
Scott Adams
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Everything posted by Scott Adams
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TTG IGA results - Confused?
Scott Adams replied to LDawn89's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Hi Lyndsay, welcome. Normally blood test results include some sort of scale, so there is your score, and then a range showing where you landed for a test. Do you see this with your results? -
NEW TO CELIAC DISEASE
Scott Adams replied to Slayxbella's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
There seems to be not good way of maintaining an optimal level of hookworms in every individual, and to me it seems like you go by celiac or other symptoms to determine this for yourself. You may have too many at times, which might not be healthy, or too little, which also might not be too healthy. I say just go gluten-free, which is 100% correct for anyone... -
This part makes no sense at all to me. Why would there be a 10 ULN cut off on the upper end? So if you have 11 ULN - 70 ULN you can't get a biopsy...but if his reading was 2 ULN lower he could? I don't understand this at all. It makes no sense, and his blood test results so far would clearly lead to an endoscopy in every other country that I know of.
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I agree with @trents and have never heard such a bizarre set of rules for celiac disease diagnosis. Your son has clear symptoms, and has tested positive on multiple tTg-IgA blood tests, and does not have IGA deficiency--why on Earth would any doctor recommend that you keep feeding him gluten? Please ask your doctor to point you to the written recommendations...
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If he has tested positive 3 times with a tTg-IgA blood test, why is he still eating gluten? The test results you mention here: "12 U/ml with 7 or under being normal which is down from 76 last year" are not "low to mild" positives--they are strongly positive. If he had a reading of 76 last year, and the cut off was the same at 7 (not sure but be sure to check...
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The following two lists are very helpful for anyone who is gluten sensitive and needs to avoid gluten when shopping. It's very important to learn to read labels and understand sources of hidden gluten, and to know some general information about product labelling--for example in the USA if wheat is a possible allergen it must be declared on a product...
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PS - Were you eating at least two slices of bread daily for 6-8 weeks before your blood test, or 2 weeks before your endoscopy? We've heard over and over in this forum from people who were not told to eat at least two slices of bread daily for 6-8 weeks before a blood test for celiac disease--which is the standard protocol for the tests. Many people go gluten...
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What tests were done for celiac disease? Unfortunately test results for celiac disease are not always definitive, and many errors can be made when doing an endoscopy for celiac disease, and they can happen in many ways, for example not collecting the samples in the right areas, not collecting enough samples, or not interpreting the results properly...
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Being both gluten-free and vegan can be very challenging in terms of maintaining a well-balanced and nutritious diet. Things like eggs and cheese would add a lot of nutritional options. Will your healthcare pay for a nutritionist to help you with your diet? If I were in your situation I think I would see if it is possible for you to prepare all of your...
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GLUTEN FREE CHALLENGE FOR BIOPSY
Scott Adams replied to STE9900's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
In general if you see "gluten-free" on a label in the USA, Canada, Europe, Australia, etc., it does mean that the food is safe for those with celiac disease, and it does NOT mean that there is 19ppm gluten in it, as some people might lead you to believe. Whenever a company detects gluten in the 5-19ppm (most tests can't accurately go below 5ppm) in...- 18 replies
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- biopsy
- blood test
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GLUTEN FREE CHALLENGE FOR BIOPSY
Scott Adams replied to STE9900's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Let me ask you this...let's just say that you did a gluten challenge for 6-8 weeks, got a biopsy, and it was negative...would you start eating gluten again? From your description I doubt it. I would just tell them that you're satisfied with the diagnosis, you've gone gluten-free and are feeling much better--which itself is confirmation that you have non-gluten...- 18 replies
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Can Gluten in Orthodontic Retainers Trigger Ongoing Celiac Symptoms?
Scott Adams commented on Jefferson Adams's article in Additional Concerns
This is a chemical resin called methyl methacrylate (MMA) used in many dental plastics. -
2.5 year old son diagnosed with DH and celiacs . . . .
Scott Adams replied to Carianne's topic in Dermatitis Herpetiformis
I'm sorry to hear about your son! This article may be helpful: -
The first-of-its-kind study was conducted in Israel by KSM - Maccabi's Research and Innovation Center. The results were published in the peer-reviewed journal Viruses. TEL AVIV, Israel, Oct. 24, 2023 /PRNewswire/ -- A retrospective study undertaken by Maccabi KSM Research in Israel has revealed that the Pfizer COVID-19 vaccine offers the same level of...
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traveling on a school trip on a tour of europe
Scott Adams replied to lucy power's topic in Traveling with Celiac Disease
Do you know yet which countries you will visit? -
NCA ROCK Virtual Meet-Up for High Schoolers
Scott Adams posted an event in Gluten-Free Community Calendar
untilIf you are a teenager with celiac disease or a gluten-related condition, hop on this virtual meet-up to meet other people like yourself. On the 3rd Tuesday of every month, NCA’s teen volunteer, Soni Patel, will lead this meeting to discuss a...