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Scott Adams

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Latest Celiac Disease News & Research:

Everything posted by Scott Adams

  1. Scott Adams
    We are publishing a book, chapter by chapter, that really covers many of these issues, and may offer you help. Here is chapter 3, published last week:
  2. Scott Adams
    I would simply add that "IBS" isn't a real diagnosis, it's a set of symptoms that often has an underlying cause or trigger. To be diagnosed with IBS, in my non-medical opinion, basically having a doctor tell you exactly what you already knew when you went into his/her office...that you have IBS. To recover from IBS you'll need to determine whether or not...
  3. Scott Adams
    I and other doctors like Dr. Kenneth Fine and Dr. Rodney Ford, have always believed those with elevated antibodies are actually in a pre-celiac stage (some call it non-celiac gluten sensitivity, although elevated antibodies are not required for someone to have NCGS), and that should you keep eating gluten you'll likely end up with full blown celiac disease...
  4. Scott Adams
    Since you had a positive tTG IgG blood test, AND you appear to have "with increased lamina propria chronic inflammation," it seems pretty likely that you do have celiac disease. Definitely discuss it with your doctor when they're back, as well as when to start a gluten-free diet.
  5. Scott Adams
    After searching for the article I highlighted the link in the top of my web browser and did control-C on my keyboard to copy, them control-V to paste here.
  6. Scott Adams
    I just want to mention that in many cases such additional food intolerances are often temporary, and can go away if someone maintains a strict gluten-free diet. On my case it was dairy/casein, corn, chicken eggs and tomatoes, and after around 1-2 years I was able to add them back, with the exception of chicken eggs, which I can tolerate once per week, but...
  7. Scott Adams
    It sounds like an issue with iron metabolism, but I'm definitely not an expert in that area. Did you find the article below by Ron Hoggan? He also wrote a book on iron metabolism as well (https://www.amazon.com/Iron-Edge-Ron-Hoggan-ED/dp/0973628448):
  8. Scott Adams
    This is very interesting because when I was ~12 I was diagnosed with Achilles Tendonitis and had to have special shoe inserts made to lift my heel up to decrease the pain so that I could play on a soccer team. The pain could be severe, and the inserts didn't really work that well. It wasn't until my mid-twenties when I finally got diagnosed with celiac disease...
  9. Scott Adams
    Is this the link? https://www.ncbi.nlm.nih.gov/books/NBK1727/
  10. Scott Adams
    Hi Lynn, welcome to the forum! Is it possible she's still getting small amounts of gluten via cross-contamination, perhaps at restaurants, which is very common? You didn't mention her age, but is it also possible that she cheats on her diet (my teenage daughter used to do this due to peer pressure, for example at a soccer team party where all they had was...
  11. Scott Adams
    I agree, it would be great to hear from anyone in the study to see how it's going. There may be non-disclosure agreements that prevent this, who knows. We'd like to do an article on their experience if possible.
  12. Scott Adams
    If my memory serves me correctly, Finland has the most celiacs per capita, but the rate is higher in Northern Europe and Ireland, and speculation as to why often includes the theory that the people in those areas were last to adopt farming, and therefor the last to start eating wheat regularly. As I understand it, in Finland you can order a hamburger at McDonald...
  13. Scott Adams
    Some people get a follow up antibody test to verify that their levels have gone down, and that their diet has been gluten-free, although that isn't what the tests were designed for. If you doubt your original diagnosis and want to be retested, this article may be helpful:
  14. Scott Adams
    It looks like Dr. McCullough is no longer affiliated with any of the universities that you believed him to be...they clearly want nothing to do with him given his anti-vaccine positions: Source: https://www.medscape.com/viewarticle/958916
  15. Scott Adams
    Welcome, this article may be helpful:
  16. Scott Adams
    It's probably best to start a new topic in our forum for this, but in general you should be sure that your diet is 100% gluten-free, as some with refractory celiac disease are actually getting contamination in their diets, for example if they eat at restaurants. Sorry, but I'm not sure about the long-term side effects, but you may want to have a look at this...
  17. Scott Adams
    Welcome to the forum! Hemochromatosis is a chronic condition that doesn't go away, so hopefully you're following up and treating it, usually by eating a diet low in iron and doing regular phlebotomies.
  18. Scott Adams
    Welcome to the forum, and you've chosen a very interesting topic for your thesis! This article is a bit old, but may be helpful:
  19. Scott Adams
    A recent study found that 44% of 1st degree relatives of celiacs also have celiac disease, so all first degree relatives should be screened each year via a blood panel.
  20. Scott Adams
    You're correct that celiac disease can manifest as a neurological disease in certain people, just like it can as a skin disease (dermatitis herpetiformis) in others, and we've summarized many of this research here: /celiac-disease/celiac-disease-amp-related-diseases-and-disorders/schizophrenia-mental-problems-and-celiac-disease/ and here: ...
  21. Scott Adams
    RACE WEBSITE Additional race information can be found at http://stepbeyondceliac.org/ PLACE Wherever you are! Philadelphia, PA US 19145 DESCRIPTION We hope you’ll join us in getting 3.1 miles closer to a cure o...
  22. Scott Adams
    Welcome to the forum @Maria Dreisziger! Hopefully we can help you!
  23. Scott Adams
    It did for me, as I had it for years in only one small spot on the back of my lower thumb joint. Interestingly, and I’m talking about the mid 90’s here, I had a dermatologist recommend UV treatment as a therapy, which I never tried. I did, however, badly sunburn (imagine the entire area on the back of each of your hands as one big blister!) the backs of ...
  24. Scott Adams
    Your symptoms could be classic celiac disease symptoms, but could also be many other things as well. Are you able to ask your doctor for a celiac disease blood panel? To get tested for it you need to be eating a could of slices of wheat bread daily for 6-8 weeks beforehand.
  25. Scott Adams
    Oh, and you really don’t want to reach the villi damage stage if you can avoid it!
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