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ravenwoodglass

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by ravenwoodglass

  1. ravenwoodglass
    They tested me over and over again and I always showed up negative. Unfortunately it was 5 more years of hell (and 17 thousand dollars a year) before a savvy allergist instructed me on an elimination diet and celiac was finally found. I consider those tests next to worthless for many of us. If a gluten-free diet helped stay with it. Your body knows more...
  2. ravenwoodglass
    In many cases they would know this from archeological evidence. Even primitive cultures made 'garbage' and in many cultures food was included in their burial practices. A pretty good estimation could be created by studying buried remains, especially in areas where a cataclysimic (SP) event occured like a landslide. It is also possible in some instances...
  3. ravenwoodglass
    My DD only GI symptom was ulcers. She would vomit regularly and almost always had stomach pain but no D. When they did the endo they found ulcers and fortunately went ahead and did biopsies rather than the doctor just going ah ha she has ulcers. The biopsies showed celiac related changes that would not have been know without them. If the gluten-free diet...
  4. ravenwoodglass
    I am an Ehlers Danlos person and also wondered if there might be a connection because it seems in my family that the ones who are the most mobile are also the ones most severely effected by gluten. The family members with only 'mild' presentations of the hypermobility also seem to be gluten intolerant rather than full blown celiac and wondered if there was...
  5. ravenwoodglass
    If you do any study of the still present primitive tribes that exist in areas like the Amazon you will find that although some 'war like' behaviors exist, they are human after all, in a whole these tend to be very healthy individuals with strong social and support structures. We should never generalize about any society. On an off note I follow a pretty...
  6. ravenwoodglass
    This is real common it's called parathesias. On a ?humerous? note one of my neuro's before I was diagnosed told me they came from a year of heavy drinking in my teens- I was 35 at the time and far from a heavy drinker. These have gone away now but like most of my neuro symptoms it took a while. Be patient and in addition to the B6 another poster reccommended...
  7. ravenwoodglass
    No your not crazy but you are most likely gluten intolerant or celiac, IMHO. It's not all in your head. Hope you feel better soon.
  8. ravenwoodglass
    Thank you Thank you Thank you
  9. ravenwoodglass
    I think I am going to cry. I recall companies for everything periodically and just called to recheck M&Ms. Last time I called when I went to the phone promts for gluten-free items they were there with the exception of the crispy ones. Now they are gone. Why do they have to do this to us. Unfortunately I ate a couple handfuls before I called. I am so...
  10. ravenwoodglass
    I suffered from extreme constipation for years before the D hit. I don't know if this is because of the GI system wanting more nutrients or if it may be from the neurological effects of the celiac. Also some celiacs get mostly neuro symptoms, everyone is different.
  11. ravenwoodglass
    Thank you all for your replies. Things are finally getting a bit better. I did up my fluid intake a bit it seems to help clear the toxin out a bit faster and keeps my pee from burning as much. I also decided to see if my orthonics people can make me soft braces to help keep my foot and ankle bones in place. I switched GP after my diagnosis and haven't...
  12. ravenwoodglass
    My son and I did not because our symptom relief was so obvious - although I tried. The gluten challange made me so sick I couldn't get to the procedure. My DD did have it done. It was not a difficult procedure for her and there was not much of a prep. Her biopsys showed begining changes in the villi. Her main symptoms were GERD, nausea and vomiting and psychological...
  13. ravenwoodglass
    Do you know for sure that this med is gluten free? Check with a pharmacist to be sure. It is surprising how many meds have gluten in them.
  14. ravenwoodglass
    I am so glad that you are going to go on the diet. You will thank yourself for this after you have been on it for a bit. Many of us notice positive changes after being gluten free that are very unexpected. You may notice more energy, less premenstral problems, less headaches, better coordination. These were a few of the 'minor' changes that my DD noticed...
  15. ravenwoodglass
    "Once a month I take about a mouthfull of whatever I want to dabble in. I make it a different thing each time and I never do more then a mouthfull. In all honestly one bite once a month may not sound like much but for some people it may be too much. As I have grown older I have found that one mouthfull use to give me stomach cramps or even the squirts when...
  16. ravenwoodglass
    Some of your anxiety may lessen as you heal from the gluten. But boy do I know where your coming from. What helped me was to switch to unprocessed foods. I buy organic chicken, fresh veggies and fruits. Fresh potatoes, plain rice and only McCormick single spice spices. There are also some good gluten free baked goods that come from facilities that only use...
  17. ravenwoodglass
    Hi, I have posted before about benign hypermobility or Ehlers Danlos. I have the latter. I was glutened last week which causes my joints to swell with fluid. Anyway I have dislocated my feet and/or ankles every night this week. Night before last I had a hard time getting my ankle back in place so had a pretty miserable day yesterday. It finally snapped back...
  18. ravenwoodglass
    Hair loss is actually pretty common amongst celiacs. Remember celiac disease attacks the entire system effecting brain, blood, lymph and GI systems. Many people suffer non-GI related symptoms for YEARS before the gut symptoms start. It may be more common for those of us with DH also to have hair loss but it does occur. For most regrowth will start within...
  19. ravenwoodglass
    You have to remember that in many countrys celiac is either screened for in childhood or tested for early in illness. Here the average time for diagnosis is 11 years for some much longer. For me it took over 40 years to get a diagnosis. This discrepency in development of other problems may be because they disagonse early enough to avoid complications. Most...
  20. ravenwoodglass
    Your symptoms are very similar to the ones I suffered from for 30 years, then the tummy stuff hit. It was 15 more years of misery, including 5 totally disabled, before my celiac was discovered. I did not show up in blood work but that did not mean I was not gluten intolerent since early childhood. Personally I would make your home gluten free. I bet you...
  21. ravenwoodglass
    My bet would be on the gluten. My family has noticed a positive effect on our moods and thinking processes since gluten-free. Depression and irritability are one of the first signs we have had an 'accidental' injestion.
  22. ravenwoodglass
    Yep, only it was poison ivy - for 45 years off and on. I would be broken out for most of year. Had to take incrediblly painful shots for it as a child 'cause they said it was 'in my bloodstream' yea right. The one time we figure I really did get poison ivy it was on top of the DH sores. I was a real oozy mess for a long time. My rashes only mirrored...
  23. ravenwoodglass
    The scale is pretty cool, I'm a 6 using it but it's weird it doesn't list a couple of my most mobile joints - shoulders, ankles. Gym teachers always went 'huh' when we did wing stretcher excercises in gym. I find it odd that each family member has differnent joints affected and my DS is the only one with the stretchy skin. We call it the frilled lizard...
  24. ravenwoodglass
    This is mainly out of curiosity, I have noticed that in my family these two ? genes seemed to manifest together. I was just wondering if it is more common in us gluten intolerants. I know I suffer less with sleeping (feet and ankle) dislocations and stuff when gluten-free. I believe it has to do with fluid build up in the joints making them more prone...
  25. ravenwoodglass
    You are in our thoughts and prayers. I am so sorry this happened to you folks.
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