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Latest Celiac Disease News & Research:
Everything posted by ShayFL
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No I wouldnt think a sting from an insect that pollinates wheat could cause an autoimmune reaction in Celiac. Why? The pollens stick to the "legs" and "bodies" of the insects. The stinger is kept retracted until it stings you. And even if one molecule of wheat pollen (not gluten which is the sticky stuff in the grains) was injected into you, it could...
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ARCHIVED Still Not Sure Whats Goin On Inside
ShayFL replied to jasonD2's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Living in "constant fear" is not living healthy. I suspect that the "constant fear" is the most significant factor in your continuing symptoms. A real physical trigger "gluten" that started the fear....other symptoms....more fear....social settings....more fear.....relationships.....more fear. You are in a vicious cycle. The only way you will get well... -
ARCHIVED Saw The Doctor Yesterday & Thank You For Your Support!
ShayFL replied to TracyB's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Anti-Gliadin (AGA) IgA Anti-Gliadin (AGA) IgG Anti-Endomysial (EMA) IgA Anti-Tissue Transglutaminase (tTG) Total Serum IgA -
ARCHIVED I Might Have Celiacs Disease
ShayFL replied to BigRoy's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
It could very well be. Hang tight and dont eat gluten-free yet. If the blood comes back POS, your Doc. will likely want a biopsy. You MUST be eating gluten for it to be accurate. So keep your regular diet, wait for the blood results and if you get a biopsy, start gluten-free as soon as the procedure is done. I sure hope they find an answer soon. It... -
ARCHIVED What Vitamins Should Husband Take
ShayFL replied to Mandy1020's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Honestly if he wants to a general multi-vit-min that is fine (Make sure it is gluten-free). But he should get tested for deficiencies before supplementing. Some are perfectly safe even in high doses, but others can cause problems if he takes too much. Also vits/mins are synergistic meaning they must work in balance with each other. If you suddenly add... -
ARCHIVED So Worried About My Husband
ShayFL replied to Mandy1020's topic in Parents, Friends and Loved Ones of Celiacs
First welcome. It is common to have ups and downs in the beginning as the body detoxes from the gluten. I didnt start to really feel good at all until about 6 weeks. I just had to hold on and believe everyone in here when they told me it would get better. It finally did and I continue to heal, but I am not completely well yet. It can take time. ... -
In a month's time on the diet, your experience sounds similar to many on here. You are on the right track. Stay the course and over time hopefully you will not even remember what those "bad days" were like.
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The hemp isnt agreeing with me either right now. I have 2 canisters of it in the freezer. Hoping someday........
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ARCHIVED What Cookware Needs To Be Changed?
ShayFL replied to LoveLife's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
In general, most replace: scratched teflon pans and anything with that surface that is scratched, cutting boards, wooden spoons, wooden bowls (anything porous). Some even replace plastic wear that is scratched. Stainless steel, aluminum, glass, ceramic should all be fine. I sure hope you really did get your toaster clean. -
ARCHIVED Has Anyone Seen The Ad For Calorie-free Pasta?
ShayFL replied to JNBunnie1's topic in Gluten-Free Recipes & Cooking Tips
I did read a review of the noodles that said that they do not taste/nor have the texture of gluten noodles and that many are disappointed by this. If you can accept them for their own uniqueness and use them in stir fry and such then they are fine. -
ARCHIVED Gluten Challenge Question...
ShayFL replied to LoveLife's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Sometimes the diet and challenge yield the only answer. You have yours. There are also varying reasons to intolerance. In your vegetarian friend example, it could be that the reason he got so violently ill is that with being vegetarian for so long his stomach does not produce enough HCL (acid) to digest meat. He would have to start out eating only a... -
ARCHIVED Symptoms Worse Instead Of Better- How Much Longer- Please!
