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GFinDC

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Everything posted by GFinDC

  1. GFinDC
    Somebody recommended Taza chocolate a while back. Not sure if it is good, I haven't actually tried it yet. Open Original Shared Link
  2. GFinDC
    Hi Simonsez, Yes, you should wait until all the testing is done before starting the gluten-free diet. Many doctors want the endoscopy as well as the positive blood antibodies before they will diagnose celiac disease. Sometimes the endoscopy is scheduled for several months after the blood tests. If that is the case, you can ask to be put on a wait list...
  3. GFinDC
    Hi, I don't understand 10 positive tests and no diagnosis myself. But, you can hold out for a doctors ok to put her on the gluten-free diet or go with a more cautious approach and do it yourself. We don't need a doctor's permission to eat a gluten-free diet. Since she has developed a goiter it is possible she is hypothyroid. Hypothyroidism can cause...
  4. GFinDC
    Hi, Here are a couple articles about NCGI. There is no standard testing for it yet. It can cause serious symptoms just like celiac disease. Since you weren't on the gluten challenge very long you may actually have celiac disease. But you could also have NCGI. Either way, the treatment is the same, 100% gluten avoidance for life. Maybe in the future...
  5. GFinDC
    Lots of water, pepto bismol, and peppermint tea.
  6. GFinDC
    Just wanted to mention the possibility of reacting to caffeine for some people. Not as a gluten reaction, but some people don't tolerate coffee or caffeine. It's simple to test if it bothers you. Stop drinking coffee and any caffeine for a month and see if there is an improvement. Thanks for the links Stephanie. I'd seen those reports about barley...
  7. GFinDC
    Hi Annajazz, A good way to start the gluten-free diet is to NOT go out and buy lots of gluten-free products and go to gluten-free restraunts. Instead concentrate on learning to mostly eat whole foods that you cook at home. The early months of the gluten-free diet are important for healing your gut and recovering. You'll learn faster and have less chance...
  8. GFinDC
    Gfreek.com is sponsoring a best of gluten-free award for many gluten-free products. Deb Simpson, author of Adam's gluten-free surprise is asking for votes in the kid's book category. But there are many other categories to vote on. Whats' your favorite gluten-free beer, pizza, book, bread, mix, website, expo etc.. This is your chance to show the world...
  9. GFinDC
    Makes sense to me Joy. Take care of it with diet when you can. I can tell you that coffee has a bad effect on me. I tried drinking it over the summer again. Worked fine for a couple weeks but then I got sicker and sicker. I stopped it and got better fairly quick. It just doesn't work for some people. I used to be a big a coffee drinker though. Now...
  10. GFinDC
    Hi Michael, How about a whole forum section full of recipes? https://www.celiac.com/forums/forum/27-gluten-free-recipes-baking-cooking-tips/
  11. GFinDC
    Hi YPG, You are are on your way to being a gluten-free expert! It may take awhile, possibly years, but you are started. Celiac disease is an autoimmune condition. That means your bodie's own immune system is attacking itself. Can you say self-destruct mode activated? 10, 9, 8.. Ah, it helps to laugh about these things sometimes. I know...
  12. GFinDC
    Hi Totoro! Welcome to the forum! I suggest you print this thread out and give it to your doctors to read. They probably don't understand your symptoms are as severe as they sound. Seeing it in writing might help them get the picture. Maybe your parents should read it too. Ok, weight loss with celiac disease is caused by damage to the villi that...
  13. GFinDC
    Hi Not, Welcome to the forum! Did you get a copy of the pathology report for your endoscopy? Some members might be able to interpret that for you. I think the current recommendation is to take 4 to 6 biopsy samples but maybe it is 6 to 8, not sure really. Anyway, the reason for multiple samples is the damage in celiac might not be universally...
  14. GFinDC
    Hi Joy, Joy, Joy in the morning! Since you had improvement on the more restricted diet it seems like that is a good starting point for you. I suggest you stick with that diet for 6 months to see how things go. Eating out is always risky, so I think you are right to stop that for now. I suggest you cut out coffee and any other caffeine for a couple...
  15. GFinDC
    Hi Renaye, Biopsies should come back negative for villi damage if you have been eating gluten-free for a while. That would be normal. Testing for celiac disease should always be done before going gluten-free, as the immune response decreases after the gluten is removed.
  16. GFinDC
    Well Colleen, I still don't think you are chewing your bones long enuff! But that may not be it, just not sure. Have you tried taking creatine? It helps with muscle energy and brain thinker thing too. I don't know if it would help but it might. Creatine is part of the energy storage and usage chemical process for cells. I know that cause I read it...
  17. GFinDC
    Welcome to the forum Wheatie! Your doctor messed up by having you start the gluten-free diet before the blood antibody tests were done. The right way to do it is to do the antibody tests first, then do the endoscopy. Eating gluten-free can be very simple if you stick to whole foods. Processed foods can be tricky for a beginner. Basically avoid anything...
  18. GFinDC
    That link was pretty helpful Colleen. It sounds like the lack of LDH is not a super big concern. Maybe it's nothing to worry about? Elevated levels would be a concern, but low levels seem to be an "ah, so what" deal. So, do you have symptoms of the LDH A deficiency? If not, it seems likely you have the LDH-B deficiency, which they say has no symptoms...
  19. GFinDC
    Hi, Carbs are way overrated IMHO. You don't need to eat lots of carbs to be healthy. Refined carbohydrates are quickly converted into sugars in the gut. So you might as well eat a bowl of sugar. That's really not a healthy way to eat. You should always have some protein with your meals. Protein provides long lasting energy instead of a "bounce"...
  20. GFinDC
    Hi Fergus, It seems to me that if your gut is continually inflammed/irritated, that more food intolerances are bound to develop. Sometimes it requires a patient process of removing most foods and adding them back in one at a time. For me I found that many foods caused reactions, and the last one I eliminated made a significant improvement. For me that...
  21. GFinDC
    Well Colleen, that were easy! Since it's Halloween the answers were obvious. Why don't u throw something hard at us next time! Geez!
  22. GFinDC
    Hi Alaine, It's significant that your symptoms have changed on going gluten-free. That shouldn't happen to a person if there body is not reacting to gluten. So it's likely you are reacting to gluten somehow. Gluten is anything with wheat, rye or barley in it, including malt. 10% or so of celiacs react to oats also. You are only 24 days into the...
  23. GFinDC
    You could also try DGL and mastic gum. They are both good for stomach issues.
  24. GFinDC
    I don't know if it is a big problem or not. Some of the early reports about arsenic in rice warned about infants and people who eat a lot of rice (celiacs) possibly being affected. Seems to me the warning about feeding lots of brown rice to children are probably the biggest concern. You don't have to eat a lot of rice if you are celiac though. I do...
  25. GFinDC
    Hi Simonsez, Open Original Shared Link I don't think they will be able to diagnose celiac disease with the upper GI series. The usual process for celiac testing is first blood antibodie testing (celiac panel) and then an endoscopy with multiple biopsy samples for microscopic examination. Another good thing to get tested is your vitamin and mineral...
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