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burdee

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Everything posted by burdee

  1. burdee
    My test results from Enterolab showed I had antibodies to CASEIN (cow's milk) as well as gluten. So I react not only to cheese but ANY dairy products. When I tried to substitute soy milk products for dairy, I experienced symptoms similar to my dairy symptoms. So I KNOW my body creates antibodies to gluten AND casein. I suspect I also may react to SOY...
  2. burdee
    I'll answer your abdominal discomfort question. I can understand how you would expect a BM to relieve discomfort, because I experience cramping, bloating, gas after gluten/dairy/soy slips just like I experience before diarrhea (but I rarely have diarrhea). However, I have also noticed that evacuating my bowel does NOT relieve that cramping. I suspect that...
  3. burdee
    Julie: Road's End Organics makes gluten free, dairy free, soy free "CHREESE" in cheddar and alfredo style flavored dry mixes, gluten-free mac and cheese or alfredo sauce and gluten-free noodle pasta packaged meals, gluten-free nacho style Chreese and several styles of gluten-free/DF gravies. The gravy mixes are NOT soy free, because they contain tamari...
  4. burdee
    OK, I'll add my 2 cents' worth: When you 'cheat', whom are you cheating? Only yourself. When you learn that touching a hot burner on a stove will cause pain and damage your body, do you intentionally put your hand on the hot burner? Would you 'cheat' the 'rule against touching the hot burner' if you did? Perhaps the 'cheating' notion comes from...
  5. burdee
    Rachel: Ener-G Foods makes a gluten-free cream of mushroom soup. I think you're close enough to drive to Ener-G in South Seattle off the Corson/Michigan exit. OR you can order that online. BURDEE
  6. burdee
    Maxwell: Anxiety (STRESS) = Degree of Unknown X Degree of Importance. It's very important that you eliminate all sources of gluten from your diet. But you can greatly reduce the degree of unknowns by learning which foods naturally contain gluten (wheat, barley, rye and oats by contamination) and which ingredients contain gluten by referring to the safe...
  7. burdee
    I also had constipation (all my life) and amenorrhea (for 10 years), so my doctors never suspected celiac. I had many other celiac symptoms, including the infamous "IBS" stuff, but the constipation made me not consider celiac. Only after my abdominal pain became daily and excruciating, did I read a celiac article which listed constipation as one of the...
  8. burdee
    Rachel: No, you're not the only one from Washington State. I live in Seattle, Washington, by Greenlake. We have lots of local celiac support groups in this area. Maybe few Seattle celiacs post on this site, because we have great local support. However, I need all the help I can get. BURDEE
  9. burdee
    I also lose my appetite when I'm bloated or in pain from gluten/casein/soy 'slips'. But when I recover, stick to my gluten-free/CF/SF foods, I feel better and more interested in eating. I think that when my body is suffering a food intolerance reaction, it's not too interested in handling MORE food, so loss of appetite allows it to focus on healing. However...
  10. burdee
    Lillie: Ener-G has a wide variety of different breads. Unfortunately local stores only carry a few versions. I'm lucky enough to live within driving distance (about 20 minutes) from their bakery/factory, so I have discovered some of their breads that I LOVE. If you're looking for 'Wonder Bread' consistency, they even have a few really light breads like...
  11. burdee
    Julie: See www.gfcfdiet.com for help with avoiding gluten AND casein. That site lists acceptable and unsafe foods for gluten/casein free diets. Since I must avoid soy and some artificial sweetners (sorbitol/mannitol/xylitol) as well as gluten/casein, I have learned to just read labels, call and/or email food manufacturers to explain mystery terms on their...
  12. burdee
    I must avoid soy and dairy as well as gluten, so for breakfast I have: Peanut butter (Adams No Stir or Whole Foods Whole Kids) and fruit spread on gluten-free bread or English muffins or occasionally rice cakes with fruit; Chopped hardboiled eggs mixed with mashed avocado and gluten-free/SF mayo in a white corn tortilla wrap with fruit; Turkey ham...
