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Scott Adams

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Latest Celiac Disease News & Research:

Everything posted by Scott Adams

  1. Scott Adams
    Welcome to the forum! I doubt this would be related to celiac disease, and you should definitely follow up with you doctor about it as soon as possible. It may be too late, but this article may be helpful regarding getting glutened:
  2. Scott Adams
    Unfortunately this single positive ought to be enough to make a diagnosis, but it's possible his doctor will want to also do an endoscopy to confirm it. For kids the DMG test seems to more accurate than the others, but if you have those other results feel free to share them with the reference range.
  3. Scott Adams
    There is definitely a connection between mental issues and celiac disease, and you can see the articles we've done on this here: /celiac-disease/celiac-disease-amp-related-diseases-and-disorders/schizophrenia-mental-problems-and-celiac-disease/ /celiac-disease/celiac-disease-amp-related-diseases-and-disorders/cognitive-impairment-and-celiac-disease...
  4. Scott Adams
    A positive deamidated gliadin antibodies (DMG) test means that your son also likely has celiac disease, and will need to go gluten-free. His doctor may want to run more tests, but given that his sister has been diagnosed with celiac disease, his doctor may be able to make the diagnosis without doing an endoscopy. https://www.mayocliniclabs.com/test...
  5. Scott Adams
    It's good that you're still eating gluten, they recommend two slices of wheat bread a day for two weeks before an endoscopy for celiac disease. Keep in mind that none of these tests would rule out non-celiac gluten sensitivity, for which there currently isn't a test, but ~12% of people have. You still may need to go gluten-free to get relief, it if...
  6. Scott Adams
    All of the symptoms you mentioned are consistent with celiac disease, and if your TTG-IGA antibodies were positive, then the only path to relief is a 100% gluten-free diet for life, no cheating. If you do have celiac disease and continue to eat gluten you will expose yourself to lifelong symptoms with may get worse over time, as well as many other related...
  7. Scott Adams
    Another basic question I have is, are you getting enough fiber? Have you tried eating prunes and/or drinking prune juice, and other fiber like psyllium fiber powder? These might be better alternatives to deal with constipation than medicine.
  8. Scott Adams
    It's fine to share things here that have helped you, as they could help others, and we regularly recommend keeping a food diary and understand that not everyone improves on a gluten-free diet alone. The issue though is that you present lots of broad claims in this thread about histamines possibly being the cause of diseases like celiac disease, among...
  9. Scott Adams
    Given your genetic makeup, plus the positive tTG-IGA test, it's very likely you have celiac disease. Be sure to talk to your doctor before going gluten-free, as they may want to do an endoscopy/biopsy to verify this, and you would need to be eating gluten daily for two weeks before this.
  10. Scott Adams
    We've summarized tons of articles over the years on celiac disease's connection with other autoimmune disorders: /celiac-disease/celiac-disease-amp-related-diseases-and-disorders/ and here are the ones on thyroid issues: /celiac-disease/celiac-disease-amp-related-diseases-and-disorders/thyroid-pancreatic-disorders-and-celiac-disease/
  11. Scott Adams
    So you continue to speculate without providing scientific research to back any of this up. This forum isn't about "what ifs." Please include references for the claims you're making, otherwise you shouldn't be making them. There are definitely people who have an issue with histamine's, but I've see zero research that links this to celiac disease, damaged villi...
  12. Scott Adams
    Although companies are not required to test products they label "gluten-free," they are responsible if such items go above 20ppm, and it can result in a very expensive product recall should this happen. I've not heard of a company that didn't test their products regularly if they use "gluten-free" on their label, but I suppose it's possible, especially if...
  13. Scott Adams
    @Jmmahall I just learned about this non-profit with this mission "We're on a mission to deliver gluten-free foods to those in need across America." https://www.mendhunger.org/
  14. Scott Adams
    BTW, the fact that 1 in 2 of us are getting cancer is also related to our longer lifespans now. You have to die of something, and the longer we live, the more likely we are of getting cancer or heart disease.
  15. Scott Adams
    The increase in the average lifespan, especially over the last 100-200 years, has been dramatic in most countries. Clean water, vaccines, antibiotics, etc., can explain a lot of this, but now subtle differences in lifespans between people in different countries are, more and more, being attributed to the differences in their diets...for example in Europe...
  16. Scott Adams
    It would be of interest to me if I were a doctor, at least to not disagree about doing a periodic blood screening to make sure your gliadin antibodies don't one day shoot up. I know that first degree relatives of celiacs have an ~44% chance of also having it, and should be screened each year, but I'm not sure of the interval in your case. My guess would be...
  17. Scott Adams
    It would not hurt to ask for the actual results and the reference ranges, as recent studies do indicated that elevated gluten antibodies are not something to ignore, which is what many doctors do. Not to create a clash with your doctor, but why not rule out DH by doing a biopsy for it?
  18. Scott Adams
    Whether you have celiac disease, which you could due to your genetics, or NCGS, you would need to avoid all gluten for life, if you wish to avoid the negative health effects and/or symptoms caused by gluten. Note that many celiacs don't have noticeable symptoms at all, and are often diagnosed due to a blood test that shows low iron levels (anemia),...
  19. Scott Adams
    Celiac disease can manifest as a gut, skin, or brain/neurological disease, or a combination in those who are genetically susceptible. The reasons why are very complex, and we've summarized many studies here on this topic: /celiac-disease/celiac-disease-amp-related-diseases-and-disorders/ataxia-nerve-disease-neuropathy-brain-damage-and-celiac-disease...
  20. Scott Adams
    One positive blood test, combined with the genetic marker for celiac disease, should be enough to diagnose you, and I realize that some doctors may still not give you a diagnosis if you have a negative biopsy. If I were you I'd go gluten-free based on what you've shared, but be sure to discuss this with your doctor as they may want to run more tests.
  21. Scott Adams
    To me it looks very much like DH, and if you have symptoms it still could be. You should ask them to biopsy it for DH. Also, do you have your celiac disease blood test results to share? I'm curious if you had any elevated levels of antibodies, which could put you in a gray zone. Also, were you eating gluten daily for 6-8 weeks leading up to your blood...
  22. Scott Adams
    I would definitely use my own sponge, as it could definitely get contaminated with gluten. Hand washing your own dishes may not be necessary if everyone rinses off their dishes before loading them, but some here would definitely argue against using a shared dishwasher, and just doing yours by hand. I'm no expert on how to wash sponges, but to simply...
  23. Scott Adams
    While foods that are higher in histamines can be an issue for some people, most people can tolerate them just fine, and in countries that consume large quantities of them like Japan, Korea, Italy, France, Singapore, etc., they have some of the longest life spans on Earth (https://www.worldometers.info/demographics/life-expectancy/). In fact, many studies...
  24. Scott Adams
    If your diet has been 100% gluten-free, it can still take much longer than a month to heal, depending on the level of villi damage you have. The average time to recovery is 2 years, but definitely double check everything in your diet. It's also possible you have additional food intolerance issues, and you may want to keep a food diary to identify them.
  25. Scott Adams
    Welcome to the forum, and there is definitely a connection, and in many people celiac disease manifests itself as a brain/nervous system disorder, and here are some scientific studies we’ve summarized on this: /celiac-disease/celiac-disease-amp-related-diseases-and-disorders/schizophrenia-mental-problems-and-celiac-disease/ /celiac-disease/c...
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