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burdee

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Everything posted by burdee

  1. burdee
    I learned I had celiac only 10 weeks ago and then more recently that I react to caseine as well as lactose in dairy. When I first started the gluten free approach I feared cravings would distract me from avoiding gluten and make me get careless or even give up at times. So I immediately looked for gluten free substitutes for all my favorite starches. I...
  2. burdee
    From what I have read about IBS (and I've read a LOT since I was misdiagnosed with 'IBS' 10 years ago), irritable bowel syndrome is not a DISEASE with a known etiology or treatment. Doctors use that term to describe SYMPTOMS of pain, bloating, gas, constipation, diarrhea, etc. They refer to IBS as a 'functional bowel disorder' meaning that the bowel is...
  3. burdee
    Christine: Constipation was one of my main celiac symptoms (besides pain, bloating and gas), so I've dealt with that one over the years. Are you taking calcium or iron supplements (which also influenced my constipation)? I started taking magnesium supplements for regularity several years ago. That mineral helps with muscle contractions. In Europe doctors...
  4. burdee
    If you're not caseine sensitive, you might try using 'lactaid' supplements when you consume dairy and/or lactaid milk instead of regular milk. I learned I was lactose intolerant about 10 years ago and have used "lactaid" sucessfully every since. I sure wish someone would have suggested gluten intolerance back then. 'Sorry I couldn't answer your original...
  5. burdee
    This is my UNOFFICIAL take on depression and celiac disease. BTW I do have training and experience with counselling depressed, suicidal, or anxious clients as well as experience with SSRIs and other psychotropic drugs. Since the 90s were the decade of 'brain chemistry' and SSRIs, 'depression' became such a common buzzword that was overused almost...
  6. burdee
    Hey Deb: Don't settle for the "IBS" label. That's a doctor copout. Someone on this board renamed that label "IDK" or "I don't know" which is what doctors SHOULD say rather than using a disease sounding acronym to hide their ignorance. I prefer to translate IBS as "I'm being squeezed", because that's exactly how my intestines feel when I'm suffering celiac...
  7. burdee
    Thomas: I ALSO discovered that my body often craves the exact nutrient I'm missing in certain foods. I often drink peppermint tea to soothe celiac intestinal cramping pain, after I read that it helps relax abdominal muscles. I'm not sure how true that is, but it works for me, when the pain isn't too intense. Whenever, I feel a cold coming on, I am usually...
  8. burdee
    This may be hearsay, but my local celiac support group has discussed this topic (positive blood test, negative biopsy) a LOT. I also discussed rationale for doing blood tests and biopsies with my naturopath when I first suspected I had celiac. Here's what I understand about the blood test/biopsy disagreement phenomena: The blood test indicates gliadin...
  9. burdee
    Hey celiac3270: You may be 'only 13' but you are WISE beyond your years. The encouraging posts you write to people on this message board who are struggling with 'symptoms' and frustrations of sticking to the gluten-free diet make me wonder if you should consider becoming a counsellor/therapist. You're a natural! Maybe all your experience with celiac...
  10. burdee
    I was a 'symptoms'. Even after I learned my 'symptoms' were celiac related and began to avoid gluten, I had many gluten 'slips' which kept the symptoms recurring. I LOVE following the gluten free diet so I can finally heal and resolve those pesky 'symptoms'. However, I've learned the hard way about cross-contamination in 'deli's, in restaurants, and in...
  11. burdee
    Alexolua: 'Sorry Lactaid didn't work for you, but that further showed that your problem was with the caseine, not the lactose. FYI there are tastier forms of "lactaid' supplements (the chewable wafers) and terrible forms (tiny pills which just got stuck in my teeth but didn't all get to my stomach). Maybe because Lactaid does work for me (prevent those...
  12. burdee
    HMMMM ... I thought this was CRS (Can't Remember Stuff) which happens to other people my age, but then I'm not that old! If all of you, who are much younger than I am and have been gluten-free for a while, STILL have that brain fog, maybe this is just a sign of our times: too much information to process, too little time to do everything, and not enough...
  13. burdee
    Many people who have had longterm celiac intestinal damage (flattened villi) can no longer digest lactose protein from dairy. I actually discovered I had lactose intolerance (my symptoms: bloating, gas, cramping and occasional diarrhea), before I learned I was celiac. I thought it was family heritage/genetics (American Indian on my dad's side who are usually...
