Jump to content

GFinDC

Advanced Members
 View Profile  See their activity

  • Posts

    6,047

  • Joined

  • Last visited

  • Days Won

    112

 Content Type 

Profiles

Forums

Events

Blogs

Latest Celiac Disease News & Research:

Everything posted by GFinDC

  1. GFinDC
    Here's what it looks like on Firefox on Windows Karen. All Time top poster is Irene with 15 posts. Top poster for the year is Scott with 22 posts. He kind of out did himself this year! Cycling Lady didn't quite make it to the monthly high poster level. The numbers just don't make sense with the titles above them. They actually don't make sense at all...
  2. GFinDC
    The "Top Posters" listing at the bottom of pages seems a little off. Headings don't seem to make sense with the number counts below them.
  3. GFinDC
    Hi Cash's Mom, It could be you are reacting to some4thing besides gluten. The old standby treatment is an elimination diet. They generally always work if it is a diet related issue. Sometimes our bodies develop reactions to other foods. Possibly related to the irritation of the gut lining over a long period of time. Any of the top 8 food allergens...
  4. GFinDC
    Hi Hagedorns, I am not sure what the dual antigen test is. Did they do the DGP tests? The doctor comment on IgA doesn't make sense. If the total IgA is low then IgA is not a valid test for celiac. Maybe you should try a different doctor.
  5. GFinDC
    Hi Cash's Mom, It's possible the supplements he recommended are not gluten-free. You may be able to find out by checking the maker's website, or emailing them. The supplement industry in the USA is not well regulated, so it's a bit tricky to find good, safe products. You could try searching the forum for brands people have found safe in the past....
  6. GFinDC
    French fries or any fried foods at a restaurant are risky. Sometimes there is only one fryer and they use it for breaded foods. So the oil is contaminated with gluten. Even if they have multiple fryers unless they dedicate one fryer to gluten-free only it's no help. Sometimes side dishes are a better bet. Creamed corn or green beans, fruit etc. Pepto...
  7. GFinDC
    I think there's also a thing where people who have dermatitis herpetiformis will sometimes test negative for celiac disease. A negative blood test does not mean you definitively don't have celiac. The tests are not 100% perfect. Some people don't make a lot of IgA antibodies anyway so they won't show positive on IgA tests. You could go ahead and make...
  8. GFinDC
    Sometimes a doctor will give vitamin shots if they think the need is urgent. Taking sub-lingual vitamins is helpful too. I didn't get shots, but my doctor had me start on 5000 MG of Vitamin D a few years ago..
  9. GFinDC
    Welcome Dawn! Since celiac disease interferes with the ability to absorb vitamins, it can cause nerve problems. It's a good idea to be tested for vitamins levels at the beginning of the gluten-free diet, so we know if we are lacking any. Some people are low in B vitamins, and that can cause nerve issues. Which could cause gastroparesis. So might be worth...
  10. GFinDC
    Hi Holly, Sugars, starches and dairy can cause problems. If you can avoid the gluten-free baked goods for a while that might help. It is helpful to follow a really simple whole foods diet at first. Meat and veggies, nuts, and a little fruit. The simpler your diet is the easier it is to identify a problem food. Sometimes the issue is just healing...
  11. GFinDC
    Hi Matt, Celiac disease might be the problem. The testing doesn't always find people who have celiac disease. Below is a list of the blood antibodies they test. You should stay on gluten until all testing is completed. If you stop eating gluten before the testing the results won't be accurate. Celiac disease antibodie tests Anti-Gliadin...
  12. GFinDC
    Hi Charity, Your symptoms sure sound like celiac disease. Being shorter than most family members can also be a symptom. Celiac disease impacts our ability to absorb nutrients so growth can be retarded. You should stay on gluten until all testing is completed. The antibodies decline if you stop eating gluten and then the testing is not accurate. ...
  13. GFinDC
    Hi, yes, it won't hurt anything to get tested. They test by taking a small biopsy sample of skin next to a blister/lesion, and analyze it for IgA antibodies. At least I think that's right. There is more info in the dermatitis herpetiformis section of the forum.
  14. GFinDC
    Hi Erica, Karen Lynn is right, don't stop eating gluten before all testing is completed. We have even had posters who completed all testing and then started on the gluten-free diet. And then the doctor or lab lost the test results and they had to start all over eating gluten and getting re-tested. Starting back on gluten after you have quit for a...
  15. GFinDC
    Welcome to the forum Treeece68! You may not get many response since this is an old thread. But we are glad to help you with questions.
  16. GFinDC
    Hi BabyBop, Going gluten-free may seem a little overwhelming at first. But in time that will pass as you learn and adapt. It is easy to make mistakes on the gluten-free diet at first. So it does help to start by avoiding restaurants and instead mostly eating food you cook yourself. Carrying nuts, fruits, and snacks around is a good idea, especially...
  17. GFinDC
    Hi TripleB, There are lots of reasons people try the gluten-free diet these days. Some of them because they have symptoms that might be helped, others because it is trendy or whatever. Sometimes it works out that the gluten-free diet is a big help to a person and they don't test positive on the antibodies. They call that NCGS (non-celiac gluten sensitivity...
  18. GFinDC
    I am sorry to hear that Bartfull. But there is definitely a better place to be than here. I said a prayer for you in Jesus name. I hope you enjoy your time remaining here. It's been great having you around the forum helping us out.
  19. GFinDC
    I've read good things about those mills in the past. I got a Country Living Mill, manual crank version. Seems to work purty good. I just need to find someone to turn the handle now...
  20. GFinDC
    Hmm, I have some information of dubious value to share. First off, I tried making rice flour with an old Hobart grinder I got off E-Bay a few years back. It worked fine for pea flour and bean flour but with rice it just came out too gritty. The rice is harder to grind up for some reason. I am talking an old grinder maybe 30 years old tho. I just got...
  21. GFinDC
    The Foster Farms gluten-free corn dogs don't agree with me, probably because of the soy flour in them. You should try and eat more whole foods and forget the processed gluten-free things for a while. Also are you sure the pizza dough you are using is gluten-free? And the sauce etc? Even some flours that you would think are naturally gluten-free like corn...
  22. GFinDC
    Yep, you need to get tested first before starting the gluten-free diet. The blood antibodies are usually tested first and then an endoscopy is done to check for intestinal damage. If you stop eating gluten before the testing it causes the immune reaction to decrease and the antibodies to decline. So the tests for antibodies are not going to be much use...
  23. GFinDC
    That's funny, I do have periods where I'm crazy hyper and I can't stand to take my meds, and those are usually times when I'm feeling good otherwise and carefully gluten free. My endo didn't believe me when I told him! I never thought of chewing the medicine, I may give that a shot! Oops, right, you said as much in your first paragraph! Sorry....
  24. GFinDC
    Hi physicsgirl, Another possibility for the thyroid issues is Hashimoto's Thyroidits. Hashi's is an autoimmune attack on the thyroid gland. It can cause swelling of the thyroid (front/sides of throat area) and some pain and possibly fever feeling around the neck. There is an antibody test for Hashimoto's. Hashimoto's seems more common among celiacs...
  25. GFinDC
    Hi SWG, I suggest you go back on eating gluten and get the blood antibodies tests done. It does sound like you had a positive reaction to stopping gluten. But it is good to know for sure if you have celiac disease or not. It's easier to stay on gluten until the testing is done. The tests aren't accurate if you aren't eating gluten. The follow...
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.