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ShayFL

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Everything posted by ShayFL

  1. ShayFL
    Most of the women in my family have endometriosis. I got lucky that way. But I wonder if gluten-free would have helped my Mom and my Sister. They have both had hysterecomies.
  2. ShayFL
    TSH of 2.4 is too high for most people. My MD would treat you with that TSH if you have symptoms. After treatment has started, she does not even look at the TSH. In my case, I get a thyroid panel done now and again and last time, my TSH was .08 Most doctors would freak at this and drastically reduce your meds. My doctor asked a bunch of questions and...
  3. ShayFL

    ARCHIVED Starving

    ShayFL replied to MELINE's topic in Food Intolerance & Leaky Gut

    Maybe your Candida overgrowth is all in your intestines and not systemic (in your blood). This is actually a good thing as it will be easier for you to rid yourself of them. A stool test can find this.
  4. ShayFL
    I am nightshade free and have been for about a month. Potatoes have definately had a neurological effect on me for years. 10 years ago, I would wake in the night feeling "weird". Disoriented for a few seconds. A strange taste in my mouth. It would pass and and then I would go back to sleep. This went on for months, before I figured out that it only...
  5. ShayFL
    Three things can affect me that way. 1. Exercising too close to my Armour dose. Armour is a stimulant (T3) which speeds the heart rate a bit. So if I take one and then do some real exercise, I get that feeling afterwards. 2. Blood sugar drops. 3. The 3 or 4 days before my period (hormonal fluctuations)
  6. ShayFL
    Everyone's situation is different. But now if I get asked out for a meal, I take a protein and a carb in my bag. So, yes, I can always get a salad if there is nothing gluten-free for me. I dump my chicken/tuna/turkey on the salad, drizzle with olive oil, balsalmic, salt and pepper and enjoy. I treat myself to some pricy fizzy water. And afterwards eat...
  7. ShayFL
    I have the same frustrations, anger, depression about my body. The food is the least of my worries. I get nervous when I book a play date with a friend (shopping or eating doesnt matter). Will I be able to walk right. Will my ataxia be obvious. Will I have a migraine and have to cancel....AGAIN!! When my family wants to do something fun on the weekend...
  8. ShayFL
    Ive been in and out of ENT's offices. Fluid in the ear. Fluid not responding properly. Possible Minniers. Tinnitis. Weird pressure sensations. Conincidence?
  9. ShayFL
    Good point. Our dog food is gluten-free and so are their treats. We already went there even before I went gluten-free. Had a dog that was sensitive to it. She had neuro symptoms (siezures and strange twitching). Went away when we switched to lamb/rice based food. It should have been a clue for me as well........
  10. ShayFL
    Is your bread maker gluten free? Never used for other bread. I just thought of this when I read the thread. I have nothing to offer. I have just given up bread. I dont miss it. I love all of the other grains and I bake other stuff. I cant have yeast, so what is the point........
  11. ShayFL
    For instance my tTG IgA was a "1" but the "normal" range is 0-3 My Antigliadin Abs IgA was "1" but the "normal" range is 0-4 I also showed antibodies for IgG too. So what I am saying is that if I am on the low end for IgA, then I wouldnt have as many antibodies to show up, so that is why I am at only "1". If I had more IgA, then I would expect those...
  12. ShayFL
    My IgA is not "deficient" but it is at the very low end. And I came back positive for antibodies on everything in the celiac panel. But all within the "normal" range. I suspect that if I had more IgA, I would have more antibodies as well. Im gluten free anyway. Ive got 2 genes and in my mind positive blood work. Endoscopy was out for me. I have...
  13. ShayFL
    This could be REALLY important for someone who has a celiac baby/toddler and a dog. Think about it. Kids put everything in their mouths!!
  14. ShayFL

    ARCHIVED Still Sick

    ShayFL replied to msmini14's topic in Coping with Celiac Disease

    I wish I had something to offer other than....Im sorry you arent well. I hope it passes soon.
  15. ShayFL
    It's flavored...."Clean paste"...I have some Crest, but I didnt like it cuz it is like plastic. I will pick up some Tom's of Maine tomorrow. Just another thing.
  16. ShayFL
    I so wish I had known when I was their age. What a life I might have had....... They are adults and they have to make the decision for themselves because it is a lifelong commitment. And does not make life easy socially as well. But if they can see the "bigger" picture, they will know it is worth it to start now. If there is a local health food store...
  17. ShayFL
    Im gonna post here too cuz it might help others: Im the wrong one to ask about "saving money" cuz my entire income goes to food/supplements.....and Hubby's goes to everything else. I am blessed that I only need to make enough to cover food for everyone and my supplements. I work for myself, so if I need more expensive food/supplements, I just work harder...
  18. ShayFL
    Ive been gluten-free for 2 months and have seen some improvements. I have replaced all of my toiletries with gluten-free. Confirmed my "natural" toothpaste was gluten free. Soap, etc., etc. But I forget to check my dental floss. I use "Reach" by Johnson & Johnson. I now know I can switch to Tom's of Main or Crest as they state all of their products...
  19. ShayFL
    Which site do you prefer Liz? I can then answer you on only one......LOL
  20. ShayFL
    B Vitamins help a lot.
  21. ShayFL
    Ive also trusted and been burned by doctors I thought were on my side. I will never forget looking into my gynocologist of 8 years eyes when he said I could be dead in 6 months from some pre-cancerous cells on my cervix. I could see in his eyes he was lying. He was pushing surgery so hard and trying to scare me. Very invasive and reproductive disfiguring...
  22. ShayFL
    Vicki.....get yourself tested! It might save you having to get your little girl biopsied (not fun and very scary for her). If you come back positive, then you can rest assured that her positive bloodwork (and it is positive) indicates a NEED for the gluten-free diet. Plus it will be A LOT easier if you just have a 100% gluten-free household. It makes...
  23. ShayFL
    Dont give up on finding a good Doctor. I did, but it took me 12 years.!! 12 years of suffering. Yes, many of us have had similar experiences with Doctors. I had really bad vertigo (and still have it mildly). So at one time I went to a World renouned ENT here in Tampa. You could read about him in the paper all of the time and all of the wonderful...
  24. ShayFL
    Having neurological issues, I can say that "itching" can have to do with nerves. If they are stimulated by something such as water pressure or heat, all sorts of strange reactions can occur. I get the itching. If I turn on the electric blanket in the winter I itch like mad. I dont take baths in as long as I can remember. I know I dont like the shower...
  25. ShayFL
    I am thinking this is true. I showed antibodies for ALL of my tests: EMA Iga - tTg - AGA both IgA and IgG ALL showed antibodies, but were "within range". Enterolab showed 2 gluten intolerance genes. DQ1 and DQ3. The diet is proving to help me. Not cured. I have neuro symptoms which I understand can take time. But I am no longer bloated, pooping...
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