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burdee

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Everything posted by burdee

  1. burdee
    OKay, back to the original 'rectal' discharge question ... I vote for mucous. I've had steatorrhea (mucous covered 'floating' stools) off and on before I was diagnosed with celiac and began the gluten-free diet. I also passed some mucous when I passed gas occasionally. However both those symptoms disappeared after I abstained from BOTH gluten and casein...
  2. burdee
    Hey Vic: YUP, I'm convinced it's gluten and casein, because my Enterolab test results showed gluten/casein antibodies and I have NO MORE PAIN when I completely avoid those AND soy ingredients. Lemmesee ... about 50 years of considering other reasons besides celiac disease for all my symptoms. Symptoms, besides excruciating pain that felt like bits...
  3. burdee
    Leslie: Are those gluten-free bakery items under the Whole Foods label? They post on their website a list of all the brand names of gluten-free products they carry, and each individual store can give you a list of gluten-free products in that particular store. But do you mean that Whole Foods is producing their own line of gluten-free breads and pastries...
  4. burdee
    Hey Kristina: Now you have to share ALL your gluten-free homebaked cookies with your brother. Maybe the gluten-free diet will help his ADHD symptoms. That's very logical that your brother would have celiac disease, since it's a hereditary disease. Do either of your parents have symptoms? Wouldn't it be ironic, if your dad who won't touch your gluten...
  5. burdee
    Hi Lilleroy: My undiagnosed celiac symptoms since early childhood included constipation, steatorrhea, and bloating. I was only diagnosed with celiac disease recently, after 50 years of symptoms . However, longterm constipation influenced my developing hemorrhoids which hurt and bled when I passed hard, painful stools. If you had hemorrhoids before,...
  6. burdee

    ARCHIVED Soy Reaction?

    burdee replied to terri's topic in Related Issues & Disorders

    Hey Terri: I found I was also intolerant to soy after I tried to substitute soy products for all the dairy products I can't have with my casein intolerance. (My Enterolab test showed antibodies to casein as well as gluten.) My 'soy symptoms' are more immediate, but less severe than my casein symptoms and both are less severe than gluten symptoms. With soy...
  7. burdee
    Hi VegasVic: YUP. I get lower right sided pains everytime I have gluten, dairy or soy accidental ingestion, but MOSTLY with gluten. The other 2 produce more cramping pain like menstrual cramps (but all that should have ended 7 years ago ). Fortunately after drinking lotsa peppermint tea or hot water or doing exercises or walking, the right sided pain...
  8. burdee

    ARCHIVED Fair Diagnosis? How?

    burdee replied to roseillus's topic in Doctors

    Rosei: Many celiacs also have difficulty digesting lactose (milk sugar) and a few of us have difficulty with casein (milk protein) intolerances. You can determine whether you have problems with lactose, casein or all dairy by first using lactaid supplements (chewable tablets) everytime you consume gluten free dairy products. If that prevents your symptoms...
  9. burdee

    ARCHIVED Fair Diagnosis? How?

