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Latest Celiac Disease News & Research:
Everything posted by GFinDC
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ARCHIVED Anxiously waiting
GFinDC replied to Kal's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
You might ask your doctor if they have a standby/wait list Kal. Some do that and then they can fit in people if there are cancellations or no-shows. -
The way to fix food intolerance symptoms is to stop eating the food causing the symptoms. Dark Angel is right, there are very few tests for food intolerances. Mostly we have to test ourselves through diet experiments. Typically an elimination diet of some sort is used. Eliminating food groups is one way, or cutting back to just a few foods and building...
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ARCHIVED Newly diagnosed and totally overwhelmed
GFinDC replied to akohlman's topic in Coping with Celiac Disease
Hi akohlman, It is quite an adjustment. But it isn't a bad change. While you have to give up some foods you may also end up finding other foods you really enjoy. And most likely you will be eating a more nutritious, healthier diet than many of your friends do. Try to stick to whole foods you cook at home for a while. If you want to eat out you... -
A good diet for avoiding type 2 diabetes
GFinDC replied to cristiana's topic in Food Intolerance & Leaky Gut
I hope you do well on your new diet cristiana, whatever it turns out to be. Another site with lots of paleo diet info is Marks Daily Apple. He also lists cooking oils that are good for you vs bad for you to eat. Try searching his site for topics of interest. I am not too interested in the paleo diet backstory as such. But it seems like a good diet for... -
A good diet for avoiding type 2 diabetes
GFinDC replied to cristiana's topic in Food Intolerance & Leaky Gut
Hi cristiana, The paleo diet and the ketogenic diet would probably be helpful to read up on. Snack on protein, not sugar and carbs. You should have protein with every meal. Protein reduces the meal total glycemic index and lengthens the time before you feel hungry again. Sugar and carbs shorten the time to feeling hungry again. Or you could... -
ARCHIVED How do you know what's causing what?
GFinDC replied to kam00096's topic in Coping with Celiac Disease
Hi Kam, If you are going to continue the celiac testing with an endoscopy, you need to keep eating gluten until it's done. It can be hard for vegetarians to keep their vitamin D levels up. This Vitamin D Council link has some good info on ways to boost your levels. Open Original Shared Link -
ARCHIVED Endoscopy in 9 days after being low-gluten for a year. What to eat?
GFinDC replied to KatieKing's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
I agree Katie, the gluten challenge isn't worthwhile for some people. Regardless of your test results, I think you know the answer is not to eat gluten anymore. I hope you recover quickly from the damage. -
Rice cakes and peanut butter. BRM Mighty Tasty Hot Cereal. Eggs fried over sardines.
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ARCHIVED Rectal bleeding and abdominal pain
GFinDC replied to KatieKing's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Hi Katie, You might want to wait a bit after the testing. Make sure the doctors got the results they ordered. Sometimes a lab will lose someones samples and they have to get re-tested. But when you do start the gluten-free diet, it's best to eat whole foods you make yourself. Meat and veggies with some nuts and fruit should be your primary diet... -
ARCHIVED Robinson Crusoe and the lost isle of gluten
GFinDC replied to Jmg's topic in Coping with Celiac Disease
Hi JMG, Your post was long but fun to read. For me anyway. So thanks for taking time to describe your situation! The forum used to have a signature line under each posters name. Often people would list their food intolerances in their signature. Which would be interesting to read for new people. Myself I have quite a few IMHO. I think soy... -
ARCHIVED gluten free and celiac worsens
GFinDC replied to tinyang27's topic in Coping with Celiac Disease
Right, there aren't any quick fixes to celiac disease. It's really helpful theugh to eat a simple diet of home made food, and avoid eating out in restaurants for at least 6 months. Cooking all your own food is helpful because you control the ingredients. Recovery times vary a lot, but 2 weeks is not enough time by a long shot. 18 months to 24 months... -
Peanut butter on rice cakes is a good snack in the mornings. Bob's Red Mill Mighty Tasty gluten-free cereal is good with a few add-ins like peanut butter, banana, Enjoy Life Choc chips etc. There are several gluten-free wraps available, like Rudi's and Food For Life tortillas. Mission brand corn tortillas are gluten-free also. You can make salmon...
