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Latest Celiac Disease News & Research:
Everything posted by GFinDC
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ARCHIVED 9 mos into diagnosis + still many questions
GFinDC replied to imissdonuts's topic in Coping with Celiac Disease
Hi imissdonuts, Not in any particular order response forthcoming. DH (dermatitis herpetiformis) enjoyers say that reducing iodine in their diets seems to help control the DH symptoms. You can find out more by reading in the DH sub-section of the forum. Fatigue can be caused by many things, including vitamin and hormone issues, as well as celiac...- 3 replies
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- cc-free kitchen
- fatigue
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ARCHIVED Celiac Testing
GFinDC replied to Fbmb's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Hi, The normal process of diagnosing celiac disease is to do blood antibody testing first, and then do an endoscopy to check for small intestine damage characteristic of celiac disease. You should not go gluten-free until all testing is completed. There are several more antibody tests beyond the ttg IGA that can and should be done. The DGP IgA and... -
ARCHIVED endoscopy showed damage
GFinDC replied to kkgirl's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
This article suggests reduced duodenal folds are often indicative of celiac disease. Open Original Shared Link Abstract The loss of duodenal folds visible endoscopically has recently been reported as being a marker for celiac disease. We have investigated the sensitivity and specificity of this finding with a prospective study in ... -
Hi Egs1707, You are probably already aware of nutrient deficiencies that vegetarians need to watch out for. Here is an article that might help anyway. I don't agree with all of it especially the idea that eggs and dairy can provide 't all the vitamin D we need. Many people in the USA are vitamin D deficient already, even people who don't eat vegetarian...
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Maybe its trapped water in your ear? Or maybe an ear infection or allergic reaction to something. Hopefully you aren't a fan of the Braindead TV show... :)
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ARCHIVED Six months in - so many food intolerances, can hardly eat anything
GFinDC replied to strawberrymoon's topic in Coping with Celiac Disease
Hi strawberrymoon, If you are having a blood sugar problem, that can cause nerve damage and tingling. Nerve damage is often associated with diabetes. You can ask your doctor to check your A1C level to get an idea how it has been doing. It would probably help your glucose levels to stick with a paleo style diet, avoiding most carbs. Carbs and... -
ARCHIVED Henry's Hard Orange Soda
GFinDC replied to Cjplmon's topic in Gluten-Free Foods, Products, Shopping & Medications
Hi, It seems they advertise it as a malt beverage. Malt is made from barley normally, so it would not be gluten-free. Unless they specify the malt is corn malt, it is always assumed to be barley malt per FDA labeling regs. -
ARCHIVED Diagnosed today and still don't understand!
GFinDC replied to Steph0903's topic in Coping with Celiac Disease
Hi Steph, Yes, celiac disease can cause a myriad of symptoms and damage to the body, Have you completed all celiac disease testing? Usually they do the blood antibodies test first and then do an endoscopy. You shouldn't go gluten-free until all testing is completed. Gluten is in many processed foods. But if you stick with whole foods it is... -
ARCHIVED Do these seem like Celiac disease symptoms?
GFinDC replied to yams88's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Hi yams88, The first test usually done for celiac disease is the gliaden antibodies tests. They are blood test that look for antibodies to gliaden protein, which is found in wheat. The next test would be an endoscopy to take biopsy samples for microscopic examination. They look for damage to the villi caused by the immune system attack characteristic... -
Hi, you can try reporting your own post. That should alert the site admin of your request. I don't think they can delete your posts, but changing your user name may be possible.
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ARCHIVED Hello new here. I think I may have Celiac Disease
GFinDC replied to pablito's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Hi Pablito, Welcome to the forum! You are right, you should keep eating gluten until the tests are all done. The skin problems you describe ma be a condition only celiacs get. The condition is called dermatitis herpetiformis (DH for short), DH causes an itchy rash that is usually symetrical on the body. You get the rash on both arms or legs... -
ARCHIVED 2 Weeks Gluten Free
GFinDC replied to NickyW-UK's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Hi Nicky, When you first go gluten-free your symptoms often do change. Feeling better or worse is possible. The healing process is a major change in our gut and that means a big change in the gut flora is likely, which can cause symptoms by itself. Additionally the immune system doesn't stop making antibodies on a dime. the immune system keeps working... -
ARCHIVED So could I be right or is he just an idiot?
GFinDC replied to Kricket73's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Hi Kricket, Welcome to the forum! Yes, he could be wrong. Not everyone passes the blood tests. And they are just one part of the diagnostic process anyway, although an important one. Did you have the complete celiac antibodies panel? Anti-Gliadin (AGA) IgA Anti-Gliadin (AGA) IgG Anti-Endomysial (EMA) IgA Anti-Tissue Transglutaminase... -
ARCHIVED Day 2 gluten free diet (testing), diarrhea and pain normal?
