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Scott Adams

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by Scott Adams

  1. Scott Adams
    I would check with the City of Austin to see if you are able to start out in your home kitchen. Our city changed its rules during the pandemic to allow such home business. Another option might be to see if the city has a commercial kitchen you can rent time in--my city used to offer this but ended it a couple of years ago. The last option might be to find...
  2. Scott Adams
    It's great that you finally figured it out. Unfortunately most people who have it are still undiagnosed. Unfortunately test results for celiac disease are not always definitive, and many errors can be made when doing an endoscopy for celiac disease, and they can happen in many ways, for example not collecting the samples in the right areas, not collecting...
  3. Scott Adams
    To be fair, I'm think Ron Hoggan was not anti-carb as much as anti-grain--but he is definitely anti-refined carbs, and lower carbs in general (but leans toward complex carbs). He also never claimed that this would cure celiac disease, as does Elaine Gotschall in her book--she actually claims that her diet can cure celiac disease.
  4. Scott Adams
    Can I ask how old your son is? I ask this because I dealt with a situation a few years back where my daughter, who I thought was 100% gluten-free and ok with her diet, started having symptoms again. It turned out that after she started high school she would cave in to peer pressure, or feel like she wanted to fit in, and would eat the pizza, hamburger, etc...
  5. Scott Adams
    If you don't plan to do more testing for celiac disease and/or DH, then trying a gluten-free diet makes sense. If you do plan on more testing then you may want to wait until all testing has been completed. Most tests for celiac disease and DH require you to be eating gluten daily in the weeks leading up to the tests.
  6. Scott Adams
    This is an interesting study, thank you for sharing it. What it may in fact show is the difficulty in maintaining a 100% gluten-free diet. I suspect that if you looked closely at the diets of those who did not recover within 2 years that their diets were not 100% gluten-free. Perhaps they ate out more often, or didn't understand all of the hidden ingredients...
  7. Scott Adams
    @dixonpete sent me a personal message with: Thanks for the clarification/reminder--so you've never been diagnosed with celiac disease, which means that you may not have it at all, and might have the more common non-celiac gluten sensitivity (NCGS). This is a very good reason why you should avoid promoting hookworm treatment instead of the gluten-free...
  8. Scott Adams
    Thanks, please let us know what you find out!
  9. Scott Adams
    I hear IHOP puts pancake batter into their scrambled eggs...I avoid any place that would do something like that!
  10. Scott Adams
    If you have DH you will likely also want to avoid iodine, which is common in seafoods and dairy products, as it can exacerbate symptoms in some people. This article may also be helpful:
  11. Scott Adams
    None of anything you've said so far justifies the need for @dixonpete to eat gluten--nada. The safe bet, given the lack of science supporting the safety of someone with celiac disease being able to eat gluten again after hookworm infection, is to not eat gluten--the scientific studies done so far also support this position. The only real excuse I hear is...
  12. Scott Adams
    I've not tried them, but from your description they don't offer a gluten-free bun, is that correct? Perhaps you could try bringing in your own bun, and to me Trader Joe's gluten-free buns are the best. Here in California my favorite is In-N-Out Burger, and they do a "protein wrap" burger with lettuce, or I sometime order that and bring my own bun.
  13. Scott Adams
    A lot of people say the same thing about me and celiac disease…but I don’t claim to know more about how to conduct celiac disease studies than true experts and trained scientists, and apparently he does.
  14. Scott Adams
    Don't forget to add that there is absolutely zero science that supports long-term remission of celiac disease in those with hookworm infection who eat gluten daily. I'd need to see long-term studies--several of them that last 5 years or more and include hundreds of participants--before I could be convinced that this is a reasonable alternative treatment for...
  15. Scott Adams
    The most common nutrient deficiencies associated with celiac disease that may lead to testing for the condition include iron, vitamin D, folate (vitamin B9), vitamin B12, calcium, zinc, and magnesium. This article may be helpful, and hopefully others like @knitty kitty and @Wheatwacked will also chime in here, as they know a lot about the effects of vitamin...
  16. Scott Adams
    Doctors who are experts on celiac disease (and much research that has been done on celiac disease) will tell you that you cannot judge the impacts that celiac disease has on your health based on your symptoms alone. Only regular celiac disease blood panels and endoscopies can tell for sure if the hookworms have "cured" you, but you don't do this follow up...
  17. Scott Adams
    This is just a guess, but the Tissue Transglut Ab: 9 (0-5 normal) might be the tTG-IgG (tissue transglutaminase IgG) Blood Test for Celiac Disease here: There are two types of tissue transglutaminase tests, and perhaps she was positive on the IgG?
  18. Scott Adams
    This article has some detailed information on how to be 100% gluten-free, so it may be helpful (be sure to also read the comments section.):
  19. Scott Adams
    This article might also be helpful:
  20. Scott Adams
    This article might be helpful:
  21. Scott Adams
    I eat grilled cheese sandwiches once in a while--just with gluten-free bread. I doubt you'd know it was gluten-free, as gluten-free products have vastly improved over the last 25 years, and have dropped in price, and become widely available. I get my bread at Costco for ~$5 a loaf.
  22. Scott Adams
    For those with symptoms I agree with you, but many people don't have symptoms, or have few, seemingly unrelated symptoms. For those with symptoms I wish the protocol were a positive blood test followed by a gluten-free diet--if the symptoms go away make the diagnosis, possibly after a genetic test.
  23. Scott Adams
    I believe that some of my ataxia/nerve issues lingered for a couple of decades, not because I wasn't gluten-free, but because I wasn't supplementing properly. After including magnesium citrate and other supplements around five years ago, most of the issues I had, including tingling and numbness in my feet, have subsided.
  24. Scott Adams
    For your Endomysium IgA Ab results, the reference range says <1/10, and your score was 1.5. This is somewhat confusing. Was that test negative as well? Is over 1 positive? I just can't tell by how this is shown. Perhaps positive would be over 10? Approximately 10x more people have non-celiac gluten sensitivity than have celiac disease, but there...
  25. Scott Adams
    This article may be helpful:
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