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Scott Adams

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Latest Celiac Disease News & Research:

Everything posted by Scott Adams

  1. Scott Adams
    I agree, it would be great to hear from anyone in the study to see how it's going. There may be non-disclosure agreements that prevent this, who knows. We'd like to do an article on their experience if possible.
  2. Scott Adams
    If my memory serves me correctly, Finland has the most celiacs per capita, but the rate is higher in Northern Europe and Ireland, and speculation as to why often includes the theory that the people in those areas were last to adopt farming, and therefor the last to start eating wheat regularly. As I understand it, in Finland you can order a hamburger at McDonald...
  3. Scott Adams
    Some people get a follow up antibody test to verify that their levels have gone down, and that their diet has been gluten-free, although that isn't what the tests were designed for. If you doubt your original diagnosis and want to be retested, this article may be helpful:
  4. Scott Adams
    It looks like Dr. McCullough is no longer affiliated with any of the universities that you believed him to be...they clearly want nothing to do with him given his anti-vaccine positions: Source: https://www.medscape.com/viewarticle/958916
  5. Scott Adams
    Welcome, this article may be helpful:
  6. Scott Adams
    It's probably best to start a new topic in our forum for this, but in general you should be sure that your diet is 100% gluten-free, as some with refractory celiac disease are actually getting contamination in their diets, for example if they eat at restaurants. Sorry, but I'm not sure about the long-term side effects, but you may want to have a look at this...
  7. Scott Adams
    Welcome to the forum! Hemochromatosis is a chronic condition that doesn't go away, so hopefully you're following up and treating it, usually by eating a diet low in iron and doing regular phlebotomies.
  8. Scott Adams
    Welcome to the forum, and you've chosen a very interesting topic for your thesis! This article is a bit old, but may be helpful:
  9. Scott Adams
    A recent study found that 44% of 1st degree relatives of celiacs also have celiac disease, so all first degree relatives should be screened each year via a blood panel.
  10. Scott Adams
    You're correct that celiac disease can manifest as a neurological disease in certain people, just like it can as a skin disease (dermatitis herpetiformis) in others, and we've summarized many of this research here: /celiac-disease/celiac-disease-amp-related-diseases-and-disorders/schizophrenia-mental-problems-and-celiac-disease/ and here: ...
  11. Scott Adams
    RACE WEBSITE Additional race information can be found at http://stepbeyondceliac.org/ PLACE Wherever you are! Philadelphia, PA US 19145 DESCRIPTION We hope you’ll join us in getting 3.1 miles closer to a cure o...
  12. Scott Adams
    Welcome to the forum @Maria Dreisziger! Hopefully we can help you!
  13. Scott Adams
    It did for me, as I had it for years in only one small spot on the back of my lower thumb joint. Interestingly, and I’m talking about the mid 90’s here, I had a dermatologist recommend UV treatment as a therapy, which I never tried. I did, however, badly sunburn (imagine the entire area on the back of each of your hands as one big blister!) the backs of ...
  14. Scott Adams
    Your symptoms could be classic celiac disease symptoms, but could also be many other things as well. Are you able to ask your doctor for a celiac disease blood panel? To get tested for it you need to be eating a could of slices of wheat bread daily for 6-8 weeks beforehand.
  15. Scott Adams
    Oh, and you really don’t want to reach the villi damage stage if you can avoid it!
  16. Scott Adams
    Unfortunately your doctors are giving you bad advice. You are correct and you need to eat about two slices of wheat bread daily for at least 6 to 8 weeks before taking a blood test for celiac disease. You should eat gluten daily for at least two weeks before doing an endoscopy.
  17. Scott Adams
    I think my daughter would like this one!
  18. Scott Adams
    I will give this one a try...I love chicken wings!
  19. Scott Adams
    Since your twin has celiac disease that means you have an approximately 44% chance of also having it. Have you ever had a blood test for celiac disease? All first relatives of people with celiac disease should be screened regularly for it due to their high risk of also having it. I recommend you get a blood screening for it, and you need to keep eating...
  20. Scott Adams
    Welcome, can you please clarify what you've posted here? It sounds like you had a celiac disease blood panel, and an endoscopy that looked for celiac disease, and both tests were negative, is this correct? Also, it sounds like you do still have issues with gluten, and if so, that likely puts you in the NCGS category, as @trents mentioned. Please let us know...
  21. Scott Adams
    There is a test for lactose intolerance, and you can read about it here: https://www.mayoclinic.org/diseases-conditions/lactose-intolerance/diagnosis-treatment/drc-20374238
  22. Scott Adams
    Welcome to the forum. If your sister has gluten sensitivity, as you claim, then she should not be eating wheat from any country, including any European wheat, but it is possible that she may tolerate certain strains better than others. Gluten sensitivity is not the same thing as celiac disease, which is an autoimmune disease. Because of this she may...
  23. Scott Adams
    until
    Takes place November 17th OR 18th, so check the site. From the Experts: Join Our Virtual Monthly Meeting on "Holiday Favorites: Cooking Gluten-Free." Join the National Celiac Association (NCA) and the Harvard Medical School Celiac...
  24. Scott Adams
    From the Experts: Join Our Virtual Monthly Meeting on "Open Mic: Ask the Docs and Dietitian." Join the National Celiac Association (NCA) and the Harvard Medical School Celiac Research Program for a discussion on Open Mic: Ask the...
  25. Scott Adams
    From the Experts: Join Our Virtual Monthly Meeting on "Dermatology and Celiac Disease: Did Gluten Cause this Rash?" Join the National Celiac Association (NCA) and the Harvard Medical School Celiac Research Program for a discussion...
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