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burdee

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Everything posted by burdee

  1. burdee
    Hey Rachel: Malt diastase is derived from BARLEY. So it's GLUTEN!!! I continued to take daily digestive enzymes with malt diastase for 8 months after I went gluten-free and wondered why I wasn't getting complete pain relief. That ingredient is in a LOT of vitamins, supplements and digestive enzymes. I'm certain that's what you reacted to. Sorry ......
  2. burdee
    I'm obviously an Enterolab fan. When I first suspected I had celiac disease, I was in such excruciating pain that I wanted to abstain from gluten to stop hurting ASAP. I did not want to wait for an appointment with a doc to do a blood test. I ESPECIALLY did not want to 'gluten load' to get myself REALLY sick by leaking gluten antibodies out of my gut and...
  3. burdee
    Hi Mandi: My online support group for women who are committed to recovery from 'disordered eating' habits is at Open Original Shared Link I also tried an antidepressant (Serzone) to help with my binge/purge habit/obsession. However, after an initial period I didn't feel any guilt and continue to b/p w/o remorse or concern. I realized I needed to change...
  4. burdee
    Hi Bette: I can soooo relate to that feeling of not wanting to eat at all but fear that I'll get low blood sugar symptoms (especially one of those killer headaches). I also fear getting constipated if I completely stop eating. So I try to consume a lot of soft but high fiber fruits and well cooked, high fiber vegies. Some people (including me) mentioned...
  5. burdee
    Reading the suggestion about watching "National Lampoon's Christmas Vacation" (I laugh just thinking about that one) reminded me of another funny movie which I saw BEFORE I learned I was celiac, but while I was continually tormented by loud, embarrassing gas. One especially fitting scene from "Hot Shots Part Deux" featured scuba divers who were trying to...
  6. burdee
    I can add a few more ideas: 21. Make a pot of really strong herbal peppermint tea and DRINK IT! 22. Do yoga positions which focus on abdominal area. 23. Put on really loose, comfortable, but attractive, clothes. 24. Drink warm water or herbal tea (besides peppermint) continuously. 25. Ask a family member, housemate or spouse to give you a hug...
  7. burdee
    UGGHHH! Not that the pizza was bad, but I'm soooo full. It was tooo good! Since I can't have gluten, dairy or soy, I used the Namaste pizza crust mix. Then I added tomato paste, shrimp, red peppers, black olives, mushrooms, fresh tomatoes and 'Chreese' mix (Alfredo plus a little Cheddar). The Chreese topping look horrible--it's not white like good...
  8. burdee
    I know this solution doesn't apply to wetting envelopes while making bank deposits, but I had to share my envelope sealing story ... I often have an empty mug with a tea bag sitting in my studio where I address and send cards to friends. So I use the old tea bag which is still rather moist to wet the envelope and throw the teabag away afterwards. That...
  9. burdee
    Hi Tangerine: I can sooooo relate to the ED obsessive thoughts about food, eating and my body. I was misdiagnosed with IBS for about 10 years, but have had celiac disease symptoms since I was about 6 years old with a bloated tummy but thin arms and legs. My mom took me to the doctor to get a weight loss diet because she thought I was getting 'FAT'! I wish...
  10. burdee
    What helps me is to relax the cramps, cope with the bloat and move the gas. So I drink really strong herbal peppermint tea, wear my 'celiac' episode clothes (really loose fitting tops and elastic waist pants) and walk, do yoga positions or elevate the foot of my 'tempurpedic' bed while I watch funny movies or "Funniest Animal Videos". Also just focussing...
  11. burdee
    Thanks for the CSA feedback, celiac3270. WHOAAA!! Enough said. Maybe I'd better make our group a GIG group, since they're already very active in our Seattle area. We sure love their annual walks which feature many gluten-free food reps with free samples. BURDEE
  12. burdee
    I also checked very sensitive, but I don't have problems with distilled vinegar. However wine (and maybe any other alcohol) really bothers me now. I went undiagnosed (MISDIAGNOSED) for so many years (about 50!) and developed other intolerances (dairy, soy, and most artificial sweetners). I thought that Splenda was okay, but after drinking wine more regularly...
