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GFinDC

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Everything posted by GFinDC

  1. Hi Sally, I don't know what test he did, but it is likely an ANA spot test. The ANA test can show some autoimmune problems, but it won't diagnose celiac disease. Celiac disease is diagnosed by anti-gliaden antibodies (AGA) in the bloodstream, and a positive endoscopy showing immune damage to the gut lining. So, the ANA isn't a bad test to do, it just...
  2. Hi tammi, Welcome to the forum! I am putting in a link to the newbie thread in the Coping With section of the forum. It has some info for celiac newbies that might help you. If your symptoms are that bad, then it makes sense not to eat gluten and to treat it as celiac disease IMHO. Celiac disease testing isn't perfect and people do fall through...
  3. Welcome to the forum Eastie! I have screws in my elbow from breaks. They do the same thing for me, have me take antibiotics before a dental procedure. At least my old dentist did, now that I moved my new dentist isn't concerned about it. I don't like to take antibiotics myself. but Dr's are such nervous Nellies about these things. Anyhow, I hope...
  4. Sorry about the bad link to the FDA article. Here is a good link to it. Open Original Shared Link and Open Original Shared Link
  5. I agree, it can go either way, weight gain or weight loss. We have had people who were heavy at diagnosis and they lost weight. Not everyone is skinny with celiac disease. Also, healing the gut can take months to years. So it isn't easy to gain weight for some people. We are all individuals and our bodies react individually. High protein foods are...
  6. Well of course, dogs are notorius for smelly comments! Here's list of the more common antibody tests. Anti-Endomysial (EMA) IgA Anti-Tissue Transglutaminase (ttg) IgA Deamidated Gliadin Peptide (DGP) IgA and IgG Total Serum IgA
  7. The endoscope can only see about 5 feet into the beginning of the small intestine. That leaves 17 feet of unexplored country. So, there is an assumption by the doctors that the remaining 17 feet match the first 5 feet that is visible. Which is just that, an assumption. I guess 5 feet is better than nothing, but it doesn't tell the whole story IMHO.
  8. Quaker rice cakes with Jif Natural peanut butter. Bob's Mighty Tasty gluten-free Hot cereal. Banana and apple. Bacon, bacon, bacon! Anything you'd eat for lunch or dinner too. Leftovers are good for breakfast.
  9. Meat- any meat. Beef, chicken, fish, pork. Polar sardines and canned mackeral for Vitamin D. Veggies- corn, peas, broccoli, lettuce, rice (Quaker rice cakes and Jif Natural peanut butter for breakfast), sweet potatoes, greens, cauliflower, cabbage, beans (Bush's canned beans seem the most digestable for me), avocado, watermelon, cantalope, pumpkin. eggs...
  10. Good going Sally! Shoot, I think it took me about 6 months to sort out the gluten-free diet as a newbie. That's a bummer they won't do the blood test now. Did the doctor have any comment on the Biocard test? I am guessing they would want to see the Biocard test done in their office before they would accept it. I think the Biocard tests are really useful...
  11. Hi Ironictruth, My sister has had a rib pop out of joint. I don't know if it made a pop sound or not. It did cause some pain though.
  12. Hi Holistichealth, The university of Chicago celiac center recommends 2 weeks of eating gluten before the endoscopy, and 12 weeks of eating gluten before the blood antibodies test. They also recommend 1/2 slice of bread a day for the challenge period. You don't need to eat a lot of gluten each day, just that 1/2 slice of bread or equivalent.
  13. Hi Sally6, The Biocard results are good for a certain number of minutes, after which they aren't reliable, per the test kit instructions. That doesn't mean you don't have celiac disease though. The Biocard test only measures one antibody type. There are several more in the complete celiac disease antibodies panel. If you can get your physician to...
  14. You might find an answer on this site about vitamin D. Welcome to the forum! Open Original Shared Link
  15. Hi Jon, It may take a while for symptoms to get better. I think it's helpful to avoid most carbs and sugar the beginning because they can cause bacteria to have a little happy gut gas party and cause pain. Eating plain foods without much spice is probably good too. Your gut is trying to heal itself and we need to help it out by not loading it down...
  16. Congrats on getting through the gluten challenge EGS1707! That's not easy to do! I hope your GI does take biopsy samples for review. Sometimes they don't. You might want to verify they are planning to do 4 to 6 biopsy samples. Some of the damage characteristic of celiac disease is microscopic, so naked eye inspection doesn't always tell the tale.
  17. Hi swimtohawaii, Your symptoms do sound like they could be caused by celiac disease. And you may have had it a long time. Symptoms can suddenly get worse even after a long period of not being noticeable or very bad. Lactose intolerance is associated with celiac disease because the damage to the intestinal villi affects the ability to digest lactose...
  18. Hi jonnyboy, you may be thinking about dermatitis herpetiformis (DH). DH is an itchy rash of small welts that is usually symetrical on the body. It is caused by antibodies building up in the skin. There is a section of this forum dedicated to DH. My understanding is part of the treatment for DH is avoiding iodine, at least while the rash is active...
  19. Hi Michaela!, Your doctor is right, you need to be eating gluten for several weeks before an endoscopy test. For the blood antibody tests you need to eat gluten for 12 weeks. But it depends on how long it has been since you went gluten-free. If it was more than a few weeks, you may not have enough antibodies in the bloodstream to be detected. I...
  20. Hi Lauryn, Do you know what tests they did for celiac disease? There are several antibodies that are part of the complete celiac disease test panel. But often a doctor will do only the initial ttg IgA screening test and call it a day. The ttg IgA is a good test, but it doesn't catch every celiac. Maybe you can get a copy of your test results for...
  21. Right, hypothyroidism can lead to weight gain, depression, fatigue etc. My comment wasn't about just hypothyroidism though. Hyperthyroidism can cause the things you mentioned and also racing heartbeat, quick temper, irritability, facial flushing, and bulging eyes. The thyroid has a big effect on our bodies.
  22. Most chocolate has dairy in it and also soy. So if you are reacting either of those they could be the issue. Enjoy Life makes dairy free, soy-free chocolate chips. Baker's Secret plain unsweetened chocolate bars have no soy or dairy also. If it's not the chocolate the next most likely problem ingredient would be the flour mixture. One of the ingredients...
  23. Hi acountrygirl75, Your throat closing could be an allergic reaction. I suggest you get tested for allergies to wheat, and anything else on the pizza that might cause a reaction. Allergies can be deadly and should not be treated lightly. I am not sure why you ate pizza, as regular gluteny pizza is a big no-no for celiacs. Your immune system doesn...
  24. Hi Gabriel, Can you find another doctor to work with? Maybe look on the internet for a doctor who is familiar with celiac disease in your area? Sometimes hospitals have celiac centers that can help.
  25. Hi Bryan, Welcome to the forum! Your symptoms could be from celiac disease. What were the celiac tests that they did? Were they positive for gliaden antibodies? The usual testing process is a blood test for antibodies, followed by an endoscopy to check for damage in the small intestine. Celiac disease can cause mal-absorption of nutrients...
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