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Latest Celiac Disease News & Research:
Everything posted by ShayFL
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ARCHIVED I Am So Hungry Were You?
ShayFL replied to cat3883's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
The extreme hunger left me at about 6 weeks. Hang in there!! Try to eat the most nutritiously dense foods you can. Avoid empty starchy carbs. Eat quality protein, lots of veggies, berries and good fats like olive oil, coconut oil and avocado. Nuts are also good in moderation. Hang in there!! It does get better. -
ARCHIVED Could Somebody Interpret These Blood Results Please?
ShayFL replied to TracyB's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
It does show negative for the Celiac tests they ran. There are others that are IgG based they didnt run. Your ferritin is low. Optimal is 70-90. Do you have fatigue? Heavy periods with cramps? Bruise easily? Hair thinning? Your TSH is normal. However, there are people who do not feel well unless their TSH is under 1. Mine is curently .08. I... -
ARCHIVED Abnormal Uterine Bleeding
ShayFL replied to djmom's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
How old are you? Have they tested your iron and ferritin? Are you taking any herbs or supplements other than a multi/vit? Added a lot of soy lately? -
ARCHIVED Score Of 63
ShayFL replied to formerglutenglutton's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
We would need to see the reference range for the Enterolab result. Trauma and grief can certainly trigger all sorts of GI issues including Celiac and/or gluten sensitivity. The proof is in the diet. So you can adopt a gluten-free diet and see if your symptoms go away. I hope you feel better soon. ***YES. One can be POS and the other NEG. -
ARCHIVED Where Do I Start?
ShayFL replied to djmom's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Just Celiac gene testing. -
People with the digestive disorder diverticulosis may no longer have to worry about eating hard-to-digest foods like popcorn, corn and nuts. For many years, it was suspected that these foods increase the risk of complications, such as infection, but a new study found that they may actually have protective effects. The study, published in The...
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ARCHIVED Bloodwork Negative, Now What?
ShayFL replied to julirama723's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Yes, go ahead with the genetic testing. It isnt diagnostic, but it could be a useful tool in helping you stick to the diet. Remember healing takes time. For some up to a year or 2. So be patient and make sure you are 100% gluten-free and see if your symptoms subside. -
ARCHIVED Where Do I Start?
ShayFL replied to djmom's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
happygirl is right! Go to this new doctor. Might as well get as much as you can paid for through insurance. You pay your premiums so dont pay out of pocket unless you have to. Just tell this new doctor your symptoms, your daughter's symptoms and your family history. Ask for complete Celiac panels for you and your two daughters. Also ask for genetic... -
ARCHIVED Anyone Feeling This Way
ShayFL replied to Avasmom12's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Yes!! Many of us went through that and "withdrawal" is the appropriate term. It took me 6 weeks to get through the PMS like symptoms, insomnia and extreme hunger. Hang in there....you will get better! -
Have you ever cut into an apple that looked perfectly delicious on the outside, but was rotten on the inside? No symptoms does not mean no damage. Just so you know. Consider the home builder who decides he will use untreated 2x4's just here and there...the rest of the house will use pressure treated wood. The house might stand for awhile and look great...
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Maybe these will help: Open Original Shared Link Open Original Shared Link
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ARCHIVED Does The Spouse Really Understand
ShayFL replied to Mally-bug's topic in Parents, Friends and Loved Ones of Celiacs
Thank you for sharing your beautiful story G. Beautiful because you love your Amy so much and went gluten-free with her and you "get it". Not everyone is so fortunate and plenty of people forget their wedding vows before the honeymoon. My DH and DD both went gluten-free in our home for me. There was no fight or fuss in anyway. They both wanted me to... -
ARCHIVED Specific Carbohydrate Diet (SCD)
ShayFL replied to AliB's topic in Food Intolerance & Leaky Gut
Valda - this is my field. Yes, certain vegetables and grains are what are called goitrogens. These chemicals block T3 from attaching to the receptor sites, thus creating a hypothyroid condition. Eating small amounts of them would not be significant. But eating them EVERY day can cause enough blocked hormone to create CLINICAL hypothyroid. The vegetables... -
ARCHIVED Does This Sound Right To You...
