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The thing is that you cannot know how sensitive you are until you get all better. And you might not heal well eating the dining hall food. I know it would be very hard to do otherwise, but there are other college students who are managing without the dining hall. And they get better.
Once better, you can see what you can tolerate.
If you want ideas on how to be completely gluten-free, just ask! There are many here with great ideas.
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If you do have it, dont let them pressure you into LEEP (can cause complications) until you fully research your options.
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Im in Temple Terrace near the University where Hubby is a History Prof. I work from home.
Not everyone has to be that extreme, but there are quite a few who do because they are sensitive. If you are not getting results, then it behooves you to be a little more careful.
Hair products can easily get in your mouth when showering. My shampoo runs down my face and over my lips all of the time. It may not be a big deal for you, but until you get completely well, you will not know if it is a problem or not.
There are many fine gluten-free hair care and facial care lines. PLUS just call the manufacturers of the one's you use. They may already be gluten-free.
Look at ingredients (wheat germ oil, oats are common in hair and face stuff).
Toothpaste...yup. I got glutened by Crestpaste dental floss!! Dang it!!
Many have gotten glutened by kissing their mate who had not brushed after eating gluten. French kissing type of kissing.
A peck on the lips is not an issue. Dont think food in another's mouth can affect you when you exchange saliva? A few years ago, a girl died because she kissed her boyfriend who had eaten a peanut butter sandwich. She was allergic to peanuts and didnt get to her Epi pen in time. It had been a few hours since he had eaten the sandwich.
If your dog eats gluten and then licks himself and then you touch his fur and later forget and put your hand in your mouth (eating). Yes, it can happen. I am a dog lover myself and we rescue Great Danes. I can tell you from experience that gluten is NOT good for your sweet little doggie anyway. It is highly allergenic and causes all sorts of degenerative diseases in animals. Wheat isnt meant to be eaten by people or domestic animals (carnivores). Our Maile had seizures and skin rashes from wheat. Switched to lamb and rice and both cleared up. Yeah!!
Eating out? I dont right now very often. There are a few places I haunt. The Cheescake Factory close by has a manager who is Celiac himself. Last time he prepared my food himself and it was delicious and I didnt get sick. Others have good experiences at Outback, PF Changs, Bone Fish, Chipotle and others.
The MAJORITY of my symptoms were neurological: migraines, neuropathy and vertigo. A little loose bm's. But they were the least of my worries. I also have Hashimoto's Hypothryoid as a result of it. The migraines were the first to go and have never come back (except one time I got glutened from soy sauce).
When you have Celiac, the villi in your intestines are damaged. The very tips are the portion that digest lactose (the main sugar in dairy). Until those tips heal, you may not be able to tolerate dairy or get well. Many do not notice a sensitivity to dairy while still eating gluten because the gluten intlerance masks everything else. Once that irritant is removed, others may surface now. I know it is hard to give up 2 things. But look at the bright side, you will likely be able to add dairy back once you heal.
If you are not feeling better with dairy in the diet, if it were me, I would cut it out for now.
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It may be nothing at all. So dont worry. Wait for the results.
My cervix used to bleed at the drop of a hat. And I did end up having HPV (everyone who has ever had sex has at least a few strains). But I had 2 of the strains associated with Cervical Cancer. And I had pre-cancerous cells.
I refused invasive/mutilating surgery (LEEP) and went the natural route. I used a product called Beta-mannon
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I took it orally and vaginally. And get this, I was so broke when I had this, that I called the company and they gave me 6 weeks of the supplement absolutely FREE. I didnt pay a dime.
PLUS everyday I used positive visualization. I saw those cells being eaten away by the little pac-men.
6 weeks later, I was completely healed.
My cervix has not bleed since. Not for sex or a PAP. All healed and I have been getting PAPS twice a year for the past 7 years. No return of bleeding or bad cells.
