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Nadtorious

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by Nadtorious

  1. Nadtorious
    My period disappeared for almost 4 years while I was really sick, and came back as soon as I went gluten free (within a week!). My doctor actually used this to diagnose me first (before blood tests, endoscopy, and diet challenge). Now that I've been gluten free for close to 2 years, my period has finally kind of normalized-I can somewhat predict it and my...
  2. Nadtorious
    I exercise quite a bit-started right around the time I was diagnosed-and the best thing I've found is white rice and a little olive oil an hour or two before activity, plus some kind of fruit or juice before and/or during. Just being diagnosed, you're probably still very anemic-have you gotten blood tests done at all? Anemia will sap your energy pretty quick...
  3. Nadtorious
    The first couple of weeks were great-minus the whole "oh my gosh, I have a disease" aspect. Then I started having accidents a lot. It was really frustrating the first 6 months to year. I was anemic, so I would get tired all the time-any strenuous activity for more than 15 minutes and I'd need a snack (and then another 15 minutes later). I didn't get my period...
  4. Nadtorious
    I started getting DH sores on my hands and face when I was 16. Then, my senior year of high school, I started to get really bad tummyaches and was vomitting blood and losing a lot of weight. I stopped getting my period and lost about 40 pounds. Finally, 3 years and 6 doctors later, one finally took one look at my chart (after I had passed out at work from...
  5. Nadtorious
    I think I know exactly which bars you're talking about-did they say "gluten free" right on the package? I bought one two years ago, right after I was diagnosed, just going off the front of the package. After taking two bites, I decided to read the ingredients, and to my horror found barley malt! I e-mailed the company and they basically gave me the same response...
  6. Nadtorious
    Unfortunately, I just reacted to one particular spice company's product over the weekend (I'd been questioning them for a while). My boyfriend got me a food dehydrator for my birthday last week, so I think I would like to start drying my own. I really love to cook, but I hate the fact that every time I do I feel like I get sick. We have no cross contamination...
  7. Nadtorious
    Tiffany- I've simplified my diet to the point where I know exactly what foods are giving me what kinds of reactions. I know that I am lactose intolerant-Dairy does a different kind of number on me than gluten does. I also know that I am intolerant to soy-feels very similar to lactose intolerance. My reactions to gluten cause bloating, fatigue, joint pain...
  8. Nadtorious
    Yes, Bob's Red Mill is very clear about their gluten-free products-I tried all their gluten-free flours, plus a couple rice cereals, and reacted to all. I know I am VERY sensitive-I have reacted to every "gluten free" bread product on the market I have tried thusfar. I have read a few articles stating that it is "nearly impossible" to make a product 100%...
  9. Nadtorious
    I'm sorry Tiffany-I wasn't trying to argue what you were saying either. I remember the 6 months before my diagnosis, in my sickest state, and probably up to 6 months after where I felt just "cut off" for a while. I think I understand what her father is going through. It seemed like the diet wasn't really working, other than my stomach problems kind of recesssing...
  10. Nadtorious
    CDobbs- I would have to disagree with whoever told you that mental problems are not part of celiac disease. I can remember the last year I was in college before being diagnosed and thinking I had ADD because I couldn't concentrate. Even after I was on the diet for 8 months, I had a hard time focusing in school, or life in general. I know when I have a...
  11. Nadtorious
    I have to disagree too. Your mom's cholesterol probably rose because, once diagnosed with celiac disease, she was absorbing nutrients in foods she was not getting before, and the side effects of the beta blockers (lowering "good" cholesterol, raising bad) were finally able to become apparent. Just because she had health problems AFTER she was diagnosed and...
  12. Nadtorious
    O.K. I just rechecked and it's actually 500 parts per million allowed. So yes, that means that, according to the government, something can contain up to 500 ppm in order to be called gluten free. This is the reason I gave up on "gluten free" products. Here's the link: https://www.celiac.com/st_prod.html?p_prodid=208 Good luck. Some celiacs...
  13. Nadtorious
    Codex standards is 200 ppm-meaning that for every million parts of, say, rice flour, 200 of those can be wheat flour particles and it will stil be considered gluten free. Scary. Bob's Red Mill is one of the few companies that actually says what their products tested for under Elisa testing-all under 15 ppm. I personally have reacted to Bob's sruff, so...
  14. Nadtorious
    I started showing sympotoms in high school and went to a couple doctors who just put me on antacids and told me to decrease my stress levels. After I dropped 30 pounds, my mother insisted I was anorexic and put me in a eating disorder program---which I was discharged from when the pyschiatrists couldn't figure out why I couldn't gain weight eating 5,000 calories...
  15. Nadtorious
    I worked at a health food store for a while and we received numerous customer complaints regarding Arrowhead Mills. I haven't looked in a while because I don't use their products, but I recall that they can only say their products are "made with non-gluten ingredients", NOT gluten free. Funny, because they make a couple "gluten free" baking mixes, but they...
  16. Nadtorious
    I think the reason why it may be called the original Celiac diet is because how closely it resembles the diet the Celiac Sprue Association recomends and the diet most of our doctors put us on when we were first diagnosed. The diet focuses more or less on food that are really easy to digest at first-meat and fruit, then adds more as your gut heals and you...
  17. Nadtorious
    You guys got me curious, so I did a little homework. They are from two completely different species-Cannabis Sativa (marijuana) is an herb, whereas Triticum Aesitivum (common bread wheat) or any other Triticum species, are classified as glutenous grains. Marijuana is more closely related to oregano than it is to wheat. There are edible parts of the marijuana...
  18. Nadtorious
    Whoa.....Never saw the part about it being 7% of your income or more. That's kind of ridiculous. I make nowhere near $50,000 a year, but if anyone wants about $1000 worth of gluten-free receipts I've saved since January, let me know. What a load of crap. Nadia
  19. Nadtorious
    It's a pain because you have to wait, but if you have a written diagnosis from your doc, you can write off things like xanthan and guar gum when you're filing your taxes and get 100% of the money back (plus shipping and handling if applicable). Since it's considered a medical expense, and since things like xanthan gum are not used in "regular" baking, we...
  20. Nadtorious
    Kathleen- My modified version does include rice (lundberg brown or jasmine) and a few potatoes every now and then. I drink lactose free milk too, but past that, I stay far away from anything processed. I finally linked it all together this summer-I race mountain bikes, and would cook meals from scratch during the weeks when I was at home and would feel great...
  21. Nadtorious
    Lillie- I was diagnosed two months before leaving for school a couple years ago. 5 hours away from my parents, in the dorms, with this freaky new disease-can't go out fo pizza with my roommate, can't drink beer at parties.........You know what I mean. I met a really great guy at the same time whose favorite food happened to be pizza, and on our first...
  22. Nadtorious
    The last year before I was diagnosed, I had excrutiating bone and joint pain all the time. This lasted until about 10 months into my gluten-free diet. In fact, one of the first signs that I had accidently eaten something wrong is that my joints would swell terribly. I haven't had a problem with it in about a year (thank goodness!). I've also heard that people...
  23. Nadtorious
    I've always reacted to the broth that they put in chicken, pork, etc. I found a store in Denver that sells meat without the broth or any additives and haven't had a problem with it. Nadia
  24. Nadtorious
    I'm lactose intolerant too, but I like to drink Organic Valley lactose free milk. Also, most cheeses do not contain any lactose (I know Kraft and Borden say so right on the package). Good luck-I hope both of us will be drinking "normal" milk one of these days! Nadia
  25. Nadtorious
    Starbucks and Green Mountain are the two I drink.
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