GFinDC replied to Mileenabug's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Right, fistulas or fissures are usually associated with Crohns, but not celiac. It is not impossible to have both conditions though. -
ARCHIVED Potential Celiac Diagnosis?
GFinDC replied to jen4az's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Hi Kasia2016, Yes, celiac disease symptoms can vary widely. Some people have no symptoms, we call that silent celiac. Other have difficulty walking (gluten ataxia), skin rashes (dermatitis herpetiformis), and thyroid disease (Hashimoto's thyroiditis). The list goes on and on. GI symptoms can vary widely too, from mild symptoms at times to severe... -
Hi egs1707, Welcome to the forum! Irene is right, you should not be gluten-free until all testing is completed. The celiac disease tests are checking for immune system reactions and damage, and when you go gluten-free that starts to decline. So the tests may not show the true immune reaction that is going on or the normal damage. They may not...
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That's great to hear you are feeling better Nightsky. I really think when our GI systems are in distress already that it doesn't take much to set off symptoms. Once I eliminated the other foods that cause me symptoms that helped a lot too. And added some extra vitamin D to my diet and selenium. Many of us have developed reactions to other foods besides...
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- airborne
- cross contamination
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ARCHIVED gluten free and awaiting a specialist
GFinDC replied to not diagnosed celiac's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Hi not diagnosed celiac, Welcome to the forum! Your doctor should be sent to remedial celiac disease training. Since that probably won't happen, I suggest you find a new doctor. He doesn't know what he's doing when it comes to diagnosing celiac disease. You should not have gone gluten-free before completing all celiac disease testing. The... -
ARCHIVED low carb high fat for weight loss after recent celiac diagnosis??
GFinDC replied to kbear's topic in Related Issues & Disorders
Hi Kbear, I don't consider myself overweight, I just have one of those pleasing gluten-free beer bellies the girls like so much! I was always pretty slim but did put on some weight after going gluten-free. And getting somewhat old-manish. When I first went gluten-free I had one heck of an appetites and ate like crazy for a while. I figure my... -
ARCHIVED Thoughts on symptoms and tests results for my 8 yo daughter
GFinDC replied to bessebc's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Hi Besse, I don't think you posted any IgE test results, right? IgE is the immune reaction for allergies. If she does have an IgE reaction, that is very different from celiac disease which is IgA and IgG related. IgE reactions (allergies) are also more dangerous in the short term. If she is having an IgE reaction to wheat she should definitely not... -
ARCHIVED Gluten free diet = worsened stools, now total D!
GFinDC replied to mark johnson's topic in Coping with Celiac Disease
Hi Ennis_TX, I think you are right about some dairy proteins being able to get past the intestinal barrier at times. You are also right about people having additional food intolerances beyond just gluten. We can develop an intolerance to any food really. I have several myself, and many of the other members have them too. I do think it's a little... -
Hi (Nightsky), Welcome to the forum! I had some similar kind of experiences with getting sick from air odors years ago myself. Once I was at a pizza place with a couple people and just drank a soda and got sick. I figure there was airborne gluten that had landed on the stack of water glasses. Another time I was at a church event and got...
- 21 replies
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- airborne
- cross contamination
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ARCHIVED Gluten free diet = worsened stools, now total D!
GFinDC replied to mark johnson's topic in Coping with Celiac Disease
Hi Ennis, Welcome to the forum! I think you got part of that incorrect. Gluten doesn't get "stuck to the intestinal walls" or caked on. We aren't baking cakes in our guts! Gluten exposure can cause constipation though, but that shouldn't last more than several days or so. The only things left behind in our guts generally is lots of bacteria... -
ARCHIVED Gluten free diet = worsened stools, now total D!
GFinDC replied to mark johnson's topic in Coping with Celiac Disease
Hi Mark, There is usually an endoscopy after the blood antibody tests. You should be eating gluten until the endoscopy is completed and test results received. You may not be able to get a celiac diagnosis without the endoscopy. They should take 4 to 6 biopsy samples during the endoscopy to check them for intestinal damage. If you do have celiac... -
ARCHIVED Have Blood Test Results, but waiting to see doc still
GFinDC replied to Donna-R's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Hi Donna, The DGP (Gliadin (Deamidated) Antibody IgA) Result = Positive means you were positive on one of the antibody tests for celiac disease. You only need to be positive on 1 antibody for a diagnosis. Usually though a doctor will request and endoscopy with 4 to 6 biopsy samples for microscopic examination of gut lining damage to confirm celiac...