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Scott Adams

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by Scott Adams

  1. Scott Adams
    If you can stay on a gluten-free diet without a formal diagnosis, then you may wish to forgo further testing, especially if your symptoms go away on the diet. Some people want a formal diagnosis to help them stay on the diet. Your symptoms definitely could be caused by either celiac disease or non-celiac gluten sensitivity--approximately 10x more people...
  2. Scott Adams
    How to convince...there is this:
  3. Scott Adams
    If a formal diagnosis will help him stay on the diet, then it might make sense to pursue it, however, his future results might still put him in the "limbo zone" between celiac disease and NCGS. Either way, it sounds like he should remain gluten-free.
  4. Scott Adams
    Might be easier to keep it in the same thread... The biopsy results you provided indicate that there is no damage to the villi in the small intestine, and there are no increased intraepithelial lymphocytes. This finding suggests that there is no significant damage to the intestinal lining at the microscopic level, which is often seen in celiac disease...
  5. Scott Adams
    Let us know how it goes... This article might be helpful. It breaks down each type of test, and what a positive results means in terms of the probability that you might have celiac disease. One test that always needs to be done is the IgA Levels/Deficiency Test (often called "Total IGA") because some people are naturally IGA deficient, and if this...
  6. Scott Adams
    Unfortunately for many people getting a "concrete diagnosis" isn't feasible, or may not be safe. Some people just have symptoms that are so bad that it would be dangerous for them to eat two slices of wheat bread for 8 weeks. Many people do get all the tests, but have mixed results, for example a positive blood test, but a negative biopsy, or vice versa....
  7. Scott Adams
    Yes, the TTG IgA test is elevated, which can be a concern, especially given his symptoms. The doctor may want to schedule a biopsy, but maybe not since it wasn't above the positive level. If your doctor decides not to do any further testing for celiac disease, then it might make sense to just try a gluten-free diet. Approximately 10x more people have non...
  8. Scott Adams
    If your doctor recommends a two week gluten challenge, definitely do that. Most people with DH aren't willing to go through such a challenge due to the uncomfortable symptoms, and how long it can take DH to go away after going gluten-free. In any case, let us know how it goes.
  9. Scott Adams
    Many people with celiac disease, especially those who are in the 0-2 year range of their recovery, have additional food intolerance issues which could be temporary. To figure this out you may need to keep a food diary and do an elimination diet over a few months. Some common food intolerance issues are dairy/casein, eggs, corn, oats, and soy. The...
  10. Scott Adams
    You don't need to be anemic to have celiac disease, although it can be a fairly common symptom. Unfortunately you should not have gone gluten-free before the tests, and having done so could definitely have skewed your results and possibly created false negative results. Did you notice any symptom improvements since you've been gluten-free? It may be...
  11. Scott Adams
    I think you need to determine why a formal diagnosis would be important for you--would this be the only reason for you to stay 100% gluten-free, for example? It seems that you've already determined that you have a sensitivity to gluten--approximately 10x more people have non-celiac gluten sensitivity than have celiac disease, but there isn’t yet a test f...
  12. Scott Adams
    Approximately 10x more people have non-celiac gluten sensitivity than have celiac disease, but there isn’t yet a test for NCGS. If your symptoms go away on a gluten-free diet it would likely signal NCGS.
  13. Scott Adams
    I agree with @trents and if you are sensitive to gluten it could cause the issues you've described.
  14. Scott Adams
    @Sobiha this is a very common story. I'm not sure how closely you watched all of the preparation of the dishes, but it's also possible that things got cross-contaminated even before the dishes were put in the oven.
  15. Scott Adams
    I believe you are asking here how you can line your stomach well to prepare for drinking lots of alcohol, is that right? Normally eating a hearty meal with potatoes and meat will help with that, and then drinking lots of water while you are drinking alcohol.
  16. Scott Adams
    Is there any way you can list his blood test results, along with the reference ranges? Sorry but they way you've written it makes it hard to know the important information about his results. For example, I can't be sure exactly which TTG tests were done, were they TTG-IgA? Was a total IgA test also done?
  17. Scott Adams
    Normally 1/2 pound of been per person, so this would likely serve 4-6 people.
  18. Scott Adams
    I believe a biopsy for DH can be done whenever the blisters appear, and it's important to note that the dermatologist must follow a specific protocol for how to collect any samples--I believe skin samples must be taken right next to a blister.
  19. Scott Adams
    The most common nutrient deficiencies associated with celiac disease that may lead to testing for the condition include iron, vitamin D, folate (vitamin B9), vitamin B12, calcium, zinc, and magnesium. Unfortunately many doctors, including my own doctor at the time, don't do extensive follow up testing for a broad range of nutrient deficiencies, nor recommend...
  20. Scott Adams
    All distilled alcohol is considered to be gluten-free, so I'm not sure what in the drink might make you sick.
  21. Scott Adams
    I find it very strange that your son's doctor would dismiss his positive DGP IgG test results (47.5 HIGH -normal <20), especially given that he has low IgA (this test is for those with low IgA). As the article states: I find it even more strange that this doctor would also dismiss his positive celiac disease biopsy results, given that he had highly...
  22. Scott Adams
    I think natural IGA deficiency. Yes, it's possible that one or more of the other blood tests you had would have been positive, if you do indeed have IGA deficiency.
  23. Scott Adams
    PS - There are MANY people on this forum who had a single positive blood test for celiac disease, and a negative biopsy, or vice versa. Unfortunately many doctors simply say "no celiac disease, you can keep eating gluten," but that does not explain the whole picture. People like this are in the grey area where they could still have non-celiac gluten sensitivity...
  24. Scott Adams
    It really only takes one positive blood test for celiac disease for you to reach the next step in diagnosis, which is the endoscopy/biopsy for celiac disease, which I believe that you already had done twice (I assume the reason you did the endoscopy was due to your positive blood test). Your biopsy results were negative, meaning that you likely don't have...
  25. Scott Adams
    Your test result was still positive, so I'm not really sure how helpful doing a new total IGA test would be at this point. If you had natural IGA deficiency then it is possible that: 1) This test result might have been higher--it possibly could have been a solid positive or high positive: "Deamidated Giladin Abs, Iga was a weak positive of 27." ...
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