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ravenwoodglass

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by ravenwoodglass

  1. ravenwoodglass
    Boy do I wish I had your doctor years ago. It took me years to find a doctor who would guide me through a real elimination diet. Do what he says and yes you do need to forgo alcohol and beef at first. Ask him if you can add beef in first to eliminate that as a problem so you can add it back in quickly. They are eliminating not just gluten containing foods...
  2. ravenwoodglass
    Karen, thanks so much for posting this. I am one of the unlucky ones who does react, strongly, to gluten grain alcohols, whether distilled or not. I have ended up afraid to drink anything except potato vodka and woodchuck cider. I am going out this morning to get some ouzo and amaretto, my absolute favorites before diagnosis. I am sooo looking forward...
  3. ravenwoodglass
    One of my primary symptoms was joint and muscle pain, misdiagnosed for years as fibromyalgia and arthritis. I think a lot of us get this.
  4. ravenwoodglass
    You really need to get with your GI doctor as soon as you can. You need to make sure you don't have something else going on. I would also call the company that makes the probiotics and make sure they were gluten-free, unless it says so on the label. Something that may help is doing the BRA diet, bananas, white rice (plain) and gluten-free unflavored or...
  5. ravenwoodglass
    This isn't silent celiac, she is clearly having symptoms. Perhaps she should be tested by another doctor after getting copies of her records and sue this jerk when it comes out positive.
  6. ravenwoodglass
    I get my neuro symptoms, (depression, ataxia), my skin symptoms, DH sores, and a tummy reaction. Esentially the same symptoms I get from crosscontamination. Not as severe as the rare occasions when I miss something on a label but still a systemic reaction. I avoid all gluten, I even check pet foods and washing detergents.
  7. ravenwoodglass
    Thanks for your replies and thanks for helping me report it.
  8. ravenwoodglass
    Heinz vinager is made distilled from corn, I have never had a problem with it. Many don't react to distilled wheat vinager but some do. My family reacts to distilled grains in vinager and in alcohol. Many will not have any problems but for some reason we get a gluten reaction. I don't know if this is because we were all so very, very sick before diagnosis...
  9. ravenwoodglass
    I recieved a personal message in my email from a new member calling him or herself 'alberto'. It is a money scam how do I report this person to 'the powers that be' (You admin folks)? Thanks for any help you can give me.
  10. ravenwoodglass
    NO IMHO, you run the risk of having happen what happened to me, being to ill to even make it to the endo. The gluten challenge made me extrememly ill. I never had bleeding before being gluten-free now I deal with much more pain and the intestinal bleeding when I consume that poison. You know your body can't tolerate gluten. What purpose is all that pain...
  11. ravenwoodglass
    Well it sounds like you have your answer when it comes to the gluten issue. Be very specific about your reaction to gluten, it may help if you write it down. My GI wanted me to do a challenge, it made me so sick I couldn't make it to the appointment for the endo. When I saw him at the follow up he gave me the diagnosis and an apology for misdiagnosing me...
  12. ravenwoodglass
    It will get better, don't cheat on this, don't think of it as a diet think of it as a 'save your life-style'. You may also be experiencing withdrawl symptoms, these are tough but they do go away. Once you are fully gluten-free you may find things that were being effected that you didn't even realize. It will get better and I hope it does soon. And you will...
  13. ravenwoodglass
    I would do the brat diet for a few days till things calm down, with gluten-free toast of course. Lettuce gives many folks problems, I do salads with stuff like organic mushrooms, cut up green squash, green beans, onions, carrots, and cukes. I find I don't even miss the lettuce and I can now have salad all the time. It may not work but it is worth a try....
  14. ravenwoodglass
    Please also check for hidden gluten in school, in particular art classes, paints and clays and glues or even in chalk for the boards. If he eats in the cafeteria send some extra napkins, (perhaps damp in a plastic bag) so he can wipe where he puts his food down. I really hope they find out why he is doing so poorly lately. Best wishes
  15. ravenwoodglass
    Have you eliminated gluten from your cosmetics and toiletries? Is there anything you have started working or playing with in that time that could be a source of contamination? Clays like playdoh, paints, glues,have you done or had done any drywall work in your home? Have you explored the possibility that the hives are caused by another food? Pineapples...
  16. ravenwoodglass
    Have you tried to figure out what foods are causing your gas, other than the obvious gluten? Dairy, cruciferous veggies (broccoli, etc), beans? Avoiding the foods that cause you gas is a better way to go than popping gas relieving pills IMHO, also be absolutely certain that these anti-gas remedies don't contain gluten, many do!
  17. ravenwoodglass
    I don't, except for bone density tests for celiac related early ostoeporosis I avoid all doctors like the plague. After all the only thing they ever did for me was make me sicker and prescribe psychotropics. The one time I went to the ER after diagnosis I was bleeding from my intestines after a severe glutening and they barely looked at me, even though I...
  18. ravenwoodglass
    Off topic but I have to comment on this, gluten WAS a problem in the 50's, I was born then as was my twin and my mother was already severely effected. Just because our doctors were to ignorant to diagnose it does not mean it did not exsist. My mother died of gluten related cancer in the early 70's, still diagnosed as emotionally troubled and as just B1...
  19. ravenwoodglass
    To my knowledge those were positive biopsy results have you asked the doctor why he wants more bloodwork? I would take all test results in to another doctor for a second opinion if this one says he should just keep eating gluten.
  20. ravenwoodglass
    I am so sorry you were treated like this. I would talk to your teacher and then I would go to your dean about this person. They need a reminder about how to be human. She may have been having a bad day too but she shouldn't have taken it out on you. And bear in mind how badly they now think of this b---h even if they were to stunned to say anything in...
  21. ravenwoodglass
    I've been having a rough day and I really really want one of those T-shirts
  22. ravenwoodglass
    BK, Please don't give up. Also when you feel your worst emotionally try to remember that it may be the gluten that is causing you to feel so hopeless. Even the tiniest amount can make some of us extrememly depressed. But it will lift. It sounds like you are trying to be gluten free in a house that isn't, is there any way you can make the entire house gluten...
  23. ravenwoodglass
    After years of misdiagnosis by many doctors and many, many false negative celiac panels I was finally diagnosed through an elimination diet by an allergist. He also skin tested and I too showed up allergic to everything but beech trees. It was not easy to find an allergist who would do an elimination diet but they are out there. Most will just give shots...
  24. ravenwoodglass
    Nice to see you in a good mood. I like your new picture but have to say I was kind of fond of the other one. Reminded me of someone I once knew.
  25. ravenwoodglass
    Hi, Just a quick note, it is an endoscopy that they use to diagnose celiac not the colonoscopy. Hi, You sound just like me...on gluten. I would not take that medication without throughly discussing it with a pharmacist. Actually myself, having suffered gluten induced sub illeal seizures for a few years I wouldn't touch it, but that is...
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