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Scott Adams

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Everything posted by Scott Adams

  1. Scott Adams
    I believe you meant to say here that gluten was boiling at your sister's house, and gluten items were being cooked in the microwave at work.
  2. Scott Adams
    Welcome to the forum! I just want to mention that for blood tests the Mayo clinic recommends eating 2 slices of wheat bread for 6-8 weeks, otherwise the blood test results may be false negative. Since you are unable to manage doing this for even 4 weeks due to severe symptoms, I think it is safe to assume that you have either undiagnosed celiac disease, or...
  3. Scott Adams
    Let us know what you find out, especially regarding the total IGA.
  4. Scott Adams
    All first-degree relatives should be screened for celiac disease, even if they don't have any symptoms. A recent Mayo clinic study showed that up to 44% of first-degree relatives also have it. Too late now, but perhaps this will help if it happens again:
  5. Scott Adams
    If you have been gluten-free for this long, and are still having tremors, be sure to consult with your doctor about them. They could be unrelated to celiac disease, and could also some other autoimmune disease. Also, are you taking a good multivitamin & mineral supplement? Many celiacs get gluten ataxia and have brain and nervous system issues, and...
  6. Scott Adams
    I think pursuing more tests should only be done if you believe you cannot stay on the gluten-free diet for life without being sure that you have celiac disease. There are downsides to a formal diagnosis, like more expensive and harder to get private health and/or life insurance policies. The upsides are that you may get access to follow up care, like blood...
  7. Scott Adams
    I know this study focuses on children, but I suspect we'll see more studies like this that may also link celiac disease to chronically "weak positive" tTG IgA results in adults:
  8. Scott Adams
    I think I recall from your other posts that you've been trying to figure this out for a while now, and I believe you've had positive blood tests before, but please correct me if that isn't correct. Also, can you share your blood test results, and the reference ranges for a positive result? Overall it seems to me like you already have your answer, and...
  9. Scott Adams
    When you describe "tightness in the throat" it makes it seem like an allergy issue, have you ever had food allergy tests done? Is there any swelling associated with it? Some celiacs also cannot tolerate corn, so I also wonder if it could be a corn intolerance.
  10. Scott Adams
    Here are some articles on studies done on this topic, but for those who continue to eat out, myself included, taking AN-PEP enzymes like GliadinX (full disclosure, they are a sponsor here), may help break down small amounts of gluten in the stomach, before it reaches your intestines:
  11. Scott Adams
    Welcome to the forum, and I'm sorry to hear about how badly your doing right now, and how unconcerned your doctor(s) seem to be (it might be time to get a new doctor!). One of our moderators is @cristiana who is from the UK, and hopefully she can chime in here with more info about how you can break the medical gridlock you are facing. Your story...
  12. Scott Adams
    Welcome to the forum @RJK. You mention a couple of times in your post your symptoms could be due to "50 years of undiagnosed Celiac," and it made me wonder if you are now on a gluten-free diet, and are self-diagnosed with celiac disease? Many of the symptoms you've suffered from could certainly be due to undiagnosed celiac disease and/or non-celiac...
  13. Scott Adams
    I doubt it was a joke, and it sounds like he may have been trying to gain more knowledge about his situation. The fact that he gave a copy to you may have been a message thanking you, at least that's how it sounds to me. Any idea if he went gluten-free in his final days?
  14. Scott Adams
    ok I read the post, it’s not a peer-reviewed study, but does say the following, so it doesn’t really support the concept of cross-reactivity which is too often thrown around: Observing the “p-values” reported in Table 2: Using the p ≤ 0.05 threshold, we can reject the null hypothesis for α-gliadin (outlined in blue, positive control). If we’re...
  15. Scott Adams
    @Anniehall Do you realize that the article you pointed me to is critical of the existence of "cross reactive foods?" https://paleofoundation.com/19-gluten-cross-reactive-foods/ This article mentions cross reactivity, but it does not in any way explain it, or provide any evidence to support it: https://www.ncbi.nlm.nih.gov/pmc...
  16. Scott Adams
    They are a sponsor here, but I've used these flours for years and they are really good: https://www.glutenfree-supermarket.com/
  17. Scott Adams
    That's great news! Congratulations!
  18. Scott Adams
    I believe that the people who might be able to help answer this would be those whose business is raising such dogs. Perhaps contact this company to see if they have any ideas for funding: https://www.armedk9.com Ultimately though your best bet is to avoid eating outside your home if possible (if you do eat out consider AN-PEP enzymes), and learn to...
  19. Scott Adams
    As far as I know there is no scientific basis behind the concept of "cross-reactive," but if you have any studies on this idea feel free to share them. I realize that the term gets thrown around a lot, but I think the proper way to interpret what is meant by it is simply that celiacs often have additional similar food intolerances, especially right after...
  20. Scott Adams
    1) Those tests can detect inflammation associated with heart disease, and that caused by some autoimmune diseases, but I know that many people which celiac disease can still have low scores on those tests, so they may not be a good indicator for celiac disease, at least in some people: https://www.mayoclinic.org/tests-procedures/c-reactive-protein-test...
  21. Scott Adams
    This is the category for our articles on CD and diabetes: /celiac-disease/celiac-disease-amp-related-diseases-and-disorders/diabetes-and-celiac-disease/ and more research is emerging that higher gluten consumption childhood can increase the risk of getting Type 1 diabetes, so, not the same as LADA, but an interesting finding. It would be good to...
  22. Scott Adams
    People with celiac disease who go gluten-free, then accidentally or purposefully eat gluten months or years afterwards tend to have a wide range of reactions. Some have no reaction at all, perhaps because their gut is fully healed, while others have nearly instant reactions that are very bad and last for days or weeks. This may be a bit late, but this...
  23. Scott Adams
    We have had members here who worked in bakeries or pizzerias when they were diagnosed, and as I recall some decided to change jobs because of that, but some people don't seem to be bothered by touching or smelling gluten, while others are. Given how sick gluten can make those with celiac disease, I do believe that such reactions could be your body's...
  24. Scott Adams
    Welcome to the forum! I'm glad you found some helpful information here, and this article may help you make the transition to a gluten-free diet:
  25. Scott Adams
    I have been to Istanbul for a vacation, and spent about a week there, but have never lived there. I can say that there are a lot of naturally gluten-free options in general when it comes to Middle Eastern and Mediterranean foods, however cross-contamination, a with any country's foods, can be an issue. The biggest problem I found was the very common practice...
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