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ShayFL

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Latest Celiac Disease News & Research:

Everything posted by ShayFL

  1. ShayFL
    The thing is I have never seen anyone in here say Enterolab saved their life. And everyone recommends a complete Celiac blood panel. We all do. Over and over again. Go to your doctor first, dont go gluten-free until you do so, ask for a complete Celiac panel and a biopsy if necessary. This is SOUND advice and we all give it. ***This thread was asking...
  2. ShayFL
    You are right ang!!
  3. ShayFL
    I would try to find somewhere else to be seen. But there are a few natural things you can try while you wait: Oregano Oil capsules-natural antibiotic and antiviral, Lyseine- to help immune system, Vitamin C, Zinc, Copper, Magnesium, Calcium. Eat some good old fashioned Chicken soup. It is mostly the salt that helps shrink the swollen passages of the throat...
  4. ShayFL
    I had "the hunger" for about 6 weeks and then it faded away. I have normal hunger levels now.
  5. ShayFL
    You CAN heal!! I suffered greatly for 12 years and recovering nicely. Hang in there!! WE are here when you need us.
  6. ShayFL
    I just started a genetics class with CCNH where I have my Phd. I am excited to learn more. I read today that they have now discovered 26 genes related to the most common form of lung cancer. There is NO WAY that just 2 genes are responsible for ALL Celiac cases. I think if they put some money and resource into it, they will discover MANY other genes for...
  7. ShayFL
    Mother is right......low temp could indicate thyroid. It can also be a sign of low adrenal function. The new TSH ranges according to the AACE is from .3 - 3. And even those arent always diagnostic. I was severely hypo thyroid at 2.8. Right now my TSH is .08 and I am perfectly fine with NO hyper symptoms at all. With Hashi's you want to fully suppress...
  8. ShayFL
    They look amazing....I think I got a blood sugar spike just looking at them.
  9. ShayFL

    ARCHIVED So I Did It...

    ShayFL replied to Pyro's topic in Coping with Celiac Disease

    I hope for your sake Pyro that you are not gluten intolerant.....I know how much you love your vittles.
  10. ShayFL
    Renee, I wish I could offer you something other than I am praying for you and hope you recover soon. Neurological issues ARE frustrating as that is what I have dealt with myself for the past 12 years. Like you, I had oodles of tests. The gluten-free diet HAS helped me in this area. Just double check your toiletries and food items (manufacturers do...
  11. ShayFL
    If your doctor doesnt think very highly of you....then you need a NEW DOCTOR!! Ask your NEW doctor for these: Anti-gliadin antibodies (AGA) both IgA and IgG Anti-endomysial antibodies (EMA) - IgA Anti-tissue transglutaminase antibodies (tTG) - IgA Total IgA level.
  12. ShayFL
    Fortunately, you do not need a doctors permission to try a gluten free diet. And it can be very healthy if you choose lots of whole foods: lean meats, eggs, nuts & seeds, veggies, fruits, brown rice, whole grains, etc. I have used Enterolab twice. I felt it was worth it. I also used them for genetic testing which was consistent with my results...
  13. ShayFL
    And what would they gain by intentionally making everyone POS. They dont sell gluten-free products or supplements of any kind. IF they did, then I would be very skeptical. I think it is far more accurate than other food sensitivity testing like A.L.C.A.T. The fact that I was NEG and then years later POS shows that over time an intolerance can get worse...
  14. ShayFL
    I would stay away from Quaker. They have CC issues. Albers is a good one. And these: and Arrowhead Mills Grits Open Original Shared Link no gluten at all. Also, you might try: Cream of Buckwheat (100% wheat & gluten free) Open Original Shared Link
  15. ShayFL
    Nuts and seeds are good if he tolerates them. At his age, I would opt for nut and seed butters over whole nuts and seeds. Still a chocking hazzard. They also make almond flour which you can bake with. The SCD diet has recipes that are delicious and high calorie/nutrition: Open Original Shared Link Check out the kugel.
  16. ShayFL
    My first thought was that something in that buffet irritated your stomach (bacteria, virus, toxin, etc.). Continue with your testing. It is true that if you go off gluten even for a few weeks it can make the tests inaccurate. If you dont want to eat gluten to find out, stick to your bland diet and see if you dont improve after a few more weeks. Also...
  17. ShayFL
    Can you post your labs for thyroid. I was told I was "normal" for 12 years when I was severely hypo. None of my doctors knew and the labs didnt have the NEW TSH ranges. The new ranges are from .3 - 3. I just saw recent labs yesterday from someone whose lab was still using 6 as the upper range for TSH!!
  18. ShayFL
    Make sure that oatmeal is gluten-free....Bob's Red Mill....it must say certified gluten-free. Most oatmeals have gluten.
  19. ShayFL
    I go by two things when trying to determine if a supplement is gluten-free. One is what they say about their gluten-free status and the other is my reaction to the supplement. If I get gluten, I get vertigo and migraine. There is no mistaking. I do not/have not reacted to Country Life or Pure Encapsulation. I really like Pure Encapsulation the most...
  20. ShayFL
    Yes, "surviving" into the 90's is quite impressive....but for me...the last 12 years of my life I felt like I was merely "surviving".....I want to be "living" into my 90's!! So while she may "survive" just as long with or without gluten....like you said....she wasnt "living" fully. That is what staying gluten-free is about.....having a life now...
  21. ShayFL
    I agree with having your thyroid checked. I was severely hypo and skinny. Doctors would not dx me because I was thin and had D all of the time. I just didnt fit the textbook picture of hypothyroid. When my labs finally got bad enough and I took a copy of the new TSH ranges, I got dx and properly treated. It was the best thing that had ever happened to...
  22. ShayFL
    I would contact the caterer too and see what they can do. Have a lara bar or something in your little purse just in case. I am probably not the best to ask because I no longer care what ANYONE thinks. If they dont ask and stare, I just smile. If they ask I tell them. And I go about my business.
  23. ShayFL
    Yes I did. I commented. Shay is my family nickname for me. My birth name is Sharon. I believe you can get to the bottom of it. Maybe you can use that old range of 6 to get further testing done. So use it to your advantage. The point I was trying to make though is that some people (including me) are hypo at a TSH of 1 (regardless of the range)...
  24. ShayFL
    I tested NEG with Enterolab the first time. About 2 - 3 years ago. But positive this last time right before I went gluten-free. So I can confirm that not everyone tests POS everytime.
  25. ShayFL
    You have been gluten-free since May? It is HIGHLY unlikely that your biopsy will be POS. Most agree that you need to be eating a fair amount of gluten every day for a good 2-4 months BEFORE an biopsy to have a chance of it being accurate. One month of heavy gluten eating might not be enough. So you can reschedule for 3 months from now and eat gluten...
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