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Latest Celiac Disease News & Research:
Everything posted by ravenwoodglass
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ARCHIVED Are Irish Oats Safe?
ravenwoodglass posted a topic in Gluten-Free Foods, Products, Shopping & Medications
I have seem some oats recently that were imported from Ireland, one even had a wheat-free symbol. Has anyone tried eating this? I know US oats are a big NO, but are Irish Oats okay? -
ARCHIVED Having My First Gf Party
ravenwoodglass replied to elonwy's topic in Coping with Celiac Disease
Sounds like your party will be fantastic. Have fun, relax and keep your fingers out of the icing. -
ARCHIVED Hair Loss And Celiac
ravenwoodglass replied to Claire's topic in Coping with Celiac Disease
For the first 6 months I also avoided any dairy other than yogert. I added dairy back then and now have no problems with it. My DH has been the hardest to fight, it seems to reactivate very easily, after reading 'Dangerous Grains' I have massively cut my rice intake , I find this harder to do than gluten elimination and haven't cut it totaly, I still consume... -
ARCHIVED Hair Loss And Celiac
ravenwoodglass replied to Claire's topic in Coping with Celiac Disease
I lost over half my hair volume, you could see my scalp, and my hair was rapidly turning snow white. Within 3 months gluten-free it was starting to grow back. It is now almost 3 years since diagnosis and my hair is so thick now I had to give up my natural bristle brush, it won't go through it anymore. Oh and what has grown back is brown, I have even found... -
ARCHIVED Pcos And Celiac....any Connection?
ravenwoodglass replied to melisadki's topic in Related Issues & Disorders
Please give a gluten-free diet a try, it may also help with your thyroid and insulin levels. Don't give up hope, it took ten years but I did manage to have 2 children while still being poisoned by gluten. Please try being gluten-free for awhile, it very well may help and you will avoid the osteo and early menopause that so many of us deal with. -
ARCHIVED Attention Deficit Disorder
ravenwoodglass replied to Kenster61's topic in Related Issues & Disorders
Both my son and I have ADD. He was home from school last weekend and he had an interesting take on ADD when we were discussing it. He no longer considers this a dificency. As he said, " I realize now that I can think on many levels. I can think about one thing on the surface, like a instructors lecture while at the same time planning something completely... -
ARCHIVED How Come It Took So Long To Diagnose Me?
ravenwoodglass replied to CeliacMe's topic in Doctors
In my case about $17,000 (that's not a typo). That's a year folks. I was finally diagnosed by a savvy physical therapist who insisted I go to an allergist. -
ARCHIVED Need Help Still Very Confused!
ravenwoodglass replied to dad's topic in Coping with Celiac Disease
I would strongly suggest you add grain vinigar with a great deal of caution. Some do not react to this but in my families experience grain vinegars and distilled alcohols lead to DH sores and a strong reaction. Try it if you want but watch for a reaction. -
YES, I developed agoraphobia from being so sick for so long. I fight it on a daily basis, I can now go out for a couple hours during the day but have not been out in the evening now for over 5 years. I make plans to go somewhere then find reasons not to. It all boils down to many years of conditioning, you eat, you get sick, I never knew when things would...
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ARCHIVED Is Wheat In Other Things?
ravenwoodglass replied to poppet's topic in Coping with Celiac Disease
You are alos avoiding barley and rye, right? I don't live in the UK so don't know if you have neutrogena there but many (but not all) of their shampoos soaps and conditioners are gluten-free. Most companies have a number you can call on the product to be sure, I have found that to be the best way to go. -
ARCHIVED Quick Question About Starbursts
ravenwoodglass replied to Mjohnson73's topic in Gluten-Free Foods, Products, Shopping & Medications
Please be careful with the smarties. I love these and have been severely poisened by them. When I called the company they said they dusted the lines with flour but that the smarties themselves were gluten-free! They may have changed this practice call to make sure. -
ARCHIVED Can Someone Help Me With My Test Results?
