Jump to content

ShayFL

Advanced Members
 View Profile  See their activity

  • Posts

    2,252

  • Joined

  • Last visited

 Content Type 

Profiles

Forums

Events

Blogs

Latest Celiac Disease News & Research:

Everything posted by ShayFL

  1. ShayFL
    I think they wrapped them in priscutto (sp)?
  2. ShayFL
    I did talk to a few of my Aunts who have the "family curse - nervous stomach", but neither of them were even remotely interested in finding out if gluten was a problem for them. I guess for some, food is way to important. I did bring some of my gluten-free Jennie's macaroons for dessert. My little 16 mo old nephew went ga ga for them.
  3. ShayFL
    This one looks easy enough: Open Original Shared Link Coconut creme brulee....yum!! Open Original Shared Link I would replace the cream with "coconut cream".
  4. ShayFL
    Corn meal (super fine) or sorghum flour would work well.
  5. ShayFL
    ok that link didnt work: Open Original Shared Link
  6. ShayFL
    Didnt someone recently say that Glutino had new Ritz type crackers in flavors and one of them was close to "Cheez its"???? This must be them: <a href="Open Original Shared Link free.com/Glutino-Cheddar-Crackers/Item108012" target="external ugc nofollow">Open Original Shared Link free.com/Glutino-Cheddar-...kers/Item108012</a> Oh and if...
  7. ShayFL
    I just got back from a family reunion and was pleasantly surprised. There were over 100 people and everyone brought food. Lots of gluteny desserts of course. We are talking Southern Georgia here.....Fried okra, black eyed peas, ham, cobbler, biscuits and everything else Southern you can imagine. Well before I went I told my Mom I would be bringing...
  8. ShayFL
    Prayers to you Jenny. My Mom had it done a few years ago. She said it was the easiest surgery she has ever had (and she has had quite a few). She also had cancer, but it had not spread. No chemo and no radiation. She is doing well on Synthroid now. And one of our good friends had hers removed last year. The scar is tiny. Even though I think it is...
  9. ShayFL
    I wonder if Celiac can affect your mucous membranes? Curious to see what others say. I can say...now that I think of it that my eyes are not "dry" all of the time since going gluten-free. Had not really thought of it.
  10. ShayFL
    Hey I am sorry if I came across judgmental. It was not intentional. I guess I wasnt clear on what you were asking. For me it isnt exactly fear that motivates me to stay on track. I get really sick: vertigo and migraines. The vertigo is my worst symptom and I cannot think of any food I would eat to risk that. When it happens I cannot walk and I want...
  11. ShayFL
    If getting sick or developing cancer are not enough....I just dont know what to say. It has to come from deep within yourself. You have to wan it. You have to love yourself enough to stay away from gluten. For some people it takes a major medical crisis for them to adhere to a healthy lifestyle. My Sis is a good example. She smoked since she was 13...
  12. ShayFL
    I understand your frustration that you family was careless. We all need to vent now and again. Did you inhale a bread crumb? It s possible you got CC from somewhere else. But at any rate, it is your right to see to it that your family understands and helps you as much as possible.
  13. ShayFL

    ARCHIVED Please Help!

    ShayFL replied to Rjones's topic in Related Issues & Disorders

    I wonder if she has enough stomach acid to digest those proteins.......A good digestive enzyme plus a small amount of HCL could help her digest her food better. Please research this to see what you think. Also...peanuts...a lot of us have problems with peanuts. Just a thought. Has she been retested recently to see if she still has antibodies to...
  14. ShayFL
    Did they test your Ferritin too? If you cannot absorb, then request B12 shots. You can also get folic acid shots as well. B-complex is best. MANY feel absolutely crappy when their B12 is low. Those shots might be just what you need. Since Celiac is closely related to other auto-immune diseases, you might have pernicious anemia (PA) and that is...
  15. ShayFL
    Correct. If you are on a gluten free diet then the biopsy will be inaccurate. Some say you need to eat gluten heavy for a good 3 months for them to be accurate. I couldnt do that...no. But some do it just to get an official dx. But you already got that, so not sure why you would want to torment yourself now. Candida is a possibility. Have you researched...
  16. ShayFL
    I have found calling ahead to be invaluable. Try to talk to the head manager or the head chef. Tell them it will be 2 adults and one child eating and the child needs gluten-free food. Could they prepare something just for her so that your family can enjoy and frequent their restaurant. The economy isnt great right now and restaurants need our business...
  17. ShayFL
    Jilly, I really hope you will come back into our forum and not let the recent negative slant of one poster scare you away. The thing I like most about this forum is that most of the people in here are respectful. They can allow for many people to "add" to a thread knowing that there is something of value in the thread as a whole and not necessarily...
  18. ShayFL
    Even better if someone else makes it.
  19. ShayFL
    Hi there and welcome!! You didnt say....not sure if you are looking for support or advice or both. This forum is a great resource and we are here whenever you have a question. It is so great to pool from so many wonderful people who participate on these threads. First, I would ask why you want an official dx? Is there a reason you need to feed...
  20. ShayFL
    Fortunately the genetic tests are very reliable. It is rare that they arent accurate. Of course nothing in medicine is 100%. A lab technician could be coming off a long night out on the town when he reads the results.....But I felt good about mine. I did Enterolab and Kimball and they were consistent with each other.
  21. ShayFL
    In my practice, I dealt with many people who took supplements at random based on something they read here or there. It isnt always safe. And taking a single amino acid is not safe for more than a short time (a week or 2). I learned this in my first year of study for my B.A. in Holistic Nutrition. And that information was reinforced many times as I completed...
  22. ShayFL

    ARCHIVED Please Help!

    ShayFL replied to Rjones's topic in Related Issues & Disorders

    Rob....welcome to the board. So touching to read of your love for your wife. Are you guys working with health professionals? Both medical and therapeutic can be of great benefit. What does she eat on a typical day? Does she have a strong appetite? Does she eat a lot but still losing weight? Does she "avoid" food due to fear? Is she still eating...
  23. ShayFL
    Please go back to your doctor for any blood tests that were not performed. Specifically B12, MMA, Folic Acid, Ferritin and a Full Thyroid Panel. As you can read from this article below about L-carnitine it can worsen a thyroid condition. Which you could have because thyroid issues can cause neurological symptoms. You need to have as many possibilities...
  24. ShayFL
    9 days is a short time. Some dont notice changes for months. It took me a good 6 weeks to notice a difference. Some get "worse" before "better". Hang in there. Yes, other foods could be an issue too. It isnt easy to figure it all out. As a general game plan, I think cutting out gluten, dairy and soy at first is a good idea. Then add dairy back...
  25. ShayFL
    Not for me. I am familiar with "Herx". It is ONLY the flour and a horrible pain in my stomach that lasts about an hour or so and then it goes away. Horrible pain. Like I cannot digest it kinda pain. No problems with coconut milk, shredded coconut, macaroons and the oil. I eat those all of the time. It is just the flour for me.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.