  13. burdee
    Thanks, Marcie! We have a local GIG office/branch. So our other local celiac support group is a GIG group. I've considered becoming a CSA branch group just to offer a different approach. What's your opinion/experience with CSA? I also learned from leading previous support groups to NOT assume responsibility for EVERYTHING. I stated in my intro letter...
  14. burdee
    Jessica: Thanks SO MUCH for that list. I just assumed leadership of our group which floundered for a few months after the previous leader quit. Last night I contacted EnjoyLifeFoods to inquire about samples, because they previously sent us a freebee box last year. I thought maybe having a new leader meant our group could get more goodies!! Anyway then...
  15. burdee
    Thanks so much, Kay and Jen, for your feedback. I have previously attended the support group for which I just assumed leadership and helped the leader a LOT (by keeping the member roster, getting free goodies from gluten-free food sites and doing advertising). However, I sat powerlessly listening while group discussions deteriorated into 'poor me, I have...
  16. burdee
    I'm assuming leadership of our local celiac support group. We have 2 groups in our area, but our group members went MIA when our leader resigned and nobody stepped forward. After reconsidering my time and priorities, I volunteered to assume leadership. I want to make our group focus different from the other local group, so that we discuss how we handle...
  17. burdee
    When I tested with Enterolab I was taking a daily digestive enzyme to counteract malabsorption. My Elab results also were low in malabsorption, although I had lifelong malabsorption symptoms. My lab test result was: Stool Test for Small Intestinal Malabsorption Microscopic Fecal Fat Score: 132 Units (Normal Range < 300 Units) When I...
  18. burdee
    I vacationed in San Diego for 2 weeks last October. If you can take a bus to the Hillcrest area (close to Balboa Park and San Diego Zoo), you can visit the Whole Foods and Trader Joe's in that area. I bought all my gluten-free supplies there during my 2 week stay in San Diego. However, there is also one large grocery store in downtown SD which has many...
  19. burdee
    Hi Jamie: Rice Dream uses barley to process their Rice Dream milk. That's printed in tiny letters on the carton. Try another brand of rice milk, like Pacific or Lundberg. BURDEE
  20. burdee
    Hi Tiffany: I LIVE in Seattle and just visited the Whole Foods in the Roosevelt area. Where did you find the Flying Apron products in the WF store? I have purchased Flying Apron items also at PCC (Puget Consumers Coop) in North Seattle. However, I have ALSO gotten contaminated by items which I purchased directly from the Flying Apron Bakery in the University...
  21. burdee
    Thanks, Jane. I'll add that to my list of great recommendations! I also contacted the Canadian Celiac Association, Vancouver branch and someone there gave me a huge list of restaurants, locations and contact numbers. I noticed that most of the restaurants seem to be breakfast and lunch spots (muffins, sandwiches). We usually eat breakfasts and lunches from...
  22. burdee
    BamBam: Goat milk STILL has casein (the milk protein). So if you're casein intolerant, best to avoid that and save money too. (It's very expensive!) Pacific brand almond milk is soy/gluten/dairy free. Almond Breeze almond milk uses soy lecithin. Since I'm super soy sensitive, I use Pacific, rather than Almond Breeze. Just check the labels of the various...
  23. burdee
    Thanks so much for that info, Michelle. That's the FIRST time I have ever read an explanation for vertical ridges in my nails! Those are now SLOWLY disappearing the longer I abstain from gluten, dairy and soy, which have impaired my digestion and absorption of nutrients, despite taking vitamins for YEARS. I agree that our nails are an obvious sign of poor...
  24. burdee
    Thanks again, Karen. Red Robin?? I would never imagine I could get a gluten, dairy, soy free meal there!! My husband would be sooo pleased ... OOPS! He's also committed to avoid gluten (which relieved his arthritis symptoms though he's never been tested for celiac disease) just to eliminate kitchen cross contamination. I'm not sure he could resist...
  25. burdee
    WOW!! THANKS A HEAP, KAREN!! We're staying in the Oceanside Hotel 2 blocks from Stanley Park on English Bay. Which of those restaurants are in the Stanley Park area? Of course we'll travel all over Vancouver and can try the others, but we might want one close to our hotel the first night. Also WHERE is the Whole Foods? I really depend on the Whole Foods...
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