  13. burdee
    For those of you who have eliminated gluten, dairy, soy and other obvious allergies/intolerances, I would recommend you consider SORBITOL or related artificial sweeteners mannitol and xylitol. I have always reacted to sorbitol with cramps, bloating, gas, etc., but I didn't realize mannitol and xylitol also bothered me until recently. I discovered mannitol...
  14. burdee
    Hey Kate: I had a similar experience. Lactaid pills seemed to help me for years. But when I had excruciating undiagnosed celiac pain, avoiding gluten reduced most of that pain. When I did Enterolab tests for gluten and milk sensitivity, I learned the source of the rest of my symptoms: CASEIN (the milk protein) antibodies/intolerance. So lactaid pills...
  15. burdee
    Kate and Gillian: This message board is a great place to receive answers to your questions, but a local support group meeting can also give you emotional support and connect you with friends to call when you're confused, stressed or really uncomfortable with celiac reaction symptoms. I like having both options. BURDEE
  16. burdee
    Hey Terri: I just last night persuaded my husband he would like my gluten-free cranberry bread better than his traditional Pillsbury Crescent Rolls. Do you have a good recipe for gluten-free/DF/SF cranberry bread??? BURDEE
  17. burdee
    The Snohomish Country Celiac Support Group will meet on October 12 (regular 2nd Tuesday Monthly meeting) at 6:30pm in: Kaili's Kitchen (a totally gluten free restaurant) 9713 Firdale Ave. Edmonds, WA 206-542-1462 Come early to...
  18. burdee
    The Snohomish Country Celiac Support Group will meet on October 12 (regular 2nd Tuesday Monthly meeting) at 6:30pm in: Kaili's Kitchen (a totally gluten free restaurant) 9713 Firdale Ave. Edmonds, WA 206-542-1462 Come early to...
  19. burdee
    This year I will celebrate my first gluten-free Thanksgiving and will have been gluten-free 7 months by then. I plan to make our whole household (just me and my hubby) gluten-free very soon. With me, a diagnosed gluten/casein/soy intolerant celiac, and him with lifelong ADHD symptoms, eliminating ALL gluten from our house seems like a great idea. I look...
  20. burdee
    The latest edition of the GlutenFreeLiving Magazine had a great article about "So Many Ingredients, So Much Misunderstanding" which discussed the 'distilled vinegar' debate. Their 'take' was: "Vinegar should have never been raised as a danger in the first place. Had the person or group that first said vinegar might contain gluten simply looked in...
  21. burdee
    Tiffany: Actually, I only have been diagnosed with gluten and dairy antibodies/intolerances, but I reacted VERY badly to soy. I suspect my current sensitivity to acidic stuff (citrus, tomatoes, mustard, acidic berries, etc.) is just a healing thing. I don't have ANY problems with eggs, peanuts, tree nuts, corn, fish ... lemmesee, did I omit any of the other...
  22. burdee
    I don't have anything to share about pancreatic cancer, but I wanted to reassure any of you who don't fit the 'classic' (outdated) celiac profile (diarrhea, weight loss, fatigue), that only 10% of celiacs fit that profile. I disregarded my celiac disease symptoms for years because I did not have diarrhea (more constipation than anything). I AM thin, but...
  23. burdee
    I did Enterolab stool tests 2 months after going gluten-free and STILL showed both gluten and casein antibodies/intolerances. When I tried to subsitute soy for dairy, my BODY told me (with symptoms similar to my 'dairy' symptoms) that I also don't tolerate soy products. I also limit acidic stuff (tomatoes, citrus, acidic condiments) now, because I just...
  24. burdee
    Hi Scudderkidwell (Wife of a celiac disease): I also have problems with spices. If there's any pepper on my food, I can't taste anything after the first bite. I'm not sure how it affects my intestines, but I do experience much more gas and bloating after consuming any pepper. I focus on meals with meats, fresh vegies and starchy vegies (potatoes, yams...
  25. burdee
    Hi Gillian: My local celiac support group helped me sooooo much to learn about celiac disease, safe and unsafe foods, celiac friendly resturants, as well as meet supportive friends. When I first discovered I had celiac disease our group leader listened to my frantic phone calls and emails (when I was confused and scared about 'slips') and reassured me...
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