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Latest Celiac Disease News & Research:
Everything posted by ShayFL
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ARCHIVED Add In Adults, Insomnia
ShayFL replied to wsieving's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
I suspect detox too. Magnesium is a muscle relaxer true and it can help as it is mildly sedative. You could also try a small amount of Melatonin about 1/2 hour before you turn in. Chamomile tea is also helpful, but could make you get up to pee in the night. -
ARCHIVED Does This Sound Like Celiac? Please Help!
ShayFL replied to leethinker's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Kerri...you need a complete Celiac panel run and you need to have been eating gluten in fair amounts daily for a good 3 months before the test. Otherwise there is a strong risk of a false NEG. Then you will need another biopsy to take samples specifically for Celiac. This is the only way to get an official dx for Celiac. If you dont want to do that... -
ARCHIVED New Meds: Thyroid, Progesterone, Dhea
ShayFL replied to Jenny (AZ via TX)'s topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
I take Solgar's "Gentle Iron" and gluten-free Floradix. I drink either hibisicus tea or Emergen-C when I take them so they absorb better (vitamin C helps iron absorb). I am still working to get mine optimal. I was at 10 and got to 22 (which helped me process my Armour). But not near enough. I have not tested in a few months. But my goal is 70. ... -
Really work hard to be 100% gluten-free. Check toiletries like lip stick, creams and such. No old scratched pans or cutting boards/wooden spoons. Stay the course....it does get better. Cutting ALL dairy for a few months can speed healing. You may be able to add it back in after that point.
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ARCHIVED Blood Test Results...i'm Confused!
ShayFL replied to Baddfrog's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
They take either blood or a cheek cell swab and then test for DQ2 and DQ8 genes. Those are the two genes associated with Celiac. You really should see a specialist next (GI Doctor). I am assuming you have symptoms and that led you to the doctor and a Celiac test to begin with. Even if EVERYTHING came back NEG (which yours didnt) a trial of a gluten... -
ARCHIVED Going Off The Diet....
ShayFL replied to kimis's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
It is so easy to make and tastes great. I dont make a "loaf". I put in a 9x13 pan so it bakes faster. Just watch it and when it starts turning golden brown it is done. Lightly touch the center just to make sure it doesnt sink in there. Usually about 30 minutes in my oven. Open Original Shared Link -
ARCHIVED How Much Does Testing Cost?
ShayFL replied to amom's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
I have tried the home test. Personally, I do not trust them. I suspect it is yet another company trying to profit from sick people. For something as serious as Celiac, you should use the right and accepted tests. With Direct Labs and Healthcheckusa YOU DO NOT NEED A DOCTOR. I always call because I feel better doing that and I can ask any... -
ARCHIVED Blood Test Results...i'm Confused!
ShayFL replied to Baddfrog's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Hi Scott, We need to see "references ranges" to help you. There is always a possibility of a false POS and a false NEG with ANY test. Why? Individual biochemical makeup and proficiency of the lab technician running your labs. Depending on the range, that is a high number from the ranges I have seen. With those results, you should request to see... -
ARCHIVED Reading And Learning
ShayFL replied to Durntootinnoglutin's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
It's the Specific Carbohydrate Diet. www.pecanbread.com -
ARCHIVED In Desperation I Went To A Herbologist...
ShayFL replied to TracyB's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
And since doctors just scan the lab sheet looking for anything out of range, there are likely thousands of people who use that lab who are suffering needlessly. G-d it makes me just sick. The new range is up to 3, but I was severely hypo at 2.88. My doctor agreed it was close enough to warrant a trial of thyroid meds. I knew within 48 hours I was... -
ARCHIVED How Much Does Testing Cost?
ShayFL replied to amom's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
This is the labs I used. I was self pay as well: Open Original Shared Link But sniff around for the best price. Check with www.healthcheckusa.com They gave me much better pricing than Direct Labs for vitamin D and Ferritin. With Healthcheckusa you may have to CALL to get pricing on the Celiac panel. They do not list everything they offer online... -
ARCHIVED In Desperation I Went To A Herbologist...