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ARCHIVED Rectal bleeding and abdominal pain
GFinDC replied to KatieKing's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Hi Katie, I have bleeding and pain if I eat dairy. Some people react to dairy protein. I think they call it casein sensitive enteropathy. I also have celiac disease and that could explain your vitamin levels being low. I still have low vitamin D levels after years on the gluten-free diet. Another condition you might want to research is Crohn... -
ARCHIVED HELP! should I continue the gluten challenge
GFinDC replied to SunshineSometimes's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Right, if you have DH, you have celiac disease. An Endoscopy may not show anything conclusive because the immune attack is focused on the skin, not the gut. That can change over time though. Open Original Shared Link ... Blood tests for other antibodies commonly found in people with celiac disease—antiendomysial and anti-tissue transglutaminase a... -
There is some good info on the Vitamin D Council website. They say you can't get enough vitamin D from foods (usually), so sunshine or supplements are helpful. Open Original Shared Link
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ARCHIVED New to this--first gluttened exp. How to feel better?
GFinDC replied to DrMommy09's topic in Coping with Celiac Disease
I do Pepto Bismol and aspirin after being glutened. Peppermint tea helps with gas. It really takes very little gluten to cause us to get sick. Flour in the air can linger for hours and settle on dishes etc. But there are some restaurants that seem to work out ok for gluten-free eating. It there is any doubt, I tend to trust side dishes like veggies... -
ARCHIVED Confused and undiagnosed
GFinDC replied to Sonni's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Hi Sonni, it could be celiac disease. You should get your test results from the doctor and see what they have tested for already. Celiac disease testing is best done before going gluten-free, as the tests depend on active antibodies circulating in the bloodstream. There are antibodie tests and also usually as followup endoscopy. In the meantime you... -
ARCHIVED "Green" Stool
GFinDC replied to TheHusky's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Mayo clinic has some info for you: Open Original Shared Link Not sure the chart below is really super useful. It's not from Mayo. -
ARCHIVED Gliadin AB,Deamidated IgA test results
GFinDC replied to Pat Mac's topic in Coping with Celiac Disease
Hi Pat, I think if you were consistently eating gluten it would create a higher number. But maybe you got hit by a little cross contamination somehow. Low amounts of gluten in gluten-free foods can add up to enough to cause a reaction sometimes. Some people re4act to less than 10 PPM. -
ARCHIVED What symptoms after cheating?
GFinDC replied to symphonyofdreams547's topic in Coping with Celiac Disease
Right, the gluten-free diet is a medical diet, not a weightloss/fad diet. If you want to know about glutening symptoms though, you can search the forum for "glutened" or "cheating". There are a lto of threads on the subject already. There are also threads about doing a gluten challenge where people eat gluten in order to be ready for celiac medical testing... -
ARCHIVED Relapse of Symptoms?
GFinDC replied to Babybop's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Right, glutening symptoms can go on for weeks or months. The autoimmune reaction is not dependent on the food still being in your body. Your immune system really doesn't want you to get sick from disease or bugs so it keeps attacking for a while after the threat is gone. That's why it is so important to avoid even trace amounts of gluten in your diet... -
Hi Hanshotfirst, You can eat pizza on the gluten-free diet. There are pizza chains that serve gluten-free pizza. Or you can make your own gluten-free pizza. I agree it's not as easy being celiac as far as eating goes. But you have to live with the hand you are dealt. Maybe in the future there will be treatments like you describe, but they aren...
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ARCHIVED Checkup -- recommended labs?
GFinDC replied to Stacy0w's topic in Coping with Celiac Disease
Seems like you didn't get a response in time Stacy. A full panel would be the best option I think, but it's kinda OBE at this point. How'd the followup go? -
ARCHIVED Celiac?
GFinDC replied to Buckeye3's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Hi Buckeye, You need to keep eating gluten for the celiac testing to be accurate. The celiac tests are for antibodies produced as a reaction to eating gluten. So if you aren't eating gluten the antibodies can start to drop off in the blood stream and are harder to detect. Here is a list of some the antibodies tests they might do. Celiac... -
ARCHIVED Celiac.com: Celiac Disease Screening An Uncertainty
GFinDC replied to Scott Adams's topic in Publications & Publicity
Dang it, left some comments on the draft and the server hosed up and wouldn't take them. They were really great comments too. Rats!