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ravenwoodglass

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Everything posted by ravenwoodglass

  1. ravenwoodglass
    You shouldn't have any problem with protein, there are lots of good sources of protein and wheat is not a good source of it to begin with. You do have to become a bit of a label reader. Although wheat is required by the FDA to be listed barley often hides under 'natural flavors' but the list of reliable gluten labeling companies should help with that...
  2. ravenwoodglass
    If you are already gluten-free you can't be tested, you need to be on a full gluten diet again for at least a couple of months for the tests to have any chance of being accurate. It seems however that your body is telling you the answer. Is there any way you can find a different job? Breathing in flour dust would cause a reaction.
  3. ravenwoodglass
    You may want to check and see if there is a celiac support group in your area. If there is you could go to a meeting and interview folks directly. 1. How long did it take for you to realize you had the disease? How were you diagnosed? 45 years I was finally diagnosed with the aid of an allergist and an elimination diet. 2. Has living with the disease...
  4. ravenwoodglass
    I am not positive about this but I believe HIPPA regs forbid them from asking about your medical history. If you have some long periods when you were ill and not working because of it and they are allowed to ask about your medical issues then perhaps go ahead and tell them that you are celiac but you are now on the diet and have had those issues resolve...
  5. ravenwoodglass
    I would go with the allergists advice and give the diet a try.
  6. ravenwoodglass
    Go ahead and try the diet. If your doctor only did one biopsy then your chances of a false negative are high. I recently got a new GI doctor who is the most knowledgeable doctor I have ever seen as far as celiac goes. It took them over 15 years to diagnose me because I don't show up in blood work and no one even told me what the tests were for, just that...
  7. ravenwoodglass
    First off celiac and wheat allergies are two different disorders. Celiac is an autoimmune disease and could cause the problems that you are seeing. Does she only vomit with gluten foods? That would be a good indication that she has a gluten issue. I don't know what tests your allergist may do. If they do a skin prick test don't be alarmed. It is not...
  8. ravenwoodglass
    You might want to try taking some sublingual B12 and see if that helps. Many of us need to supplement especially in the beginning. If you are low in B12 the nerves don't fire correctly. If it continues after a short time on the B12 do get it checked out by your doctor.
  9. ravenwoodglass
    You do sound like one of us. Doctors have been taught in this country that celiac is rare, it isn't. The fact that you don't have D isn't proof that you don't have celiac. Many of us have C for a while before we get constant D. If your body isn't absorbing nutrients from food it is going to try and hang on to everything as long as it can and it will also...
  10. ravenwoodglass
    I can definately relate. I am one who didn't show up in blood work and I suffered for years even though I could have been a textbook case symptom wise. It can take some time to heal and also some of us do have other intolerances in addition to the gluten. Have you deleted dairy from your diet? The same areas that are damaged by celiac are the ones that...
  11. ravenwoodglass
    You might want to consider seeing an allergist who will help with the elimination diet. Not all will so ask before you make the appointment. Mine literally saved my life.
  12. ravenwoodglass
    This is good advice. The only thing I would add to it is to introduce the new food for a week. With food intolerances it can take up to a week to react, some will react sooner of course. My allergist was the doctor who initially pinpointed the celiac, I am one of the lucky ones who don't show up in blood work. He did it through an elimination diet where...
  13. ravenwoodglass
    No. My family is a prime example of that. My DD went off the diet when she went to college. She was diagnosed by both positive blood and biopsy. She went to another doctor in the city she went to college in and got retested after being gluten free a couple of years. She had healed so her biopsy was of course negative and when they did the gene test she...
  14. ravenwoodglass
    " I am eatting 2 apples a day with peanut butter (one breakfast, one lunch), 2 string cheese for lunch, and whatever I have the energy to put together for dinner (usually when I am the most tired). " You are definately not eating enough. Can you eat eggs? They are a good source of protein and you can hard boil them to eat for lunch or a snack. You can...
  15. ravenwoodglass
    We certainly are individuals aren't we. I have no issues with Kinnickinnick or Pamela's but Bob's makes me curl up in a ball from the pain. I don't tolerate either the bean flour or the sorghum well. I also get ill from soy. It binds me up for days. The bottom line IMHO is that if it bothers you stay away from it. Many of us do have issues with...
  16. ravenwoodglass
    You have to stay on gluten until the biopsy, however if you had eliminated gluten and then your symptoms become severe again after you added it back in that is also diagnostic. The choice of whether to continue on the gluten is your choice. With a postive blood test and a reaction to adding gluten back in that is pretty diagnostic in itself.
  17. ravenwoodglass
    First off I wouldn't put that you are celiac on your job applications. Unless you are applying for a job in a restaurant or bakery, which isn't a great idea for a celiac, it should have no bearing. Once you get the hang of the diet and have healed a bit you may find you are healthier than you have ever been. As to the depression, if you are new to the...
  18. ravenwoodglass
    Just a quick note on the gene tests. In the US they generally only check for 2 out of the 9 celiac related genes. Usually celiacs will carry DQ2 or DQ8 but there are other genes that are also related. It is up to you whether you want to continue with more testing or just give the diet a good strict try. If you plan on more testing, blood or repeat biopsy...
  19. ravenwoodglass
    In some cases if you explain to the derm what is going on and what you suspect is causing it during your first appointment they can arrange for you to be seen quickly when the rash is active.
  20. ravenwoodglass
    For years I had severe C. To the extent that I usually only had one BM a week. My Mom used to call it 'rabbit poo' and way back then the doctors told her it was normal for me. Then about 15 years before I was finally diagnosed it switched to daily D and then daily and 'wake me up in the middle of the night D'. They told me I had IBS and it wasn't until...
  21. ravenwoodglass
    Dove and Suave will list clearly any gluten ingredients. Giovanni is also a nice line and everything is gluten free. Burts Bees will also clearly list gluten and most of their stuff is gluten-free. Another one is Garneir, they are my brand of choice for shampoo, conditioner and hair color. There is a great deal of difference among us as to whether or...
  22. ravenwoodglass
    My personal favorite is Kinnickinnick. I really like the Italian, it's the only gluten-free bread I have ever liked with just butter. They also make good waffles. They use vanilla in them and the smell when they toast is heavenly. The donuts are also good and I also use their pizza crusts. They are pricey but since I get 4 pizzas out of a package it...
  23. ravenwoodglass
    I do hope you come back and continue to learn about this disease. Your positive blood work is diagnostic and even if your doctor has been known to jump to conclusions with the positive blood work this isn't one of those times. Whether you are celiac or intolerant is really a moot point. Many that are deemed 'just' intolerant have impact on other organs...
  24. ravenwoodglass
    You may want to see if they carry 'Country Life' brand. They are free of all the allergens. I have been taking them for 6 years now with no gluten issues.
  25. ravenwoodglass
    It is up to you whether you want to have the biopsy done or not. If you would have trouble sticking with the diet without it then go ahead and have it done but be aware that there are false negatives on both blood and biopsy. With a postive blood test chances are very good you are one of us. When you are done with testing do give the diet a good strict...
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