ShayFL replied to ECD's topic in Food Intolerance & Leaky Gut
Yes. Find anothere doctor. Geez...... -
ARCHIVED Specific Carbohydrate Diet (SCD)
ShayFL replied to AliB's topic in Food Intolerance & Leaky Gut
Im going to try these next month when the weather is cooler (for safe shipping): www.bellyveggies.com -
ARCHIVED 4 Yr Old With 3 Positive Celiac Panels - No Symptoms
ShayFL replied to CrysK's topic in Parents, Friends and Loved Ones of Celiacs
I agree that the biopsy can be a good tool to help you adhere to the diet. But keep in mind that you CAN have Celiac with POS bloodwork, but the biopsy can come up NEG because the damage is not significant enough yet to show villi damage (or they didnt take enough samples or in the right places as damage can be patchy). BUT SHE STILL HAS CELIAC based on... -
ARCHIVED Is This What Gluteining Feels Like? And Other Questions.
ShayFL replied to SGWhiskers's topic in Coping with Celiac Disease
Country Life and Pure Encapsulations supplements are ALL gluten-free. -
ARCHIVED Ladies, What Facial Wash And Moisturizer Do You Use
ShayFL replied to cat3883's topic in Coping with Celiac Disease
I have never been overly fussy about my skin, but I did have to give up this wonderful (and way too expensive) moisturizer I was using because it has wheat in it. So I tried a few different things till I found some products I like. We are all different and you may have to waste a little money through the trial and error time. I didnt throw any creams... -
ARCHIVED Specific Carbohydrate Diet (SCD)
ShayFL replied to AliB's topic in Food Intolerance & Leaky Gut
Or quail eggs. They sell them in Asian grocery here. Of course you would need like 4 of them to equal 1 chicken egg. Duck eggs are bigger, so you might have to subtract a tlb of liquid from the recipe for baking. But an excellent idea!! Other types of eggs. -
ARCHIVED Questions About Symptoms
ShayFL replied to tazzsldy's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
I just avoid the obvious things: anything that goes on my lips or face or hands (including chap stick, lotion and shampoo. I dont worry about anything else really. I give the hairspray a cursory glance to make sure it doesnt say WHEAT anywhere. Usually it is just a bunch of chemicals anyway. -
ARCHIVED Negative Blood Work...
ShayFL replied to LIS-Guy's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Dont be afraid to be knowledgeable with a doctor. A good doctor will listen and admit if he does not know something. A bad doctor will belittle you, act arrogant or get upset that you actually know something. Fire a bad doctor and look for a good doctor if that happens. Hoping all goes well and you get some answers! -
ARCHIVED Hi, Got Some Of My Results From Pituitary Specialist
ShayFL replied to needtobebetter's topic in Related Issues & Disorders
Sounds like Hashimotos. The thyroid can "sputter". I had a similar experience. You could also have issues with your adrenals. I got better. My skin got better. My boobs got fuller. There is hope. Hang in there!! Let us know what the specialist says. It may be that you can work with them plus do some holistic measures (like I did) to get you... -
ARCHIVED Equipment Shared With, Same Equipment As, Same Plant As
ShayFL replied to Arizona Gary's topic in Gluten-Free Foods, Products, Shopping & Medications
If it just says...."manufactured in a facility that also manufactures wheat" and nothing else, I wont buy it. If it says something like...." "We do not provide a gluten or allergy free statement for our products since the facility and production lines haven't been verified to run as such. We do follow strict Good Manufacturing Practices to minimize... -
ARCHIVED Gluten Free - Whole List Of Frito Lay
ShayFL replied to Dustda18's topic in Gluten-Free Foods, Products, Shopping & Medications
*The above products do not contain gluten; however, they are produced on the same line as our products that do contain gluten. Although the lines are washed between batches, a slight residue may remain on the lines. Individuals who are extremely sensitive may be affected. This is what would concern me. You know working in a factory is hard work. And... -
ARCHIVED Mycoplasma Infection Link To Autoimmune Diseases
ShayFL replied to ToddZ's topic in Related Issues & Disorders
This is an interesting article: Open Original Shared Link