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Latest Celiac Disease News & Research:
Everything posted by ShayFL
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ARCHIVED Can Anyone Help Me Understand My Bloodwork?
ShayFL replied to mslee's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
So happy the pieces of the puzzle are coming together for you. Owls are such cool creatures...... -
ARCHIVED Mycoplasma Infection Link To Autoimmune Diseases
ShayFL replied to ToddZ's topic in Related Issues & Disorders
Is it helping you Beverly? -
ARCHIVED Pumpkin Muffins! - It's Fall! - Scd Legal!
ShayFL posted a topic in Gluten-Free Recipes & Cooking Tips
I made these today....oh soooo yummy!! PUMPKIN MUFFINS Ingredients 2 eggs 1/2 cup pumpkin puree 1/3 cup honey 4 Tbsp melted butter (Coconut oil if you want dairy free) 1 tsp vanilla 3/4 tsp baking soda 1/2 tsp salt 1 1/2 tsp cinnamon 1/2 tsp nutmeg 1/4 tsp ground cloves 1/4 tsp ground ginger 2 1/2 cups almond flour 1/2 cup chopped... -
ARCHIVED Has This Happend To You
ShayFL replied to cat3883's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Over time you just realize what bothers you and you cut them out. I have been corn free for years. It always bothered me. I recently tried adding some back in. It still affects my blood sugar but no other symptoms. I am trying to keep my BS stable, so I wont eat it often...hardly ever...if at all. I dont need it in my diet. I cut out the grains because... -
ARCHIVED Negative Blood Work...
ShayFL replied to LIS-Guy's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
I agree. Go ahead with the biopsy and then go from there. -
ARCHIVED Changes In Senses?
ShayFL replied to writerscramp's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
A zinc deficiency can alter your senses of taste and smell. If you are gluten intolerant and eating it still you might not be absorbing this important nutrient very well. Just a thought.... -
ARCHIVED Can We Talk About Sex?
ShayFL replied to kschauer's topic in Introduce Yourself / Share Stuff
I will say one thing my husband had to drill into my head in the beginning of our relationship is that MEN DONT GET HINTS AND THEY DONT DO SUBTLE!! What has worked for us is for me to be VERY direct with him. It was sooooo weird for me to do this at first. I was afraid he would get mad if I just said what I felt. But he didnt. What used to piss... -
ARCHIVED Help With Diagnosing Thyroid Issues With Celiac!
ShayFL replied to Paeldi's topic in Related Issues & Disorders
A great place to find EVERYTHING you need is here: www.stopthethyroidmadness.com It covers EVERYTHING thyroid!! You will need: TSH (3rd generation) Free T3 Free T4 Both antibodies Have them include: B12 Ferritin Folic Acid Iron Vitamin D These are all interrelated to each other. And go with thyroid issues. BE SURE you inform... -
ARCHIVED Negative Biopsy But Chronic Inflammation
ShayFL replied to susanm's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
A "few" areas could mean 2. Six or more is better. Maybe you are at the beginning stage with only inflammation. This is good that you caught it early. You should request genetic testing. If you have the Celiac genes and with POS blood and inflammation, you can either stop eating gluten and get well. OR keep eating it until you get sick enough to show... -
Boiled millet has a glycemic index of around 70-80 (depending on the lab) which is in the HIGH range. Millet flour cooked is even higher at around 107 (more than PURE GLUCOSE!!!). When I used to eat it my blood sugar would skyrocket. I couldnt understand why because it was a "whole grain" and so nutritious according to the labels. Then I started...
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ARCHIVED If Going Gluten-free Made It Go Away, Was It Dh?
