
slee
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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995
Everything posted by slee
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ARCHIVED *sigh* Always Resistance
slee replied to Mizzo's topic in Parents, Friends and Loved Ones of Celiacs
I agree with you. I'm sorry -
ARCHIVED What Are Some Kid-Friendly Substitutes For
slee replied to Blessedby3's topic in Parents, Friends and Loved Ones of Celiacs
My son likes the Dayia cheese- He's been dairy free since 18 months- so it is very "normal" to him. He's almost 6 now. He also likes the tofutti slices for things like grilled cheese, or on crackers, it's like the velveeta slices (to him anyway) He also likes Veganella (sp?), it comes in a brick and you shred it yourself. The texture is kind of funny... -
ARCHIVED Medical Alert Bracelets
slee replied to brandey128's topic in Parents, Friends and Loved Ones of Celiacs
We haven't had anyone think of it as just a cute bracelet. People notice it, because while it has cute beading etc., the plate you put info on is obviously a medical alert. It's worked out really well. -
ARCHIVED Medical Alert Bracelets
slee replied to brandey128's topic in Parents, Friends and Loved Ones of Celiacs
My son who is almost 6 wears one- and loves it. He thinks it's like his grandpa's. They even wear it on the same wrist. They have lots of cute ones kids would love at Open Original Shared Link My son has the cowboy one- it is super cute, has held up well, and he feels good about wearing it, and I feel better too. -
I can't give you any good feedback on this one- but just wanted to say that we are facing the same decision. My son is due to start kindergarten in the fall and I'm just pulling my hair out- unable to decide what to do. We are considering all choices, public, private and homeschool. So- although I can't offer advice, I just wanted to say I am with you on...
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ARCHIVED "emergency Food" Suggestions Needed
slee replied to camprunner's topic in Parents, Friends and Loved Ones of Celiacs
Kids Kitchen makes those little microwave cups- and the beans and wieners are both gluten and dairy free. -
ARCHIVED Looking For Gluten-Free Finger Food Ideas (For Baby)
slee replied to slee's topic in Parents, Friends and Loved Ones of Celiacs
I have never heard that, do you know where you heard it, or why it would reduce the risk? -
ARCHIVED Looking For Gluten-Free Finger Food Ideas (For Baby)
slee replied to slee's topic in Parents, Friends and Loved Ones of Celiacs
And oh very nice that you have a good, breast feeding friendly doc! That's always a very comforting thing, when the doc knows what's going on, phew! We started out with a good one for our first baby, but then had to move and our second doc didn't have a clue. He was telling us completely incorrect things, like the fact that my baby was born big somehow meant... -
ARCHIVED Looking For Gluten-Free Finger Food Ideas (For Baby)
slee replied to slee's topic in Parents, Friends and Loved Ones of Celiacs
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ARCHIVED Looking For Gluten-Free Finger Food Ideas (For Baby)
slee replied to slee's topic in Parents, Friends and Loved Ones of Celiacs
Thanks guys. You've all had great suggestions! My little one really loves to pick up little pieces of things... it's so cute to watch her do this. She's not crawling yet, and doesn't even make an attempt, but boy, she's figured out the pincer grasp quite well, and is she ever proud of herself! We are very lucky to have a great doctor for her it does... -
ARCHIVED Looking For Gluten-Free Finger Food Ideas (For Baby)
slee replied to slee's topic in Parents, Friends and Loved Ones of Celiacs
Wow- Thanks a lot guys! I had thought that iron stores only lasted about 6 months... is that not true? I am pretty lucky that my babies doctor is also a lactation consultant, and she's really great about breastfeeding... Thanks so much to both of you for taking time to post I really appreciate it. I also love the ideas about the grains, and crackers... -
ARCHIVED Looking For Gluten-Free Finger Food Ideas (For Baby)
slee posted a topic in Parents, Friends and Loved Ones of Celiacs
Hi- I've got a seven month old baby who loves to use her fingers to feed herself. We are not aware of any problems related to gluten just yet, however, due to celiac in the family her doctor would like her to wait until 12 months to eat anything containing gluten. We are having trouble coming up with good foods for self-feeding. Many small diced foods... -
ARCHIVED Breastfeeding A Gluten Intolerant Child?