ShayFL replied to TracyB's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
This tells you everything you need to know. You can even print out the press release. Often labs are the last to change their reference ranges. So even though it has been 5 years, some labs still use the old range. Open Original Shared Link -
ARCHIVED Wondering If This Is Celiac
ShayFL replied to Jodylynn's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
You and me could be exact twins except I only have 1 child. My pregnancy triggered mine and I was so miserable, I didnt want anymore children. gluten-free has helped me tremendously. Ask to be tested. And if it is NEG (like mine were) give the gluten-free diet a try. It only took me 2 weeks to see results (no migraines) and about 6 weeks to see changes... -
ARCHIVED In Desperation I Went To A Herbologist...
ShayFL replied to TracyB's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
I was told my thyroid was "good" for 12 years when I was severely hypo. With a print out of the new TSH ranges in hand, my doctor conceded that I had in fact needed treatment for those 12 years of hell. Visit: www.stopthethyroidmadness.com before you just accept that all is well in that area. -
ARCHIVED Still Waiting For Diagnosis
ShayFL replied to cam'smom's topic in Parents, Friends and Loved Ones of Celiacs
Welcome to the board! I hope someday they have a way to dx Celiac without blood/biopsy that is more certain. For now (especially with children under 6) the best we can do is test (and if Neg) try the diet. You have had a positive response to the diet and that is your answer to the problem. Thank goodness you caught it early before a lot of damage set... -
ARCHIVED Reading And Learning
ShayFL replied to Durntootinnoglutin's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Welcome. Also look into the SCD diet as it has helped MANY in here including me. Make sure you are 100% gluten-free. No wheat, barley, rye or oats. Make sure you do not use old scratched teflon pans, cutting boards, wooden spoons, etc. as they can harbor gluten and contaminate you. Make sure all of your toiletries are gluten-free (toothpaste... -
ARCHIVED In Desperation I Went To A Herbologist...
ShayFL replied to TracyB's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Tracy, it doesnt hurt to ask your doctor if you can have a Celiac panel run. I really hope you get to the bottom of your health woes soon. -
Dear M. Cummings, Thank you for taking the time to contact us regarding our Original Taro Chips. We apologize for the delay in our reply and appreciate your patience. We strive to maintain the highest quality products and we appreciate your patronage. The ingredients in our Terra Taro Chips are gluten free. We do not have a gluten free facility, however...
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ARCHIVED Sick Constantly
ShayFL replied to Person's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Your thyroid sounds like Hashimoto's disease which is an autoimmune disease (so is Celiac). And the two are often related. Did they test you for both thyroid antibodies? Call. Find out. If not, those should be tested ASAP!! You NEED to ask your doctor if he plans on TESTING you for Celiac (full blood panel including IgA and IgG and total IgA) plus... -
Great news for you too Mile.
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Im not sure what it is....but it is weird....I have a history of things working "opposite" for me. Like Valium wakes me up.....LOL Go figure. These brains!!!
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ARCHIVED Test Results For 4y.o.- Thoughts On Whether To Do Blood Tests?
ShayFL replied to crunchy-mama's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
What I hate about things like <300 for the fecal fat score is what if it was 299? The thing is there is no research to show correlations between these things. At the very least you could try a blood test. Chances are it will be NEG. But I think you can go with Enterolab and your son will have to be told that he is not to eat gluten that he has an... -
Eating was no problem....Sleeping was another matter entirely. My parents bought a 100 year old farm house in GA and this was my first overnight there. I learned that old houses have NO SOUND INSULATION and that dogs CAN bark ALL night......LOL
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ARCHIVED Constipation... Gluten-free Trial Run?
ShayFL replied to Mother of Jibril's topic in Parents, Friends and Loved Ones of Celiacs
This is def a hard time of year to start gluten-free with Halloween, Thanksgiving and Christmas/Chanakuh every month. You might wait for the genetic tests from Enterolab, so you could at least have something to show your husband that can lend support to what you want to try. But even if you have no supportive genetics, there is no reason not to try it.... -
ARCHIVED Going Off The Diet....
ShayFL replied to kimis's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Do you have confirmed Celiac? If YES....then you can NEVER eat gluten again without damaging your body and setting yourself up for other health problems. You dont outgrow Celiac or cure it with a gluten-free diet. You simply control the disease. It NEVER goes away. If you are gluten intolerant, maybe. A very few can eat it again. But most cannot...