burdee
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Latest Celiac Disease News & Research:
Everything posted by burdee
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I will be staying in Vancouver, BC from August 23-31 in the Oceanside Hotel on English Bay a couple blocks from Stanley Park. Can anyone tell me where in the downtown and Stanley Park area I can find restaurant personnel who speak celiac?? I'm also casein and soy intolerant, but don't like spicey food. So I usually go to steakhouses and order simply grilled...
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UCLANGEL: Me, too! When I told my doc about my lifelong constipation and increasing gas, bloating and intestinal pain, she labeled me 'IBS' and gave me the IBS diet sheet which suggested eating more whole grains and bran cereals. So I faithfully ate my Shredded Wheat with Bran and Lactaid Milk every morning. Little did I know that I was gluten AND...
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ARCHIVED Gfcf Cheese Substitute Recommendations Wanted
burdee replied to trying4faith's topic in Gluten-Free Recipes & Cooking Tips
Hi Lesliean: Thanks so much for the cheesy dip recipe. What is and where do I get 'nutritional yeast'? I recall trying brewer's yeast many years ago and getting very ill. Perhaps that was wheat based??? How is 'nutritional yeast' different? Also have you read Ron Hoggan's book 'Dangerous Grains'? On page 124 he describes gluten, soy and cow... -
ARCHIVED As Promised, A Few Recipes
burdee replied to tarnalberry's topic in Gluten-Free Recipes & Cooking Tips
Thanks, Tiffany. I'll try increasing the almond flour and maybe more of one of the others you mentioned in the recipe. BURDEE -
ARCHIVED As Promised, A Few Recipes
burdee replied to tarnalberry's topic in Gluten-Free Recipes & Cooking Tips
Thanks so much. I have an anorexic, celiac friend with my same food intolerances (gluten/dairy/soy) whom I will send some of these easy recipes. She never learned to cook and needs to learn to prepare lots of nutritious foods in order to gain weight and recover. So I really appreciate your posting these recipes. BURDEE PS What can we substitute for... -
ARCHIVED Gfcf Cheese Substitute Recommendations Wanted
burdee replied to trying4faith's topic in Gluten-Free Recipes & Cooking Tips
If soy (as well as gluten and dairy) is a problem, AVOID the Blue Diamond Almond Breeze milks which contain soy lecithin. I absentmindedly overlooked that small detail on the label and consumed 'original' and 'chocolate' flavors for about a month and WONDERED why my symptoms recurred ... I'm soy, casein and gluten intolerant! Pacific brand of almond... -
ARCHIVED Gfcf Cheese Substitute Recommendations Wanted
burdee replied to trying4faith's topic in Gluten-Free Recipes & Cooking Tips
I have to admit 'chreese' mixes (cheddar and alfredo) had a weird taste at first. I used them only in omlettes or chreese & noodle casseroles. I suspect the nacho chreese jars have more of a 'cheese' like texture, but I don't like spicy foods. Abstaining from gluten was NOTHING compared to abstaining from dairy--I was VERY addicted to dairy. If soy... -
ARCHIVED Your Favorite Brand Bagel/english Muffin/pizza Cru
burdee replied to trying4faith's topic in Gluten-Free Recipes & Cooking Tips
Ener-G Foods Brown Rice Sweet Potato English Muffins are my favorite. They're so thick I often slice them in 4 horizontal slices for sandwiches. They're very nutritionally balanced also, but I'm not sure whether that's a concern for you. I'd recommend you look at www.ener-g.com. They have a WIDE selection of breads, muffins, cookies, brownies, pastas... -
ARCHIVED Gfcf Cheese Substitute Recommendations Wanted
burdee replied to trying4faith's topic in Gluten-Free Recipes & Cooking Tips
I also must avoid all dairy products because I was diagnosed gluten AND casein intolerant through E-lab. I also noticed soy intolerance symptoms. So I can't even substitute soy products for dairy. The ONLY gluten-free/CF (also soy free) cheese I have found is really a cheese mix substitute called "Chreese" by Road's End Organics at www.chreese.com. They... -
ARCHIVED Tired Of The Cheaters And Skeptics
burdee replied to angel-jd1's topic in Introduce Yourself / Share Stuff
WOW!! I love the insightful posts under this topic. Despite the differences of opinion and passionate protests, I appreciated reading EVERYONE'S opinions here. We have expressed so much of our views on life and communication as well as self-care here. HURRAY FOR ALL WHO POSTED!! BURDEE -
I also like sweet breakfasts, but can't tolerate dairy or soy, so I prepare: Peanut butter and jam on gluten-free English Muffins with fruit (most mornings); Hot quinoa and rice bran cereals (mixed together) with chopped pear, almonds, spices and almond milk; My homemade gluten-free date/nut/banana bread, a slice of Jenni-O turkey ham and fruit;...