slee replied to norahsmommy's topic in Parents, Friends and Loved Ones of Celiacs
I have been told that gluten does not travel through breast milk. -
ARCHIVED Sleep, Kids, And Gluten
slee replied to Chakra2's topic in Parents, Friends and Loved Ones of Celiacs
My son absolutely had trouble sleeping, waking up 8-10 times at night prior to diagnosis (18 months). After diagnosis he started waking up 3-4 times a night instead, and now sleeps through. -
ARCHIVED Sleep, Kids, And Gluten
slee replied to Chakra2's topic in Parents, Friends and Loved Ones of Celiacs
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ARCHIVED Adhd Medications
slee replied to Wolicki's topic in Parents, Friends and Loved Ones of Celiacs
Hi- My son has also has ADHD. He was gluten free prior to medication. Although the gluten free diet helped a small amount, it didn't help very much, I think he just felt better. He's now been gluten free and on medication about 2 years. He also takes medication to help him sleep, due to a suspected sleep disorder, so it's not a bad idea to at least... -
ARCHIVED Gluten Free Mega Cooking?
slee replied to slee's topic in Gluten-Free Recipes & Cooking Tips
Thanks so much! These are great ideas, and thanks for taking the time to pass them all on!! -
ARCHIVED Blood Testing - How Long Must You Be Back On G?
slee replied to LJ-Mom's topic in Parents, Friends and Loved Ones of Celiacs
This sounds so familiar! My son has been gluten-free about 2 years, but this started just before 18 months for us. His doctor suggested going gluten-free, which we did, later another doctor said we should not do this without testing- because he "needed" gluten in his diet. They tested him (off gluten) said he was fine- negative test.. because he was off... -
Hi- I am expecting a baby in the next couple of months, and would really like to do some mega cooking/freezing prior to the birth. Prior to our family being gluten-free I had done this on several occasions with a very helpful cookbook that laid out the process, ingredients etc. Is there such a thing for the gluten-free diet that anyone knows of, or suggestions...
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ARCHIVED Shopping Carts, Fish Food And Other Stuff
slee posted a topic in Parents, Friends and Loved Ones of Celiacs
Hi- I've been wondering about a few things lately, and maybe someone can cast insight. First, after being gluten free for awhile (my 2 year old, 6 year old and I), I'm noticing some more things I hadn't thought about at first. First off, shopping carts! When I put my 2 year old in a cart, very often I see crumbs from the cookies they give out in the... -
ARCHIVED Genetic Testing
slee replied to debmom's topic in Parents, Friends and Loved Ones of Celiacs
I do think she could have another type of gluten intollerence other than celiac, and it is not impossible that she could have celiac itself, but unlikely... we have just finished testing here for our family, including genetic testing. Some of us had the genes, some did not. The doctor that developed the genetic tests is a GI doctor at our hospital, so I... -
Just wondering if anyone knows a safe bubble bath. My 21 month old keeps saying "bubble" and pointing to the tub... I was told vitamin E is often gluten, and it's in a lot of bubble baths. Considering he often drinks the water... I certainly need a safe one Thanks.
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ARCHIVED Help My Son's Broken Spirit
slee replied to nattrail's topic in Parents, Friends and Loved Ones of Celiacs
I wish I could rememeber what they are called... but a parent just told me the other day (I'm a parent educator) that they not make underwear that is a step between pull-up and underwear. It looks like underwear but has a disposable liner... it might be an option. If he has a problem he can throw the liner, and put in a new one, and no one would know it... -
ARCHIVED I'm So Confused....
slee replied to celiac-mommy's topic in Parents, Friends and Loved Ones of Celiacs
I just wanted to tell you how this has worked out for my son... he was on and off gluten several times during testing, because he saw several different doctors, each who said when their test was complete he could go off gluten... in the end he had been off gluten for 3 weeks, the doctor told him to go back on for 2 weeks to do a bioposy (since he'd only... -
ARCHIVED Celiac With An Enzyme Deficiency Too?
slee replied to skikat's topic in Parents, Friends and Loved Ones of Celiacs
My son just had a bioposy 2 weeks ago, and they also tested his disaccharidase levels, which were all low. They said this can indicate healing of the villi, or it could be a primary problem in itself.... the disaccharidase eneymes are lactase, sucrase, maltase and palatinase. These enzymes can affect how one digests things such as sugar, lactose etc. ...