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burdee

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Everything posted by burdee

  1. burdee
    Hi Nadia: In answer to someone else's question about 'lactaid' supplements, I checked the ingredients on lactaid Ultra chewable tablets. First inactive ingredient was mannitol, an artificial sweetener which, like sorbitol, can cause cramping, bloating and gas in some people. I am extremely sensitive to sorbitol, but mannitol didn't bother me as much....
  2. burdee
    This is just my experience and what I've heard from my naturopath, but Irritable Bowel Syndrome is just a diagnostic label to describe SYMPTOMS. Doctors don't know the cause of those symptoms and even call IBS a functional disorder, meaning the intestines are functioning just fine, but the patient has all that mysterious pain. Your doctor was absolutely...
  3. burdee
    HMMMM ... It's difficult to choose one. I LOVE those Ener-G Foods Brown Rice with Sweet Potato English muffins, but I also like their Harvest bread, and their granola bars. Can I just say ENER-G Foods Products? Actually, when I go on biking trips or day trips, I pack rice cakes (Lundberg Farms Sesame Seed), canned sardines and fresh fruit. I plan to...
  4. burdee
    Thanks Granny! Mission is a brand I see in many supermarkets. The ingredients look fairly innocuous, but I may call the company to check. I must avoid gluten, dairy and soy, but those ingredients look okay. I just worry about companies who don't have dedicated lines for corn tortillas so they run wheat tortillas on the same production lines. So I will...
  5. burdee