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Most need to be 100% gluten-free to heal. No wheat, rye, barley or oats. This means scouring your kitchen and removing old scratched Teflon pans, cutting boards, wooden spoons, toasters, etc. (as they can harbor gluten). This also means checking that all of your hair care, makeup, lip stick, chapstick, creams, etc. are gluten-free. It also means not kissing anyone who has eaten gluten and not brushed their teeth. It means making sure your pet's food is gluten-free. And kitty litter is gluten-free. It means if you live in a "mixed" kitchen never allowing anyone to use "wheat flour" as it gets everywhere and you cannot clean it adequately.
And for MANY it means giving up dairy until healed. It can be added back in later if tolerated.
It took me a good 6 weeks to start feeling better.
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When I first started having major problems I weighed 138 and I am just shy of 5'4. I have always been curvy and big up top (Double D back then) so I looked pretty balanced. I got down to 113 over the years and my boobs deflated. I am now back up to 120 - 122.
And I dont eat junk food. I gained healthy weight by eating healthy fats and foods.
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Happy Birthday!!
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There are other brands with wheat as well:
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You might consider looking into the SCD diet for healing. It is naturally gluten-free and helps the gut heal and rebalance itself. Dairy is added in after healing has happened.
www.pecanbread.com
Many on this forum have benefited from it when gluten-free was not enough.
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That is so cool you found him. They all look like little boys to me.
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A device called a "Rebuilder" really helped the nerves in my feet and hands for neuropathy. Dont know if it would work for your condition though.
I would have B12 & MMA tested plus Ferritin as B12 and iron levels can affect neurological function.
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She should be tested. If you absolutely cannot find a doctor to test her, you can order a Celiac panel through an online lab like Direct Labs or Health Check USA. No doctor required. But by all means, get her tested. Find a new doctor if need be or test yourself.
Those symptoms do not sound like GERD to me. There is more going on. If she does have Celiac, you will want to know to prevent further complications and get her well.
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If he just needs to heal, a warm water bottle or a heating pad with a towel wrapped around it can be very soothing. I have an appendectomy scar that has some scar tissue attached to my bowel. I can get sharp pains there if I have gas. The heating pad makes it feel so much better.
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I agree that "proof" is invaluable. I could have just said, I bought the strips and they didnt work. But I know that this board has standards, so I carried out my experiment with proof that I had bought the strips and done the testing correctly (pictures included).
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Interesting article Pele. Elaine is against Bifidum, but that article says it is the protective strain. No mention of acidophilus. Of note is that my CDSA showed adequate acidophilus but low bifidum and I am gluten intolerant....hmmmmm
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Magnesium Stearate is an industrial lubricant. Supplement manufacturers use it so that the product runs smoothly through their machines. It is toxic. Google it. I avoid it in my supplements.
Pure Encapsulation makes supplements without toxic fillers. A few other companies do to. I like Magnesium citrate or glycinate.
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For me NO. I am so much healthier eating "Grain Free". Maybe I am rare, but I dont miss gluten foods. I have come to enjoy natural whole foods so much.
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I think you forgot: Lymphoma, Melanoma and other cancers related to untreated Celiac.
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You could have inexpensive T-shirts printed up that say: "If You Feed me Gluten" on the front and on the back it can say "You Must Want Me To Get Sick" Or on the front "Dont Feed Me Gluten" and on the back "Because I dont want Diabeties or Cancer. OR "I have Celiac Disease" on the back "Gluten makes me Hurt"
Drop him off each time with one of these shirts on. They will get the message.
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Any kind of pre-made salads are suspect. You will have to ask them if there is gluten, but there is always the possibility of cross contamination.
What type of Spaghetti are you eating??
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Celiacs are often deficient in vitamin D. Low vitamin D is correlated with melanoma in some studies.
Holiday Potlucks
in Coping with Celiac Disease
Posted
My Sister wont participate in her office's monthly potluck. She says it is because she has seen how some of those women leave the bathroom. It aint pretty. She just always brings her own food and says she is on a diet.