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GFinDC

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Latest Celiac Disease News & Research:

Everything posted by GFinDC

  1. GFinDC
    Hi, you may as well have the celiac antibody testing now before you go gluten-free. If you go gluten-free first, the celiac testing is not reliable. The antibody tests are a simple blood draw for testing. They are usually sent to a lab and you get results in a few weeks.
  2. GFinDC
    I am going to 2nd the allergist and the possible epi-pen too. It is possible to have both celiac and a wheat allergy. The allergy part is the more immediate threat though. An endoscopy can only reach a small portion of the small intestines entire length. So the doc may not have seen damage if it was 2 inches farther along than his scope could see....
  3. GFinDC
    Marfle, umopha, empfha. Hmm, can't talk good with a soapy mouse! And to quote JNBunie1, ....... I think is a perfectly appropriate comment on the proceedings..
  4. GFinDC
    Welcome to the site! Some things you might want to read up on are gluten ataxia, gluten and depression. Gluten can and does affect the brain, and that can cause many symptoms. Insomnia, depression, trouble walking and muscle coordination, to name a few. Gluten and opiates is another good search to do. The good thing is you have found a great starting...
  5. GFinDC
    Welcome Suzy! It's great to know who to feel better eh? Don't be disappointed to much if it is a bit of a rocky orad to start out. It can take several months to get used to the diet and eliminate the hidden gluten they put in things. Some people also have withdrawal symptoms for a bit, and some people have stronger reactions to gluten after being off...
  6. GFinDC
    Good, sounds like you are close to solving the riddle!
  7. GFinDC

    ARCHIVED "Don

    GFinDC replied to Menic's topic in Publications & Publicity

    I can't do caffeine in either coffee or tea. But that doesn't mean it is a gluten causing a problem for me. It's the caffiene that mucks me up. Make your own tea: shake some cinnamon and ginger in your teapot and let it heat up. Add some chocolate powder if you like. Chocolate does have some caffeine it though so watch out for that if you are avoiding...
  8. GFinDC
    Oh, Ok If I have to. Gee, my arm is all sore from the twisting now. Guess I'll be typing worse than usual.
  9. GFinDC
    Ditto all above. Yes, very normal to have varying symptoms and response. Oh yeah, 4501 now.
  10. GFinDC
    Sounds better Krypto. Thanks for keeping us updated. I don't know about the biopsy but maybe someone else will chime in on that. Have you tried an elimination diet? I don't know if that would help or not, but seems like food intolerances can cause an awfully wide range of symptoms. Sore joints, migraines, skin rashes, liver problems, etc. So why not...
  11. GFinDC
    Elimination is the trick. It is almost certainly something you added to your diet at some point. I have problems with caffeine so I don;t doubt that could be a culprit. But it really could be anything at all causing a reaction. Your food diary should help identify the cause though. You can test for caffeine by trying different kinds of beverages. Like...
  12. GFinDC
    @Lady_Fresh I hope it works out for you. I don't know but maybe there are some wheat allergy groups out there also? If there are it might be another place to look. Some people with Crohn's disease are doing the gluten-free diet now also. Just a thought. And then there are all the gluten-free for the moment types that think it is a great healthy...
  13. GFinDC
    That's great Marini! wow, hair growing back in is fantastic. The damage to our intestines can cause us to not absorb nutrients, and that leads to lots of problems. The fat soluble vitamins are the ones they say don't get absorbed well. Have you checked out the dermatis herpetiformis section of the board? That's the skin rash that people with celiac...
  14. GFinDC
    Here are some links to threads about meal ideas: What's For Breakfast Today? https://www.celiac.com/forums/topic/81858-whats-for-breakfast-today/page__pid__726053__st__180#entry726053 What Did You Have For Lunch Today? https://www.celiac.com/forums/topic/87765-what-did-you-have-for-lunch-today/ What Are You Cooking Tonight? https://www.celiac...
  15. GFinDC
    Hmm, so you are going for the light dimmer scenario? Well, sounds about right. I still think the 80 ppm is too high for most people to eat without damage. Not so sure I agree about the testing though. We know people with celiac sometimes "fail" the current tests even when they are on a full gluten diet. So there is no test right now that will...
  16. GFinDC

    ARCHIVED Cooking Oils

    GFinDC replied to dws's topic in Super Sensitive People

    Hi Dws, I save fat from cooking chicken in a ceramic cup. I put it in the refrigerator and use it for frying. Pretty easy and free too. I don't know about the cc in the kitchen. That could definitely be a problem I think. Certainly if you are sharing a toaster or peanut butter or mayo jars etc. that is bad. You could also be having ongoing problems...
  17. GFinDC
    Welcome to the site Marini and Meteto! :0 Marini, you are so right. It is best to eat what makes you feel right, regardless of tests or what other people may think of your diet. We are still learning about celiac disease and doctors re just starting to admit that there is such a thing as NCGI (non-celiac gluten intolerance). So lots of things about...
  18. GFinDC
    Ha Ha, now that was funny! Thanks!
  19. GFinDC
    Well, actually, 80 ppm is over the allowed 20 ppm limit for gluten-free labeling, and it would cause problems for many people with celiac disease. I wouldn't eat their oats. Then again i don't eat any oats anyway. IMHO-ing// Celiac disease is an autoimmune condition, it is not like lactose intolerance or like eating too much ice cream and getting...
  20. GFinDC
    Good reading there on the travelogue Jest. Sounds like you need one of those big yellow slickers that the fishermen wear to keep toasty and dry. I can just see your picture on the front of a box of Gorton's fish sticks. And the slogan would be :"Gorton's fish sticks, caught by Jest herself". Welcome back - back low-E. Sounds like you are feeling a...
  21. GFinDC
    Hi Dani, It is a good idea to consider all the ingredients in the chocolate as possible problems. If it has soy, which most chocolate does, that could be a problem. If it has milk(dairy) that could be a problem too. Of course it could be the chocolate itself causing a reaction. In that case you could try carob as a substitute. If you can get 10...
  22. GFinDC
    You may have DH (dermatitis herpetiformis). There is a section on the board for it. DH is a rash that people with celiac disease sometimes get.
  23. GFinDC

    ARCHIVED Freaked Out

    GFinDC replied to varthurs's topic in Coping with Celiac Disease

    You might do better with some probotics sand some digestive enzymes. Going gluten-free is a big change in diet for you, but how about all those millions of little bacteria critters in your gut? The are all suddenly having to eat different, unfamiliar foods too, and their regular standby of gluten is gone. They may get pretty upset by that change, and start...
  24. GFinDC
    Hi, I sure know what you are talking about. It's a surprise to find to your body has permanently changed. One nice thing about celiac though is it is one condition where how you choose to live can make a huge positive difference in your health. You can learn to eat very healthily with a gluten free diet. It's just that what is healthy for us to eat...
  25. GFinDC
    Hi Lindsay, If you do a search on gluten and ataxia or gluten and opiates you will find there is a definite connection to affects on the brain. There is no doubt that gluten can negatively affect the brain. Some people think casein can have bad affects on the brain also. Casein is the protein in cow milk. I know I once ate some cheese and couldn't...
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