  14. burdee
    I like Food for Life breads, too, esp. the Rice Pecan variety. That brand actually withstands freezing and thawing better than the Ener-G Foods breads (which get drier after freezing/thawing, but 'freshen up' after a few seconds in the microwave). However EGF breads come in their vacuum pack sealed wrap which make their breads storeable for up to a year...
  15. burdee
    I second celiac3270's suggestion about Ener-G Foods breads. They have the best gluten-free assortment of breads to appeal to all gluten free tastes. Celiacs who have 'Wonderbread' preferences love the Energ-G Foods light Rice and other 'just like white' breads. There's even a low carb version (but lowcarb bread seems like an oxymoron to me ). I prefer...
  16. burdee
    I agree that antianxiety meds may help SOME people, but I really second Kristina's suggestion to see a therapist. I just dislike doctors who prescribe antianxiety or antidepressant meds without requiring their patients see therapists to talk about the beliefs/thought processes which influence the scared or sad feelings. Dispensing meds without requiring...
  17. burdee
    Hey Carol: Your (and others') post(s) about Enterolab on this topic convinced me to try thier diagnostic tests. I'd given up on my own doctor (who was the best one I've found by far in my HMO) who diagnosed me with IBS and gave me the IBS diet sheet recommending more 'whole grains' (gluten) to cope with my symptoms of recurring constipation, excruciating...
  18. burdee
    OOOPPPSS!! I should have posted this info last week, but I received a reply to my question about 'turnaround' time for Enterolab results from my 'test specimums'. I was told: "Our turn around time is three weeks max. Once we received your specimen it takes about three weeks to get results back. (three weeks including the week we received it.) " by Fidel...
  19. burdee
    Hey Fraggle: I don't believe your 'anxiety' is a disease which needs a 'drug' treatment, but rather a logical reaction to the circumstances and your beliefs. Unfortunately, drug companies tell us that we need 'antianxiety' meds to deal with normal emotions, so they can market their drugs. I suspect your 'anxiety' comes from fear that other people with...
  20. burdee
    I'll add my input to answer your questions: WHAT MADE LIFE EASIER AS CELIAC: SUPPORT from others including a next-door neighbor whose husband is celiac, a local celiac support group (esp. the leader), THIS MESSAGE BOARD and my husband (after I finally told him what I needed). HARDEST THING TO GIVE UP: Freedom to walk into any restaurant and order...
  21. burdee
    WHOOAA!!! Your symptoms sound SOOO much like mine. I can relate to the 'runaround' with doctors while YOU still suffer those painful symptoms. I was misdiagnosed 7 years ago with 'IBS' when I was finally brave enough to describe my symptoms to a doctor. Following the 'IBS' diet (consuming more 'whole grains', i.e. whole WHEAT) just exacerbated my pain...
  22. burdee
    Hey Lundszai: Think gluten-free substitution, not deprivation. There are MANY safe gluten free choices from which you can prepare meals and snacks. Please refer to the topic "Bored with Gluten Free Foods" under the Section "Gluten Free Foods, Products, Shopping and Meds". I (Burdee) and Tarnalberry posted long lists of safe gluten-free foods and combinations...
  23. burdee
    Maybe you've already considered this, but I thought I'd throw this out: Have you eliminated lactose as well? I discovered I was lactose intolerant LONG before I discovered gluten intolerance (which often causes lactose intolerance by damaging the villi which digest lactose). I use lactaid supplements to consume dairy. However, I may also be sensitve...
  24. burdee
    Hi Dessa: I'd recommend you get a second opinion. The 1998 PDR lists as side effects for Lipitor: "abdominal pain, back pain, headache, joint pain, leg cramps" (which sounds like your 'pain all over (your) body') as well as "muscle aching or weakness" which you also mentioned. It's easy for doctors to blame something in your diet, because they know SOOO...
  25. burdee
    Thanks for the info, Kathleen. After I posted that question, during a trip to my local grocery, I noticed in the Thai foods section some rice noodle brands which were clearly marked 'gluten-free' and listed just rice as ingredients. Coincidentally, those were brands which I recalled were listed in my CSA product listing guide book (but I don't have all...
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