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ravenwoodglass

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  1. ravenwoodglass

    ARCHIVED Dapsone

    ravenwoodglass replied to Di2011's topic in Dermatitis Herpetiformis

    Are you avoiding iodine in food and supplements as well as toiletries? You don't need iodine to have a DH outbreak but it does keep the antibodies active in the skin. Personally I wouldn't go the Dapsone route. It is a pretty toxic med. If you do decide to use it for the short term make sure the doctor does regular liver panels on you and does one before...
  2. ravenwoodglass
    Welcome to the board. The DGP is the newest and most specific test for celiac. If it is positive she needs the diet. Don't start until after she has an endo. Then on the day that is done start her on the diet. You don't have to wait for the biopsy results. Read as much as you can here and ask any questions you need to. You also should now get all first degree...
  3. ravenwoodglass
    Hopefully taking out those two that haven't come to the surface yet will help keep the permanent teeth from being as overcrowded. I also have a small jaw and had to have four pulled before I got braces so it isn't unusual. Glad it is an oral surgeon that is doing it. I hope all goes well for her.
  4. ravenwoodglass
    When in doubt call the company. The only place there could be gluten is the natural flavoring in the form of barley malt but there is a good chance it is safe.
  5. ravenwoodglass
    The key to my answer is what I have bolded. They would not routinely do any GI biopsies on autopsy with someone who has committed suicide. I do know that if I hadn't had any children when I was on my long and painful road to diagnosis I would be one of the unknown statistics. I did commit suicide at 11 when the neuro symptoms hit me really hard but thankfully...
  6. ravenwoodglass
    If it worked they would have sold millions. This is snake oil period. You will be risking a lot if you try to avoid the diet with products like this. Just take a good look at some of the signatures of those of us who went years without diagnosis. Rely on this stuff and you can have a sig like that too. I know how badly you want this diagnosis to just be...
  7. ravenwoodglass
    Glad to hear this may not be anything serious and you won't likely need surgery. Hope your feeling better soon.
  8. ravenwoodglass
    So sorry to hear this. Please let us know how you are doing. (((((((((((((((((((((((HUGS)))))))))))))))))))))))))
  9. ravenwoodglass
    And you will too. I hope things get better for you soon.
  10. ravenwoodglass
    I do get out now for the last 2 years or so. I just do stuff during the early day. I did have to get to the point where I had hardly left my house in years before I got the strength to fight though. As they say when life gives you lemons you make lemonade. Sometimes it just takes some time to find the squeezer. In your other post you refer to needing to...
  11. ravenwoodglass
    Yea I would question the need to remove the two that haven't surfaced yet also at her age. I would also get a second opinion on that. They told me as a teen that mine should be dug out, and said the same for my son. In both our cases the teeth have never given us any problems. My DD did have hers out because they were causing issues but not until they started...
  12. ravenwoodglass
    This appears to be an invitro form of the mucosal challenge used in some countries. In that one they insert a gluten suppository or use a gluten swab in the cheek and then biopsy the tissue a few hours later. Both methods to me seem much more humane and specific than the barbaric practice of putting us through a food challenge that makes us sick for months...
  13. ravenwoodglass
    I don't know about that particular brand. You might want to contact the company directly and inquire. I take NOW most of the time and some Country Life.
  14. ravenwoodglass
    I have PTSD from all the years of illness and being unable to leave the house becuase of my celiac symptoms combined with other life experiences. It actually got worse after diagnosis because I don't like taking pills and no longer needed the handful that I would have to take prediagnosis just to go to the store. But the fear of getting sick in public didn...
  15. ravenwoodglass
    I use Grainless Baker stuffing mix. Wegmans carries it if you have a Wegmans near you. If your local store stocks any Grainless Baker products you could ask if they can get some.
  16. ravenwoodglass
    If her diet is already low gluten that can cause false negatives on testing. It wouldn't be a bad idea for her to go strictly gluten free and see if it helps.
  17. ravenwoodglass
    Welcome to the board. I know this new diagnosis seems daunting and it does take some getting used to but it is very doable. Celiac is genetic but not everyone who has the genes will develop celiac. When you have children there is no certainty that they will or will not ever develop it but you will know to have them checked if they have symptoms. In the...
  18. ravenwoodglass
    I am the first one diagnosed but my children were tested after I was and my Mom was clearly celiac and my twin brother may have been also. I have an aunt who also was likely celic and chances are we had many more family members who were and are but are undiagnosed.
  19. ravenwoodglass
    If you had gluten free pasta while he ate regular pasta did you drain it in the same strainer? That will get you. Many also use the same spoon to stir pasta and the sauce and perhaps that happened with both pastas and the same spoon.
  20. ravenwoodglass
    Sorry this happened to you. Pepto Bismal liquid usually helps me with the stomach pain. Do you know what 'got you'? Anyway I hope your feeling better soon.
  21. ravenwoodglass
    I was reading Discover's magazines new issue last night. One the last page they have an article entitled '20 Things you never knew about alcohol'. In it they state that a candida infection when severe can cause the body to convert foods into alcohol within the system. I wonder if perhaps that is what is going on with you. Have you ever been checked for a...
  22. ravenwoodglass
    Did they have a total IGA done? If they are IGA deficient the IGA tests will be a false negative for sure.
  23. ravenwoodglass
    Plus some of us don't develop real serious symptoms until adulthood. Since celiac often requires a trigger event for women that trigger can be childbirth. By then of course the associated genes have been passed.
  24. ravenwoodglass
    Maybe it is too much grease for your system? I eat that bacon all the time and never had any issues with it and I am pretty sensitive to even trace amounts of gluten.
  25. ravenwoodglass
    You have made progress on the gluten free diet so you might want to stick with it a bit longer. If you are having issues with what may be DH you might want to drop iodine for a bit and make sure all your topicals are gluten free. If you do want to try going back to gluten you may find yourself feeling even worse than you did before you got on the diet....
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