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burdee

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Everything posted by burdee

  1. burdee
    Hey celiac3270: Go to www.gfcfdiet.com to see their 'unacceptable' food list. That website really helped me when I first realized I had to avoid all sources of milk (according to my Enterolab test results). Meanwhile watch out for ingredients containing any words or combinations of words with the terms "casein, caseinates, lacta/lacto (like lactoglobulin...
  2. burdee
    Sheryl: When I first went gluten-free over 3 months ago, some of my symptoms went away, but I continued to have other symptoms, esp. constipation. Sometimes I could determine a gluten source to blame for recurring symptoms, but sometimes I couldn't detect what caused those. I also assumed I was lactose intolerant, because I had problems with milk. I had...
  3. burdee
    Ruth: I'm confused. You said: "Beano is not gluten freee. I checked out all my otc's meds and also soap, shampoo,etc. I just checked out my list. The ingredient that sticks out is potato starch. That may not have gluten, but would not be allowed onthe SCDdiet, I suspect." Although Beano DOES has potato starch, but potato starch is gluten free. Not...
  4. burdee
    Hi Everybody with reflux, heartburn and GERD symptoms: Long before I learned my life long symptoms were celiac related, I also had 'gastritis' and acid reflux. Back then they prescribed Zantac and Mylanta (which I consumed like candy). I got tired of the side effects of Zantac and worried about the aluminum in Mylanta, so I eventually stopped both...
  5. burdee
    Lactaid only helps you consume LACTOSE (milk sugar) without symptoms, not CASEIN (milk protein) which you must avoid. The gfcfdiet website at www.gfcfdiet.com lists foods and ingredients to avoid. They also publish a mainstream product shopping guide as well as list of nondairy calcium containing foods and mystery ingredients (possibly containing casein...
  6. burdee
    Hey Karen: You could show your sister this post about MY celiac disease symptoms which included mostly constipation but rarely diarrhea: I had MANY celiac symptoms from the time I was about 6 years old: bloated stomach, frequent bouts of 'stomach flu' when I would wake up in the middle of the night throwing up (but nobody else in the house caught the...
  7. burdee
    A positive gluten sensitivity test and/or a positive autoimmune reaction to tissue transglutaminase means you have celiac disease. My tests also indicated I have a copy of the main celiac gene, so I definitely have celiac disease, whether or not my intestines have been damaged enough to indicate malabsorption problems. However, I was also told that taking...
  8. burdee
    After my bad reaction with Rice Dream's Vanilla flavor, which gets cross contamination from other dairy products at their factory, I avoided the orange vanilla swirl flavor which I assumed used the same 'vanilla' Rice Dream product in that vanilla/orange mix. I don't think your recovery progress is 'ruined'. Every bit helps. But I found the longer...
  9. burdee
    I also did the Enterolab tests, but AFTER I had been avoiding gluten for 2 months and lactose for over 10 years. I had gluten slips during that time, but also continued to consume casein. My test results were similar. I hope you read Dr. Fine's interpretation of your results included in the report E-lab sent to you. He usually explains what lower positive...
  10. burdee
    Casein is also in goat's milk, just smaller amounts. If you're casein intolerant, any amount may affect you.
  11. burdee
    Ruth: My acidophilus source is "Ethical Nutrients" Intestinal Care DF capsules recommended by a natureopath when I was still struggling with undiagnosed celiac disease symptoms. Those capsules contain each 6 billion organisms of Lactobacillus acidophillus and Bifidobacterium lactis. Even before I learned I had celiac disease, those capsules helped me. ...
  12. burdee
    Hi celiac3270: If you're still unsure about dairy or even soy, maybe your new doctor could test for those sensitivities?? Here's how I tested for dairy and then soy: I didn't suspect dairy until I knew I cut out all gluten and still had symptoms. So I absolutely abstained from ALL dairy for 36 hours. Then I used 'lactose free' milk (so I knew it was...
  13. burdee
    I stay away from most OTC meds except a gluten-free/CF Tylenol brand for an occasional headache. For celiac disease 'slip' symptoms like gas, bloating and expecially those excruciating cramping pains, I drink lotsa warm water, strong peppermint tea (brewed from leaves, not bags) and sometimes fennel seed tea (only helps with gas/bloating, not cramps so much...
