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Scott Adams

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by Scott Adams

  1. Scott Adams
    Hopefully others will reply here, as we've had many people here with both issues: https://www.celiac.com/search/?q=Sjogren&quick=1&type=forums_topic
  2. Scott Adams
    My shoulders and neck issues, with tingling sensations happened mostly while I was working on a computer, which made me believe that they were not related to gluten ataxia. The most common nutrient deficiencies associated with celiac disease that may lead to testing for the condition include iron, vitamin D, folate (vitamin B9), vitamin B12, calcium...
  3. Scott Adams
    Yes, but it can be more costly than supplements. Drinking a good quality mineral water is an excellent way to get certain minerals, and most publish their mineral content on the bottle and/or web site.
  4. Scott Adams
    Best to link to the actual study, which isn't about the vaccine, but is about SARS-CoV-2 PCR-positive patients...a big difference. It's important to get information about vaccines from a good source, and not a bad one. This study does not show that the vaccine causes this, but may happen in those with covid-19, and the more severe the case of covid-19, the...
  5. Scott Adams
    It looks like your daughter has the genetic possibility to get celiac disease, but her tTG IgA test was negative. This article might be helpful. It breaks down each type of test, and what a positive results means in terms of the probability that you might have celiac disease. One test that always needs to be done is the IgA Levels/Deficiency Test...
  6. Scott Adams
    It's amazing that you were diagnosed way back in 1967! Many doctors still get this wrong, so it's great to hear that you've been able to stay healthy all these years.
  7. Scott Adams
    This article might be helpful:
  8. Scott Adams
    How long have you been gluten-free? Many people with celiac disease, especially those who are in the 0-2 year range of their recovery, have additional food intolerance issues which could be temporary. To figure this out you may need to keep a food diary and do an elimination diet over a few months. Some common food intolerance issues are dairy...
  9. Scott Adams
    I had red elevated skin patches which were where the blisters popped up.
  10. Scott Adams
    We've had similar reports, this thread may be helpful:
  11. Scott Adams
    I just want to mention that we have "Clubs" on this forum, and one could, for example, create a South African Celiac Club here: https://www.celiac.com/clubs/
  12. Scott Adams
    I'm not a dermatologist, but the images you posted certainly look like they might be DH. My DH presented with tiny hard, clear blisters, which were the most itchy areas.
  13. Scott Adams
    This study indicates that a majority of celiacs don't recover until 5 years after diagnosis and starting a gluten-free diet: Mucosal recovery and mortality in adults with celiac disease after treatment with a gluten-free diet However, it's also possible that what the study really shows is the difficulty in maintaining a 100% gluten-free...
  14. Scott Adams
    It's possible you have celiac disease, but since you can't eat gluten long enough to be tested it's hard to know for sure, and I mention this only because you could also have non-celiac gluten sensitivity--one causes villi damage and the other doesn't. Has your diet been 100% gluten-free? Do you eat out in restaurants? If so, you may be getting contamination...
  15. Scott Adams
    I use magnesium citrate from Costco, and I had symptoms similar to yours for many years after going gluten-free. The most common nutrient deficiencies associated with celiac disease that may lead to testing for the condition include iron, vitamin D, folate (vitamin B9), vitamin B12, calcium, zinc, and magnesium. Unfortunately many doctors, including...
  16. Scott Adams
    It is unfortunate that your doctors seem to resist a blood screening for celiac disease...just the fact that your father has it should be enough for them to screen you--first degree relatives should always also be screened for celiac disease an an annual basis. This article may also be helpful:
  17. Scott Adams
    We have many articles on this topic in this category, and you may find some of them helpful: https://www.celiac.com/celiac-disease/celiac-disease-amp-related-diseases-and-disorders/fertility-pregnancy-miscarriage-and-celiac-disease/
  18. Scott Adams
    In the Europe the new protocol for making a celiac disease diagnosis in children is if their tTG-IgA (tissue transglutaminase IgA) levels are 10 times or above the positive level for celiac disease. According to the latest research, if the blood test results are at certain high levels that range between 5-10 times the reference range for a positive...
  19. Scott Adams
    Having most or all symptoms go away after going 100% gluten-free for several months to a year would likely indicate non-celiac gluten sensitivity at the least, and possibly celiac disease/DH.
  20. Scott Adams
    Are you confident that your diet has been 100% gluten-free? Do you eat out in restaurants? This can be a source of regular contamination. It might make sense to do another celiac disease blood panel to see if your antibody levels are high, which might indicate that your diet isn't fully gluten-free. This article has some detailed information on how...
  21. Scott Adams
    I think it would be good for you to try to contact the person there in charge of this special area and ask them some questions around their training, and how they eliminate cross-contamination.
  22. Scott Adams
    Given the issue with 23 and me and their recent data breach, I would no longer recommend them. Which new test do you mean? Can you post a link?
  23. Scott Adams
    It seems strange that it would not go lower if he's strictly gluten-free, but if he has an issue with casein/cow's milk that is keeping those antibodies high, then the best way to find out would be to eliminate dairy for a month or two and get re-tested. Just in case, this article has some detailed information on how to be 100% gluten-free, so it may...
  24. Scott Adams
    Have you ever been screened for celiac disease? If your doctor says you have intestinal inflammation it would be a good idea to get screened. Do you have other symptoms that might point to celiac disease? You are in a celiac disease forum, so I am just wondering how your symptoms fit in here.
  25. Scott Adams
    Does he include milk/dairy in his diet? There have been studies which have linked elevated tTg with dairy in some people:
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