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Latest Celiac Disease News & Research:
Everything posted by Emily Elizabeth
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ARCHIVED Scope In Two Weeks
Emily Elizabeth replied to arlingtonmom's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
In the book "Celiac Disease: A hidden Epidemic" they say that you should be consuming the equivalent of 4 slices of bread a day for 2 months. I hope this helps! Good luck with your diagnosis. Emily -
ARCHIVED Fyi: Bob's Red Mill
Emily Elizabeth replied to JennyC's topic in Gluten-Free Foods, Products, Shopping & Medications
Whoops! I just posted an email I got from Bob's Red Mill without looking at this post! Great minds think alike. Anyway, I'd love to know if anyone finds a vendor that sells decently priced gluten free corn meal. Emily -
ARCHIVED Bob's Red Mill Response About Corn Meal & Polenta
Emily Elizabeth posted a topic in Gluten-Free Foods, Products, Shopping & Medications
I thought this information might be helpful to someone. -----Original Message----- From: Janelle Smith [mailto:janelle@bobsredmill.com] Sent: Thursday, July 19, 2007 3:42 PM Subject: Bob's Red Mill Hello Emily, Thank you for your email. We do not have Gluten Free Corn Meal or Corn Grits Polenta at this time. Although both of these products... -
ARCHIVED How Long Was It Until You Noticed A Difference On A Gluten-free Diet?
Emily Elizabeth replied to Luke987's topic in Coping with Celiac Disease
I kept getting glutened when I first went gluten free (diagnosed 5/15/07). Who knew that lipstick could have wheat bran in it? Also, I went out to eat once a week so that didn't help. I also found out that my supposedly gluten free cereal was contaminated with gluten. Anyway, I finally started feeling almost normal 7 weeks after diagnosis. Then I got... -
ARCHIVED Symptom Check
Emily Elizabeth replied to bloatedntexas's topic in Coping with Celiac Disease
1. Distended Stomach/Bloating (first sign) 2. D 3. Agitated 4. Blurry stinging eyes and sensitivity to light 5. Mouth Sores 6. Foot Cramping 7. Gas 8. Fatigue/Foggy Head 9. Nasal Drip (forgot to add until someone mentioned it later) Good post! I'm interested in other's symptoms as well. -
ARCHIVED I Just Made "oreo" Cookies!
Emily Elizabeth replied to ptkds's topic in Gluten-Free Recipes & Cooking Tips
Bless you for posting! -
ARCHIVED Anyone Been On A Holland America Cruise?
Emily Elizabeth posted a topic in Traveling with Celiac Disease
My husband and I are thinking about taking a cruise on Holland America Lines (ship - MS Westerdam). I had never heard of them before but it looks like they are rated highly and the price is great! I have been on Celebrity and Royal Caribbean and have really enjoyed myself (before gluten free). Now I'm worried about the whole food issue. I noticed some postings... -
Thanks everyone for responding. It's helpful to hear others experiences in order to figure out your own. It sounds like a mild glutening can cause the stinging eyes. The really frustrating part is that I have no idea what could have glutened me. I even remade my homemade cereal since I was worried that the cornmeal (Bob's Red Mill) could be contaminated....
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It's good to know that it's not just me! Thanks for reponding. Do you get different symptoms when you are glutened or is it always your vision? I don't have D (which is usually the case) but my vision is horrible. I'm wondering if it's just random as to how I react depending on the day or if it has to do with what I eat?
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Has anyone else had blurry stinging vision and sensitivity to light? Is it a reaction to gluten? I am new to all of this (diagnosed 5/15/07) and have just recently started feeling better, so I am still learning but I thought that D and stomach distention were my main symptoms if I am glutened. The past few days I have had this vision problem and I was hoping...
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ARCHIVED Skepticism From Family
Emily Elizabeth replied to Janniec6's topic in Parents, Friends and Loved Ones of Celiacs
I was just diagnosed at 26, so I think it can come on at anytime. I would ask the doctor for a biopsy though since that is the gold standard for diagnosis. This is a lifelong commitment and you don't want to make your son change his diet for life if it is not necessary. The book I read that was very helpful was "Celiac Disease: A Hidden Epidemic" here is... -
ARCHIVED Newbie Question - How Soon Is Too Soon To Feel Relief?