ravenwoodglass replied to melisadki's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Just a note, if I had only gone off blood work I would still be eating gluten and still be sick. You are doing the right thing by continuing to pursue this with your doctor but don't be afraid to give the diet a try before you say for sure that gluten isn't a problem. -
ARCHIVED At What Age Were You Diagnosed?
ravenwoodglass replied to fisharefriendsnotfood's topic in Coping with Celiac Disease
Your so lucky. I was 45 and had been sick for 15 years, although the depression. DH and nuerological effects started when I was about 7. They couldn't figure out why I had poison ivy all year round. Duhhh. I went through years of very painful shots for that. I was almost totally disabled for the last 5 years before I was diagnosed. And I am not unusual ... -
ARCHIVED Basic Question Needing Basic Answer
ravenwoodglass replied to lorka150's topic in Related Issues & Disorders
I have to strongly disagree with this. There are risks inherent with any procedure, if a dietary change has helped you know your answer. As to other food intolerances they can be found by working with an allergist and doing an elimination diet. As to weight gain or loss, I beleve it varies for many. Most of my weight loss was fluid, I had severe edema but... -
ARCHIVED My Husband Called Me A Hypochondriac
ravenwoodglass replied to Nantzie's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Please don't rely on just blood tests or endo for a diagnosis. The possibility of a false negative is VERY real. My doctors relied on blood tests for years (over 5) telling me I was fine, it was all in my head The diet is the true test. -
ARCHIVED Cocktails Anyone?
ravenwoodglass replied to Threebrainedbeing's topic in Coping with Celiac Disease
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ARCHIVED Foods
ravenwoodglass replied to KIM22's topic in Gluten-Free Foods, Products, Shopping & Medications
Call the company to find out for sure, many brands won't be. -
ARCHIVED Pcos And Celiac....any Connection?
ravenwoodglass replied to melisadki's topic in Related Issues & Disorders
Thanks, I had many delitrious effects on my reproductive system, infertility problems (10 years), endometriosis, miscarriages, severe PMS (PMDD), postpartum depression bordering on psychosis, and extremely early menopause. But PCOS, not as far as I know. -
ARCHIVED All My Kids?
ravenwoodglass replied to smithgirls's topic in Parents, Friends and Loved Ones of Celiacs
I would have them blood tested but not neccessarily endo. Also there is a company that I am sure others will post about, don't know the name, that can test a cheek swab sample for the genetic markers. This might be a pain free way to look at the kids.I would also make the house gluten-free. If the unaffected kids want to eat gluten let them off premises... -
ARCHIVED Anyone From Western Ny?
ravenwoodglass replied to lorka150's topic in Introduce Yourself / Share Stuff
I don't know, I am smack in the middle between Rochester and Syracuse. Where is Amhurst? -
ARCHIVED Confused W ?'s About Diet
ravenwoodglass replied to brice1401's topic in Coping with Celiac Disease
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ARCHIVED Spelt Flour
ravenwoodglass replied to tammy's topic in Gluten-Free Foods, Products, Shopping & Medications
Thanks Kaiti, I have both dogs and cats and am always handwashing after feeding them, I never thought of the licking issue! Are there any wheat free pet foods even out there? -
ARCHIVED Anyone From Western Ny?
ravenwoodglass replied to lorka150's topic in Introduce Yourself / Share Stuff
Hi, Do you consider the Finger Lakes western NY? -
ARCHIVED Could Everyone Help Me
ravenwoodglass replied to Danijela's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
bloating - looked 6 months pregnant constant diarhea (10 years) after many years of severe constipation gas nausea full body edema vision disturbances - migraines balance issues - ataxia fatigue low iron low B12 anxiety depression stomach cramping anorexia, neither my son or I ever feel hungrey brain fog throat irritations hands and... -
ARCHIVED Bladder Problems And Gluten Sensitivity?
ravenwoodglass replied to aurora's topic in Related Issues & Disorders
I've gotten a great deal of relief from the gluten-free diet. It still feels like I am peeing glass when I get glutened, and I will also have microscopic bleeding when that happens. But if I am gluten-free I have no problems and have even seen an improvement in incontinence problems I had since childhood. For me there is a definate connection.