ShayFL replied to crunchy-mama's topic in Parents, Friends and Loved Ones of Celiacs
So sorry it is worse for you right now. Keep in mind there is a "de-tox" period from gluten (and casein). The proteins in these foods fit into the "opiate" receptors in our brains. Which means they are addictive. He is going through withdrawal and it can last a week or 2. It was about 2 weeks for me. I didnt notice improvements in the BM's for 6 weeks... -
That sounds good Rachelle!!
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ARCHIVED My Skin Is Changing!
ShayFL replied to henny's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Back when I was actively seeing clients in nutritional consulting, I had a women come to me to lose weight. I had read information about gluten intolerance (though I never related it to myself ) and after going over her diet, decided cutting out wheat might help her. She seemed addicted to it. She came back 2 weeks later with the biggest smile on her... -
Whereabouts you from? My family is mostly in Douglas, but my parents live in Quitman.
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1 cup white rice flour 1/2 sorghum flour 1/2 cup potato starch 3 tablespoons sweet rice flour 3 teaspoons sugar 1/4 teaspoon salt 1 teaspoon strong cinnamon (I use Saigon cinnamon from World Spice Merchants) 8 tablespooons (or, one stick) cold butter 1 large egg 2 tablespoons apple cider vinegar 1/4 ice-cold water, or enough to make the dough stick...
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What are you gonna do for the pie shell?
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The jury is not out anymore....it is a "hung" jury. Some say it is good for you and some say it is the devil. I use it only now and again. I mostly use Cold pressed unrefined extra virgin olive oil (for salads and for adding to foods after cooking like soups) or coconut oil (great for high heat cooking). Butter can also be used or cooking. I have experimented...
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ARCHIVED Has Anyone Seen The Ad For Calorie-free Pasta?
ShayFL replied to JNBunnie1's topic in Gluten-Free Recipes & Cooking Tips
I used to take it in capsule form many years ago trying to lose weight: Some herbs like glucommanon can expand fifteen to up to fifty times its original size and weight when it is eaten and this exerts pressure on the stomach walls and sends a signal to the brain that it is full. It didnt work.....LOL But it didnt bother me in anyway either. -
ARCHIVED How Long Before We Should See Some Improvement
ShayFL replied to Celiac's Mom's topic in Coping with Celiac Disease
Welcome! Many Celiacs are also intolerant to Casein found in cow's milk/goat's milk at least for the first few months while healing. The reason being is that the tips of the villi are what allows us to digest dairy. These tips are the first to be damaged in Celiac. So it may be that you need to eliminate dairy for a few months to allow his intestines... -
There are A LOT of ups and downs while healing. It would be great if we healed on a consistent upward curve, but most do not. I have really great days and days where I feel like I am back to square one. The square one days are getting farther and farther apart as time goes by thankfully. I do not cheat, so I am allowing my body to heal and being patient...
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ARCHIVED Doctor's Appt - Possibly Today, And Have A Question
ShayFL replied to TracyB's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
When the biopsy was explained to me, I personally found it invasive. To me anything that enters a body cavity is invasive. I was at high risk for perforation due to adhesions so refused the biopsy. From what everyone on this board has reported most do get put under. One person mentioned having a numbing agent sprayed on the back of her throat before the... -
ARCHIVED Doctor's Appt - Possibly Today, And Have A Question
ShayFL replied to TracyB's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Are you eating plenty of gluten right now and have been regularly for the past 3 months? This is the best you can do for an accurate blood test. It is true there can be FALSE NEGs, but go ahead and get the tests if you are/have been eating gluten. The biopsy is invasive, but you are put under. You will not feel thing. They should take at a minimum... -
ARCHIVED Newly Diagnosed
ShayFL replied to Avasmom12's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
It is up to you if you want a biopsy. You may not get an "official" dx Celiac without the biopsy. Which many point out is just fine then you wont have a pre-existing condition to muck up any future insurance needs. Many believe POS blood and POS response to the diet is enough to dx Celiac. I am one of them. I refused biopsy and just continue to get well... -
ARCHIVED Should I Eat Gluten Before Testing?
ShayFL replied to driedupfish's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Have you responded to the diet? How long on?