    burdee replied to roseillus's topic in Doctors

    Rose: Many celiacs also have difficulty digesting lactose (milk sugar) and a few of us have difficulty with casein (milk protein) intolerances. You can determine whether you have problems with lactose, casein or all dairy by first using lactaid supplements (chewable tablets) everytime you consume gluten free dairy products. If that prevents your symptoms...
  10. burdee
    Good Luck, Tiffany. Eliminating whatever bothered me by loosely following the chart of possible allergens, after my gluten/casein intolerance diagnosis and horrible experience with trying to substitute soy for dairy, has certainly helped me experience more and more painfree (symptom free) days. Whatever our 'diagnoses', we still have to individually assess...
  11. burdee
    Littlewolf: When I have cramping pains, bloating and gas, drinking lots of strong peppermint tea, doing yoga or pilates positions to 'push the gas through', walking or just drinking lots of warm water helps resolve my painful symptoms. To cope psychologically, doing gluten/casein/soy 'sleuthing' to determine the food culprit for my symptoms really helps...
  12. burdee
    Gillian: Probiotics are the 'good guy' bacteria we have in our intestines to digest foods and counterbalance all the 'bad' bacteria from food born sources, etc. We would naturally maintain enough of those except some of us have taken too many courses of antibiotics which kill off ALL bacteria (even the good ones), others have experienced Candida, a yeast...
  13. burdee
    Even after avoiding gluten for several months I still had my old familar 'instant reflux' (food came up easily after every meal unless I stayed perfectly vertical for 3-4 hours and did not overeat a bite) and acid reflux after consuming citrus, tomatoes, coffee and alcohol. HOWEVER when I learned I also was casein (milk protein) intolerant and cut out all...
  14. burdee
    Leticia: If avoiding gluten has resolved the diarrhea/constipation, but you still have bloating and gas, I would recommend: FIRST, you do more careful investigation of EVERYTHING that goes into your mouth to prevent accidental gluten contamination. Have you checked all the ingredients of every processed food? Do you avoid licking envelopes or stamps? ...
  15. burdee
    Gretchen: I just read your post describing your doctor visit. GOOD FOR YOU for not letting that doctor label you with IBS and try to treat those 'IBS' symptoms with another drug with possibly terrible side effects!!!! I'm impressed that you got him to admit the 'IBS' diagnosis was really just a catch all category for all the 'I don't know's. Someone on...
  16. burdee
    Gillian: Lactaid helps with lactose (milk sugar) intolerance, but will not protect against CASEIN (milk protein) or whey intolerance problems. Avoiding all dairy and/or substituting soy, rice or almond milks for dairy may prevent those symptoms. BURDEE
  17. burdee
    Protein Fusion has some GREAT tasting fudge flavored gluten free frozen bars which tasted exactly like fudgesicles to me. Their rep introduced those at our local celiac fair and I resisted all the other goodies (OK, I stuffed all the free samples in baggies to take home) except those. Well, you can't take home melting fudgesicles, can you?? HOWEVER, those...
  18. burdee
    Tarnalberry: MMMMMM! YUM! I like (and EAT) everything you mentioned except for coconut flakes and milk. Do you have a recipe or proportions of the nut, seed, flax meal, honey mixture? That sounds really good. Since I can't have gluten, dairy or soy, that eliminates every chocolate I have found, and don't like hard candy. (I know Ener-G Foods...
  19. burdee
    Alexolua: Since you did Enterolab tests, call or email Dr. Fine at Enterolab. I have talked to him on the phone and exchanged several emails wth him. He WILL call or write you back. He's very personable and caring and can answer your questions. He knows what you face with doctors' not accepting E-lab results. His caring attitude reassured me after I...
  20. burdee
    I've read in Ron Hoggan's "Dangerous Grains" book that gluten intolerance (autoimmune reactions or antibodies to gluten digests) can affect every inch of the digestive system and even affect the whole body when those gluten digests leak from the intestines into the blood stream. That's why there are soooo many different symptoms associated with celiac disease...
  21. burdee
    Yes, Lactaid milk is gluten free and lactose (milk sugar) reduced or free. However, if you have problems with CASEIN (milk protein) as well as lactose, you may have to avoid all dairy. Substitute soy, rice or almond milks to see if you still have problems. BURDEE
  22. burdee
    Hi JVS: Yes, drinking lotsa water, esp. warm water, helps when I have those pains. Also peppermint tea helps soothe more cramping pains. Yoga and pilates positions as well as just walking helps move the gas/bloating through, but those liquids soothe sore intestines. I haven't had the excruciating pain that feels like bits of broken glass moving through...
  23. burdee
    I would suggest the same kinds of things you can carry on airplanes: processed, canned or dried gluten-free foods. Consider: canned chicken or fish (I like sardines because they have a peel back lid); rice cakes; dried fruit; peanut butter (no stir kind needs no refrigeration after opening) and jam; I don't do fruit juices, but that's also a...
  24. burdee
    Hi celiac3270: It almost sounds like your doctor subscribes to the Specific Carbohydrate Diet approach with his ideas about sugar and starch causing problems. Have you read the book by Elaine Gottschalk on which that diet is based? 'Sorry I can't recall the name right now, but I'm sure someone on this board has read that book or is following the SCD diet...
  25. burdee
    Hi "Medaka": I suspect people who are still struggling with symptoms even after many months on the gluten-free diet either have other sensitivities so they need to avoid other foods or they aren't avoiding ALL sources of gluten. During my first coupla' months I kept finding more and more sources of gluten from cross-contamination, mystery ingredients and...
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