Christie, the ttg is even more specific for celiac because it tests for the enzyme the body produces that causes the intestinal damage. Your Enterolab results are very positive--I'd take that seriously, along with a positive blood test. Traces can make a differene to anyone but seems like some people are less bothered. My allergist told me at the...
  11. mftnchn
    Yes, to meds thing...but I hope to adjust that next time I am in the USA and switch to more compliant ones where I can. I'm not on raw yet, but hopefully by later this year I'll have more leeway. The NW is a nice place for wonderful fresh fruits and vegetables.
  12. mftnchn
    I don't personally have a diagnosis, but I do work in the field. On this forum since I joined I have seen many who report resolution of such symptoms. Some after gluten-free, some after gluten-free plus some other restrictions that has worked for them. Recently starting the specific carbohydrate diet, I've read of a whole number of other reports of...
  13. mftnchn
    I'll have to leave the 3 subtype 8 gene for someone else to speak to, as I can't remember. But the 0202 is a DQ2 gene, but not the one strongly associated with celiac which is 0201. The ttg is negative but IGA is positive with positive and significant malabsorption. Casein is negative which is good news re milk. Malabsorption can have many causes...
  14. mftnchn
    In the book BTVC, the author does use the word "cure" but it is an unfortunate choice. In the context it is pretty clear that it means to clear up all the symptoms. Also, I think that gluten-free only to restore villi damage is a simplistic understanding (not for you, but I mean in general in the scientific community) because it seems to work for many...
  15. mftnchn
    We each have 2 genes and each has two alleles. As you said Enterolab just tests the B alleles. Hence only two numbers. So the 2,2 and 2,5 will reflect all four alleles. But your 2, 3 just reflects two of them. The DQ7 comes from the subtype designation. The confusion comes with the change of labeling. The DQ2 with the subtype of 2 means it is less...
  16. mftnchn
    check out www.pecanbread.com for some help if gluten-free alone isn't enough.
  17. mftnchn
    Some very good ideas here. I agree with Rachel about the types of allergy or intolerance tests. I'm struck by several things you have said. Continued lactose intolerance, continued symptoms even after 2 years gluten-free. Might indicate healing has been delayed and not making enzymes. Check out Scott's newsletter Winter 2003 edition on healing. Notice...
  18. mftnchn
    This is all great advice and a good place to start. With celiac there can be many co-occurring autoimmune or other issues. So if she doesn't fully respond when you do go gluten free, keep asking questions here. There are many other things various folk have found helpful.
  19. mftnchn
    You could check into the Specific Carbohydrate Diet. It is gluten-free but a stricter diet that doesn't allow a lot of carbohydrates. This is because the villi damage in the intestine can be so severe that you can't produce the enzymes to break down not just lactose, but other carbs as well. It would be a stricter start for you, but you could see more...
  20. mftnchn
    Maybe you could do the Rosmed test I did or something similar. The gut panel is what picked up my inability to digest sugar. If he has that, it could be causing his symptoms. Read the stories by parents on the pecanbread.com site. Had me in tears... I'm guessing you will lose weight on SCD, seems like most overweight folk do. Underweight don't necessarily...
  21. mftnchn
    BTW in the winter 2003 issue of Scott's newsletter, there is an article on recovery of the villi in celiac disease and a discussion of the inability to digest sugar. It mentions that the two year recovery rate for producing lactose is still only at 55%, sucrase 84% and maltase 79%. Also that the improvement in the digestion of these sugars is thought...
  22. mftnchn
    BTW in the winter 2003 issue of Scott's newsletter, there is an article on recovery of the villi in celiac disease and a discussion of the inability to digest sugar. It mentions that the two year recovery rate for producing lactose is still only at 55%, sucrase 84% and maltase 79%. Also that the improvement in the digestion of these sugars is thought...
  23. mftnchn
    Well some people hop into the full diet right away and seem to do okay. Others say that they have had to go back and do the intro later. Others have said they did intro but then added things too fast and have had to redo the intro several times. Everything I have read highly encourages starting with intro and gradually introducing foods. That's especially...
  24. mftnchn
    What I understand it is better to take before the meal 30-60 minutes so it is down there waiting when you take food and bile is released to help digest. The bile releases toxins too, so the chlorella is there to soak it up. Sherry
  25. mftnchn
    Carla, I think your experience is going to have us ALL reviewing the mold scientificness. Can everybody repost their favorite links? Sherry
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