ShayFL replied to momofmadeleine's topic in Dermatitis Herpetiformis
It is possible. But some people just get good ol eczema too. Skin issues are common with Celiac and they are not all DH. You could challenge gluten and if they come back get a proper biopsy of the skin along side of the rash. This is the ONLY true way to know if it is DH. But if you are feeling better, I doubt you want to eat gluten again just to find... -
ARCHIVED Specific Carbohydrate Diet (SCD)
ShayFL replied to AliB's topic in Food Intolerance & Leaky Gut
Stevia IS mentioned. Go to the legal/illegal list. It is there. She says no because it's effects are unknown. She basically says no to anything she hasnt researched (better safe than sorry attitude). I use it just fine. -
ARCHIVED Mycoplasma Infection Link To Autoimmune Diseases
ShayFL replied to ToddZ's topic in Related Issues & Disorders
There is a Dr. Brown who has been successful treating mycoplasma infection with an Abx called Minocin. A lot of doctors support this treatment. Google it. -
ARCHIVED Has This Happend To You
ShayFL replied to cat3883's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Yes it does get better. In the early days I was waking up that early because I was "starving". I ate like crazy for the first 6 weeks. My body was playing catch up. I sleep great now! -
Welcome!! There are lots of topics for you to jump into.
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Most salmon in restaurants is "farm raised" unless it specifically says "wild caught'. But wild caught is soooo expensive that most restaurants do not serve it. Logan's wouldnt. Farm raised will not have high iodine levels. There is ALWAYS the chance of CC in a restaurant setting. You might have gotten gluten even though you checked. IT has happened...
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ARCHIVED Hi, Got Some Of My Results From Pituitary Specialist
ShayFL replied to needtobebetter's topic in Related Issues & Disorders
Here is what I can tell you. Your TSH is NOT NORMAL. The new ranges (were changed over 5 years ago) for TSH are .3 - 3. And the current thinking among endocrinolgist specialist is that that range will drop to 2 being the highest. Most labs are still using OLD ranges. I was severely hypothyroid with a TSH of 2.88. I needed treatment. And adding Armour... -
ARCHIVED Gluten Free Shopping In Jacksonville Fl
ShayFL replied to wytchywoman's topic in Traveling with Celiac Disease
Here is some good News. Publix is a Florida based grocery store. There are quite a few of them in Jax FL. They carry a lot of health foods and gluten-free food now. Each store is different of course and they stock according to demographics. But any Publix in a middle/upper neighborhood will have health foods and gluten-free foods. Also there is this... -
ARCHIVED Is Rice Dream gluten-free Rice Milk Really gluten-free Now?
ShayFL replied to Gwen B's topic in Gluten-Free Foods, Products, Shopping & Medications
It is true unless you make it yourself with whole foods, you cannot be certain about any processed food. I make my own almond milk now. I also make hazelnut milk too which is delicious. Im not eating any processed foods anymore. I dont lose sleep anymore over food either. -
ARCHIVED Can't Figure Out
ShayFL replied to honeypond's topic in Parents, Friends and Loved Ones of Celiacs
tired is right. Many react to Rice Dream. I would nix it. Have you tried the hemp milk. It is very good. -
Where are you in Florida? There is a bakery in Sarasota that is ALL gluten-free. I have tasted some of their bread and muffins. Very good. I have not had their cake, but they do ship unfrosted: Open Original Shared Link These are pricey, but look amazing. Your birthday only comes once a year. Open Original Shared Link Open...
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ARCHIVED Glutened By Starbucks?
ShayFL replied to leadmeastray88's topic in Coping with Celiac Disease
I believe someone else got hammered by the Pumpkin Spice. -
ARCHIVED How To Convince Family (and Doctors)?
ShayFL replied to MountaineerBeth's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
First of all, you cannot convince someone to take care of their own health. They have to decide that for themselves. You will just cause yourself undue stress by "hammering" them. I know you love them and want them to be healthy, but it will just work against you to press them. We see it time and time again. The best you can do is take care of yourself... -
ARCHIVED Frustrated And Need Help!
ShayFL replied to hollyhs's topic in Food Intolerance & Leaky Gut
They are backordered on the GIPro yogurt starter that SCD recommends. I think some are using Kirkman's. I found an acidophilus supplement that makes decent yogurt. But I am using goat milk kefir right now. A local dairy produces it from raw goat milk. It has a strong bite. But it is helping me and I do not react to it in anyway. -
ARCHIVED Frustrated And Need Help!
ShayFL replied to hollyhs's topic in Food Intolerance & Leaky Gut
I HIGHLY recommend looking into the SCD (specific carbohydrate diet). I was in your same boat and am doing MUCH better. The SCD helped me a lot. I dont follow it 100%, but very close. I ate corn the other day with no real issues other than I can tend to overeat it in the form of corn chips. I am also now able to tolerate butter and kefir. On the...