    ARCHIVED Sleep Patterns

    burdee replied to a topic in Related Issues & Disorders

    Hey Jill: I've discovered a different fact about older people and sleep: As they get older their sleep quality is often disturbed by pain, stress and snoring mates. So although they need the same 8 hours as younger people, they don't get as much sleep. Then they try to use caffeine (which can cause headaches if you decrease your daily dose ) or sugary...
  6. burdee
    Hi Nadia: When my excruciating abdominal pains made me suspect I had celiac disease, I eliminated gluten and felt better immediately, but not really well. The more gluten sleuthing I did, the more I found gluten 'mystery' ingredients in condiments and seasonings I trusted. Then I discovered my vitamins and even my toothpaste contained gluten. I also had...
  7. burdee
    Lauriel: This is my unmedical, but very personal interpretation from reading everything about celiac disease and painful reactions: When we celiacs ingest gluten, our bodies create antibodies to that gluten. However our small intestinal villi also try to ingest that gluten protein like other nutrients. So the antibodies attack both the gluten and our...
  8. burdee
    WHOAA!! My husband and I were just today discussing blood type and celiac. I'm also a type O which is the oldest blood type, associated with the hunter gatherer types who only ate meat, fruits, vegies and nuts (which is what I would be limited to w/o gluten-free breads, cookies & pasta ). I didn't like the blood type diet book, because they recommended...
  9. burdee
    Hey Jill: I LOVE your sense of humor. We all need more of that to get us through those frustrating experiences with the medical profession. BURDEE
  10. burdee
    YES, I have that book "Dangerous Grains" and have read it SEVERAL times. I believe it's available through this website's bookstore. That really helped me understand how I could have casein and soy as well as gluten intolerances. It also tied together all those pesky symptoms I have experienced all my life into a nice, neat celiac package. BURDEE
  11. burdee
    Hi Mark: I don't have cross-contamination advice, but I am also gluten/dairy/soy intolerant. I learned about the dairy after being gluten-free almost 3 months and then the soy when I tried to substitute soy products for dairy. I would HIGHLY recommend that you look at www.gfcfdiet.com. That's a website for parents of autistic syndrome children who must...
  12. burdee
    Gretchen: I changed my diet (eliminated gluten) on the basis of my excruciatingly painful SYMPTOMS which had previously been MISdiagnosed IBS (which is NOT a disease, but merely a label doctors assign to symptoms they can't explain with a causative agent). If going gluten free relieves your 'IBS' or gastrointestinal symptoms, that further supports your ...
  13. burdee
    I have to add one more potential cross contamination situation. If you hold hands around the table to say grace with people who have handled or prepared regular bread before sitting down, you can easily pick up crumbs from their hands and transfer it to any hand to mouth food you consume. My husband always wants to hold hands while we say grace, until...
  14. burdee
    Hey Rian: You can determine whether you have problems with lactose (milk sugar) or other dairy ingredients (like casein, milk protein, or whey) by using 'lactaid' supplements (chewable tablets) when you consume dairy or drinking 'lactaid' or 'Dairyease' milk. If you STILL have problems even after using lactaid, you're probably sensitive to other dairy ingredients...
  15. burdee
    Tiffany: I have the same constipation symptoms, esp. when I take calcium, so I take LOTS of magnesium supplements. Since I can't tolerate any dairy, I eat my calcium through canned bony fish (sardines & salmon), almonds, dark leafy green vegies, etc. Karen: This may be 'folklore', but I've read that many people eat coconut macaroons to 'bind up...
  16. burdee
    Hi Ruth: Before I learned I can't tolerate dairy OR soy, I substituted (for hot oatmeal) a mixture of rice bran (available through Ener-G Foods) and Quinoa flakes cereal (available at many healthy food or Whole Foods stores as well as online) as a hot cooked cereal. I didn't trust oatmeal, since I'm soooo sensitive to any gluten. I used more rice bran...
  17. burdee
    I also like Lundberg Farms toasted sesame rice cakes (more fiber than the average low fiber rice cake). I use those for open face meat sandiches like with sardines or braunschweiger (gluten-free Oscar Meyer brand), so I prefer a less sweet variety. BURDEE
  18. burdee
    Hi Rian: Although I had celiac symptoms all my life, I only recently learned those were celiac related. I have been married twice and NEVER conceived. I also had long periods of amenorrhea. One lasted 10 years after being on b/c pills for a previous 8 years. So I assumed the pill suppressed menstruation, until I learned celiacs have problems with amenorrhea...
  19. burdee
    Hi Carrie: I had hoped someone else who had blood tests would respond to your post by now. I had Enterolab stool test analyses to diagnose my celiac sensitivities to gluten and casein, so I can't interpret your results. However, your results seem pretty high (positive) to me. Yes, abdominal pain is right up there with diarrhea and constipation...
  20. burdee
    Hey Karen: Maybe I will FINALLY learn to keep it simple when I'm feeling well, rather than taking chances and getting sick again. I vowed to another celiac friend today that I will avoid ANYTHING that bothers my stomach at all when I eat it--which includes anything on the acidic side like tomatoes, citrus, wine, mustard, caffeine, etc. as well as gluten...
  21. burdee
    Hey Karen: The first brand/variety of Soy milk I tried was TERRIBLE. I think it was the plain Silk Wave soy milk. I thought trying the plain would tell me whether I liked soy milk, rather than trying a vanilla flavored variety. BAD IDEA!! The next brand/variety I tried was Pacific ULTRA soy original flavor, mainly because it had 10 grams of protein...
  22. burdee
    Hi Karen: Any pure fruit juices (NOT JUICE 'DRINKS') would only have fructose, rather than dextrose, if you are trying to avoid sugar. I prefer to eat the fruit (for fiber, since constipation is one of my recurrent symptoms). So I drink herbal teas (esp. peppermint and chamomile which help with intestinal cramping pains) and diet caffeine free pop (limited...
  23. burdee
    Hi Lee: Lactaid (for the milk sugar lactose) doesn't protect against the milk protein CASEIN. I used lactaid for YEARS while my symptoms got worse. Only when I abstained from ALL dairy (as well as gluten) did I start to get better. Listen to your daughter's physical symptoms and restrict all dairy, if that helps. The body never lies. BURDEE
  24. burdee
    I read that several people use corn tortillas to make wrap sandwiches. Does anyone use the white corn tortillas which seem softer (and easier to wrap without tearing) than the yellow corn tortillas? Do you have to heat them or cook them first? What brands of white or yellow corn tortillas are gluten free/dairy free/soy free? 'Sorry, but I'm sensitive...
  25. burdee
    Hey celiac3270: I'm sooo sorry to hear your doctor dismissed the SIBO theory. I hope he was able to give you some explanation or solution for your continuing symptoms. I recall you really had your hopes up for that appointment. BURDEE
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