  14. burdee
    Lactose is milk sugar. Casein is milk protein. If you can use 'lactaid' supplements when you consume dairy to prevent symptoms, you probably just have lactose intolerance. (There's also 'lactaid' or lactose free milks and ice cream now.) If you try using lactaid, but STILL have symptoms after consuming dairy, you probably have casein intolerance (or even...
  15. burdee
    Hey Karen: When I learned from my Enterolab results that I was casein intolerant, I also asked the same gluten-free/DF margarine question. Mariann told me the following are okay: Fleischmann's stick or soft, salted or unsalted margarines Smart Balance Smart Beat Shedd's Willow Run Spread Nucoa margarine Earth Balance When...
  16. burdee
    I'm SOOOOO glad to hear you discovered that. Isn't it ironic that the pills advertised to help with gas/bloating actually create MORE gas/bloating for celiacs?? Well, I guess it sells more of their product. When I was STILL having painful symptoms after my first 2 gluten-free months, I discoverd I was taking vitamin C tablets with wheat starch and...
  17. burdee
    YES. I rarely had diarrhea, sometimes had constipation, but ALWAYS had that feeling of "I have to go". Sometimes I really did, sometimes it was just gas, sometimes it was just mucous. I realized the cramping, bloating and gas gave me that sensation of 'having to go', even after my rectum was empty. Very frustrating and confusing. AFTER avoiding...
  18. burdee
    Hey Carol: I also love the Food for Life Rice Pecan bread and the Ener-G foods Harvest breads with PB&J or with PB & bananas, but I've rediscovered old fashioned (?) sesame seed gluten-free rice cakes for all those open faced, nonsweet sandwiches like liverwurst, sardines (go ahead and laugh, but they have calcium for us casein free people ...
  19. burdee
    Hey Karen: Live and learn ... Since we all live in our own bodies, we all have to figure out what causes our own symptoms. Fortunately we can share general info and similar symptoms. I also suspected sugar was causing problems for years, since I seemed to be 'addicted' to gluten and dairy products with sugar. However, when I eliminated the gluten and...
  20. burdee
    Hi Karen: I get burning/knawing pain my stomach from acidic foods (oranges, strawberries, raspberries, caffeine and too much wine ), not from casein. I did get 'instant reflux' from casein (all my life). But everybody's symptoms differ. I have gotten that radiating gas pain from my intestinal cramping up into my back, and into the sides of my waist from...
  21. burdee
    Karen: TO ANSWER YOUR QUESTION: I saw a difference (almost NO symptoms) within 24 hours and experienced a bad reaction when I returned to milk consumption after 36 dairy free hours. Here's more ... Since I KNEW my E-lab test results would tell me whether or not I could safely have dairy, I wanted to try my own little dairy free test about 5 days before...
  22. burdee
    Karen: I also went many years before learning my symptoms were really celiac, and not 'IBS' (14 weeks ago) and getting a celiac diagnosis (I'm 57). When I first started avoiding gluten, I focussed on the obvious stuff (breads, pastries, pasta). When I still had symptoms I started reading more labels of ingredients and learning the sources (safe or unsafe...
  23. burdee
    Molly: You never actually said whether you have celiac disease or whether you are abstaining from gluten. Maybe that's a foregone conclusion and I just missed that ... ... BUT if you do have gluten intolerance or celiac disease, I would make sure you have eliminated every speck of gluten before you consider fruit as the culprit. Then I would consider...
  24. burdee
    I have actually gained 2 pounds over the past 3 gluten-free months so I'm not worried about being too thin (5'4" and 105-107# range). However, I've learned to eat foods that stay with me for a while at each meal, so I don't have to bother with food decisions more than 3x per day. What helps me stay satisfied for long periods is balanced meals: protein,...
  25. burdee
    Maybe I should add a PS to my story: A year before I learned I had celiac disease I visited a naturopath who suggested probiotics and digestive enzymes to help with my 'symptoms'. Too bad my 'visit' was just a free consult at a health food store, and he didn't diagnose celiac disease then. But I've taken those probiotics and enzymes daily for over ...
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