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ARCHIVED Tired Of The Cheaters And Skeptics
burdee replied to angel-jd1's topic in Introduce Yourself / Share Stuff
Hi Scoutfinch: I like your idea of having a safe (doubting?) newbee section. Everybody who has celiac symptoms or celiac test result indications or even probable wheat intolerance should feel safe to express their opinions and feelings in whatever way they choose. Not everyone can tactfully or diplomatically verbalize their concerns or beliefs. Some... -
ARCHIVED Tired Of The Cheaters And Skeptics
burdee replied to angel-jd1's topic in Introduce Yourself / Share Stuff
Those 'newbee' comments about cheating may SEEM disrepectful of those of us who abstain from gluten (and dairy, soy, and other foods for some of us). However, they are courageously risking criticism from US, as they share how they struggle with accepting what they must do, despite the facts about healing from celiac damage and avoiding future related conditions... -
ARCHIVED Enterolab Vs "traditional" Testing
burdee replied to trying4faith's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Hi Trying4Faith: In answer to your question "Should we cut out gluten AND casein for him? What on earth will I feed him that has protein and fat?", see www.gfcfdiet.com. That website is run by parents of austic children whose symptoms can be controlled by following a gluten and casein free diet. They list foods which are safe and unsafe on their website... -
ARCHIVED Tired Of The Cheaters And Skeptics
burdee replied to angel-jd1's topic in Introduce Yourself / Share Stuff
I've enjoyed the humorous posts in this topic but wanted to ask a question: AGAINST WHOM OR WHAT DO 'CHEATERS' BELIEVE THEY ARE CHEATING? THEIR DOCTORS? Some of us had to work REALLY hard to teach our docs about celiac and/or convince them that celiac is a real disease. I really doubt most of those docs care whether we 'cheat'. THE GLUTEN RESTRICTIONS... -
ARCHIVED Cheating...interested How Many Of You Do
burdee replied to celiac3270's topic in Coping with Celiac Disease
Just thought I'd add my 2 cents' worth about 'cheating' ... I think cheating depends on how painful your prediagnosis celiac symptoms were. I endured progressively more excruciating cramping pains with gas, bloating and constipation over a 10 year period while being misdiagnosed repeatedly with 'IBS'. When I FINALLY learned I could resolve and prevent that... -
Hi 12BGF: If you are 'allergic' to milk you may actually be casein intolerant. Although I had celiac disease symptoms since early childhood, I also had been constipated all my life, so long that I eventually needed hemorrhoid surgery. When I eliminated gluten, I STILL had symptoms of bloating, gas, cramps and constipation. So I tested through Enterolab...
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Hi Stephanie: My chocolate chip quinoa flake cookies were TOOOO good. My husband didn't get many. With Chocolate flavored almnod milk, I polished off the whole batch in a couple of weeks. The recipe is in Karen Robertson's gluten free cookbook. BURDEE
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Remember 'depression' is just a fancy term for sadness turned to hopelessness turned to giving up on life. Longterm undiagnosed, debilitating and even painful symptoms of celiac disease can make people feel hopeless about ever living a normal life again. Fears about unexpected celiac reactions which may produce embarassing gas, bloating or diarrhea or even...
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ARCHIVED Glad I Found You
burdee replied to anewsprue's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
As "Tarnelberry" suggested, some frozen chicken breasts have added ingredients which may include wheat (gluten). I avoid any chicken which indicates "broth" which may be thickened with wheat flour. Natural flavorings are usually okay. However, I recommend calling the company to ask what's in 'broth' or natural ingredients of frozen meat products. I constantly... -
ARCHIVED Peanut Butter
burdee replied to sdore's topic in Gluten-Free Foods, Products, Shopping & Medications
If the gluten-free peanut butters make you ill, check for soybean oil in the ingredients. You may also have soy intolerance problems, unless you are sensitive to peanuts. I use Adams no-stir variety or Whole Foods 'Whole Kids' variety which do not have soybean oil. Most of the 'natural' peanut butters (oil sits on the top of the jar before stirring) will... -
ARCHIVED Trying To Calm My Stomach Down
burdee replied to skbird's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
My gluten contamination reactions last 7-10 days (dairy 5-7, soy 3-5 days). So here's what helps me ease excruciating pain, gas and bloating: Peppermint herbal tea or chamomile tea (not as helpful as peppermint) or even drinking lots of hot water; Yoga positions where I lay on the floor and raise my legs up and over my head or put my knees to my... -
ARCHIVED Anyone Have Recipe For Flourless Chocolate Cake
burdee replied to christicrete's topic in Gluten-Free Recipes & Cooking Tips
THANKS, celiac3270!!! I LOVE carrot cake and can just substitute Vance's darifree substitute milk for the buttermilk and have gluten-free/df/sf carrot cake. I can also make a spectrum naturals palm oil shortening and powdered sugar frosting for the 'philly' frosting. I'd much rather eat carrot cake than chocolate cake anyway. Thanks again. BURDEE -
ARCHIVED Some Rather Graphic Bm Discussion Follows
burdee replied to Wandering Hermit's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Just to add my experience to the 'floating stool' topic ... I had them all my life UNTIL I after eliminated casein (dairy). Even after abstaining from gluten I still had floating (and often hard) stools. My Enterolab malabsorption tests were normal. Several months after I eliminated all dairy (as well as gluten and soy), I finally experienced 'normal'... -
ARCHIVED Yet Another Newly Diagnosed Celiac
burdee replied to Wandering Hermit's topic in Coping with Celiac Disease
I also self-diagnosed after reading a newspaper article about celiac disease which described MY symptoms. Fortunately I had a friend whose husband had been diagnosed 6 years before. So she was my mentor and told me what to eat and avoid. I initially wanted a doc to do tests. My own doc had misdiagnosed my symptoms as "IBS" for 8 years. So I went to a naturopath...