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Emily Elizabeth

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Everything posted by Emily Elizabeth

  1. Emily Elizabeth
    The first loaf of bread I made was exactly as you described - 3 inches tall and drooping in the center. Then I read in one of the gluten-free cook books I bought that gluten-free bread bake much better in the gray non-stick loaf pans. I bought one and have been very happy with the results (I was cooking in pyrex glass pans before). The bread isn't like wheat...
  2. Emily Elizabeth
    I would definitely say that you should put up with the pain for a little while longer if you can. I read a book on celiac disease and it said that in order to ensure your test results are accurate, you should have at least the equivalent of 4 slices of bread a day for 2 months. Nothing would be worse then your tests being falsely negative and you having to...
  3. Emily Elizabeth
    I wish I had an answer for you. Maybe try not eating 2 hours before going to bed and don't lie down 2 hours after you eat either. I know that really helps my mom (she has Barrett's Esophagus). This could help you feel better, but I wish I could help you figure out why you feel that way.
  4. Emily Elizabeth
    I'm so glad you liked the recipe. That's the great thing about it... it seems you can tweak it all you want and it still turns out great! Today I added a mashed banana and flaked coconut and it was wonderful! I'm excited to try adding raisins like you did! I was worried they wouldn't cook right for some reason. Maybe it will remind me (slightly) of my old...
  5. Emily Elizabeth
    This all sounds familiar to me! I was diagnosed with celiac in May, but was feeling the same frustration as you before diagnosis. I looked pregnant every afternoon and worse at night and was eating constantly. Even my co-workers thought i was pregnant! The only advice I have is to hang in there. Unfortunately if you have celiac you have a tough road ahead...
  6. Emily Elizabeth
    Your symptoms definitely suggest celiac from what I have read. The only thing I haven't heard about is a decreased appetite. But that could be due to the fact that food is making you sick, so subconsciously you don't want to eat. I know at one point I started eating a minimal amt each day and felt much better (though I lost too much wait). Anyway, the most...
  7. Emily Elizabeth
    That's very interesting about the Puffins too! I guess I just chose the wrong gluten-free cereals! I'm thinking more and more that it's cheaper and healthier to make my own food from scratch. Luckily I enjoy cooking!
  8. Emily Elizabeth
    Here's a great recipe for cereal/granola that I just posted that may be helpful. It's great for snacking and you can add some olive oil and more nuts and honey for added calories. it would probably be good with raisens or other dried fruit, but I have yet to try it. (Now, i'm guessing on the measurements since I never measure - but it's a pretty forgiving...
  9. Emily Elizabeth
    Wow! That's crazy! That really explains it then. I bet it was the cereal. I was so frustrated because I thought I had eliminated all gluten from my diet. I never thought to check the things that were marked gluten free.
  10. Emily Elizabeth
    I'd love to share the recipe! I'm going to do my best to write it down since I honestly never measure anything. It's really forgiving though. You can really put anything into it and so far it has tasted good everytime! (Of course I always liked healthy cereals - Fiber One, Kashi, etc) Emily's Heart Healthy Granola Cereal 1 Cup - Any mixture of the...
  11. Emily Elizabeth

    ARCHIVED Follow-up Blood Work

    Emily Elizabeth replied to Moondanse's topic in Doctors

    Yes, I had my blood work sent to Prometheus labs too. Here were my results: AGA IgG - 11.9 U/ml AGA IgA - 5.9 U/ml IgA ELISA (TTG IgA) - >100 U/ml IgA IFA (EMA IgA) - Positive Total IgA - 100 mg/dl HLA DQ2 - Detected HLA DQ8 - Not Detected Results of my Biopsy - Inconclusive evidence of Celiac Disease (they did this first, then ran the blood...
  12. Emily Elizabeth
    I have posted in the past my frustration with continuing symptoms (gluten free starting in May). Well, I just started feeling almost normal again this past Thursday. Finally! The one thing that has changed in my diet (as far as I can tell) is the fact that I started making my own homemade cereal from scratch. My grocery bills were through the roof and I decided...
  13. Emily Elizabeth
    I'm sorry to hear that you were diagnosed the day before your birthday and at 18! I wish you the best of luck in college with the new diet!
  14. Emily Elizabeth

    ARCHIVED Need Advice

    Emily Elizabeth replied to Emily Elizabeth's topic in Doctors

    Thanks for your advice. My doctor is going to do the breath test for lactose intolerance. I am also getting tested for parasites. Thanks for the advice on looking up Ursa Major and Rachel_24. I'll see what I can learn from their posts. I can't wait until I'm done wondering. I just want to move forward with my life.
  15. Emily Elizabeth

    ARCHIVED Need Advice

    Emily Elizabeth replied to Emily Elizabeth's topic in Doctors

    Thanks Elizabeth. I wish that I had a referral for a holistic doctor. I even asked my doctor to recommend a nutritionist and she said she didn't really have anyone that she would recommend. Ugh. I really need to do research and probably join a support group so I can learn more. One step at a time though right? Thanks again for your advice.
  16. Emily Elizabeth
    I was just diagnosed less then 6 weeks ago so I am new as well. I was REALLY overwhelmed with the thought of having to check soaps, shampoos and cosmetics on top of adjusting to the new diet and avoiding gluten when I went out to eat. I would recommend focusing on the food at first. As long as you don't ingest your shampoo, lotion, etc. you will be okay....
  17. Emily Elizabeth
    Thank you so much! I don't know how I missed this post - I apologize for the delay! That's so funny that you mention Great Sage. An old friend of mine just told me about it this week. It turns out a lot of her friends have Celiac disease as well. She hadn't tried it yet though. It sounds wonderful! I am definitely going to check out the DCCeliac list on Yahoo...
  18. Emily Elizabeth
    That's a good question. I wish I knew the answer. The machines typically use powdered mixtures, so I would definitely be cautious. I would ask someone to show you the ingredients. It's such a pain to have to do that, but sometimes it seems that is the only way to be sure.
  19. Emily Elizabeth
    So last night I stopped eating about 4 hours before I went to bed (usually I eat up to 1-2 hours before since I go to bed really early - 8pm) and also didn't have any wine and was much better intestinally this morning. I still had soy today. I LOVE wine though, so I really don't want to believe that it is a problem! I did notice that I was worse on the days...
  20. Emily Elizabeth
    Yikes! Thanks Becca.
  21. Emily Elizabeth
    I am baffled by that too! It's ironic that when I really started trying to eat "healthy" (which of course included lots of wheat fiber) I ended up being diagnosed with Celiac Disease. I am reading that the body can't actually digest one of the amino acid chains in gluten. Not everyone has the reaction that Celiacs do, but I am starting to wonder how healthy...
  22. Emily Elizabeth
    I hadn't heard of that before. It sounds very interesting though. I definitely noticed that I was feeling better when I cut back on empty calories and ate only foods that were nutritious. This was before I was diagnosed though, so less food meant less gluten, so that could be another reason I felt better!
  23. Emily Elizabeth
    Thanks for your advice! I am going to ask about doing the celiac panel instead of the biopsy if they recommend it. That would be much better! You have calmed my nerves.
  24. Emily Elizabeth
    Thanks so much! I will keep looking forward to my 2 year mark!!
  25. Emily Elizabeth
    I have my 6 week follow up appointment since I was diagnosed next Tuesday the 26th and I am very nervous. The doctor told me that I would have to have another endoscopy if I was not doing better. Now I am definitely feeling better, but I am still having intestinal problems (loose stools at least 4 times a day) but it is better then it was before. I don't...
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