Emily Elizabeth replied to Lizking531's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
I would definitely recommend that you continue to eat gluten and get tested for celiac disease as soon as possible. If you stop eating gluten you could produce a falsly negative result when they test you. I felt instantly better the first week I was gluten free, then worse for a few months, then much better again. Good luck! -
ARCHIVED Xanthan Gum.
Emily Elizabeth replied to MLynn's topic in Gluten-Free Recipes & Cooking Tips
Moe, I found it at a local health foods store in VA. It's probably available at places like whole foods as well. It acts as a binding ingredient to help the dough keep from getting crumbly. I recommend getting a few cook books. They will give you flour blends for baking and more info on where to find things. I really like the book "Cooking Free" here... -
ARCHIVED Finally Feeling Better!
Emily Elizabeth replied to Emily Elizabeth's topic in Coping with Celiac Disease
Thanks for letting me know about the Bakery On Main cereals. It's good to know I have some other options that I can trust! -
ARCHIVED Finally Feeling Better!
Emily Elizabeth replied to Emily Elizabeth's topic in Coping with Celiac Disease
You're welcome! It's made all the difference to me. I added mashed banana the other day and flaked coconut and it was great! -
ARCHIVED Very Confused...
Emily Elizabeth replied to ellie-kate's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Ellie Kate, The book I read was "Celiac Disease: A Hidden Epidemic" by Peter H.R. Green & Rory Jones. I enjoyed it. It made me feel like I could at least understand the disease a little better. Here is my recipe: Emily's Heart Healthy Granola Cereal 1 Cup - Any mixture of the following to make 1 cup - Rice Flakes, Quinoa Flakes, Flax Meal, Polenta... -
I got a similar email when I emailed them. I will be SOOOOO excited when I can order pizza again! I hope their Chef is getting close to finishing his recipe!
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I use polenta to make homemade cereal. It's really easy. It is very forgiving and seems to work no matter what I substitute (I never actually measure anything). Here's the recipe: Emily's Heart Healthy Granola Cereal 1 Cup - Any mixture of the following to make 1 cup - Rice Flakes, Quinoa Flakes, Flax Meal, Polenta (Corn Grits), Ground Rice (You can...
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I used to make homemade granola before going gluten-free. Here is my new recipe. It is very forgiving and seems to work no matter what I substitute (I never actually measure anything either). Emily's Heart Healthy Granola Cereal 1 Cup - Any mixture of the following to make 1 cup - Rice Flakes, Quinoa Flakes, Flax Meal, Polenta (Corn Grits), Ground...
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ARCHIVED Rising Bread And Bread Products
Emily Elizabeth replied to a topic in Gluten-Free Recipes & Cooking Tips
I put mine in the oven too. I start heating it to 300 degrees or so while I'm mixing the ingredients. Then I turn off the oven and put it in with a cheese cloth over it. I've also put plastic wrap with a little bit of oil sprayed on it over the bread too. Both have worked well. I also always put a pan of hot water below the bread (on a rack below) to create... -
ARCHIVED Very Confused...
Emily Elizabeth replied to ellie-kate's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Thanks! I didn't see your post before. I'm glad I'm not crazy. I thought it was a legitimate book. Thanks again. -
ARCHIVED Trix
Emily Elizabeth replied to jmd3's topic in Gluten-Free Foods, Products, Shopping & Medications
I started making my own cereal since I don't trust the current brands on the market. I was eating Mesa Sunrise and Puffins but as soon as I stopped, I started feeling better again. So I think they were contaminated with gluten even though they advertise that they are gluten free. I would be REALLY excited though if Trix were safe. That would be a great snack... -
ARCHIVED Are Nestle Chocolate Chips Gluten Free?
Emily Elizabeth replied to Tephie's topic in Gluten-Free Foods, Products, Shopping & Medications
My work was looking into buying nestle chocolate so I tried doing research on any allergens. I tried calling them and never got a response back. I'd love to know too! -
ARCHIVED Very Confused...
Emily Elizabeth replied to ellie-kate's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
The book I read was "Celiac Disease: A Hidden Epidemic" by Peter H.R. Green & Rory Jones. It has a copyright of 2006. I definitely don't want to post incorrect information. I thought this book was pretty legit though. Please let me know if it's outdated and if there is another one that is recommended. I would love to learn the truth about all of this... -
ARCHIVED Corn Dog Coating Mix
Emily Elizabeth replied to jmd3's topic in Gluten-Free Foods, Products, Shopping & Medications
Thanks for the recipe! I've been craving these as well. I'm excited to try it out!