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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by zero

  1. zero
    1 - This sounds plausible. 2 - Absolutely! I never had a direct reaction to gluten before my diagnosis but after only the first two weeks of going gluten free I had a reaction to the fairly small catholic communion host. It was very surprising. I have had a couple of accidental glutenings since then with reactions which never happened before. It helped...
  2. zero
    At least for me, I didn't have any obvious reactions to gluten prior to diagnosis (I have a lot of reaction now). I even asked my doctor why I couldn't ignore it. Only later did I connect the dots with depression and not feeling well which would come and go. And then I learned more about the consequences of not going gluten free with celiac. Having...
  3. zero
    You've seen doctors, they haven't helped and you still don't feel well. You're taking an active role in trying to improve your health. No more explanation is really required. The hardest part for me at the beginning was breaking out of the habit of what I used to eat and establishing a new habit of what I could eat. And mistakes were made (why does...
  4. zero
    I also had the biopsy and colonoscopy at the same time with an IV and I would have to say that was the easiest medical test I have ever had. The anesthesia started and after a few seconds I was waking up in another room and I couldn't tell that anything had happened. Walking was a little bit of a challenge for the first half hour as there was some residual...
  5. zero
    Went in for a routine colonoscopy and ended up blood and biopsy diagnosed celiac.
  6. zero
    szelisk, I don't consider myself a vegetarian because I don't like the restriction associated with the label. I don't eat meat just because I don't have a taste for it but will eat meat at a restaurant or at someone's house. I also don't have any problems with dairy or soy and eat a lot of rice and beans so I am confident I am getting as much or more...
  7. zero
    I recommend that you read "Celiac Disease: A Hidden Epidemic" by Green and Jones. In it they mention that, at least in one study, consuming 30 mg or less of gluten in one day will not increase long term mortality but 100 mg is definitely too much. There is a lot of uncertainty in these numbers. I estimate there is about 30 mg of gluten in a pinch of flour...
  8. zero
    Here are some of my most memorable moments in my year of being celiac: - being diagnosed from the blood test -- there must have been a mistake... - walking into a grocery store for the first time after the biopsy. It's a real "now what" feeling. Over time I have learned what ingredients and products are safe and what are not. I also learned to check...
  9. zero
    I loved to eat bread and pasta and never, ever had a reaction from it. Now a crouton can produce a reaction, usually as diarrhea but I have had nausea too. It is strange but in a way it is also satisfying having the confirmation that my body needs to avoid this stuff.
  10. zero
    I'll provide the contrarian view point. I am not concerned about using the cooking utensils, pots and pans from before I was diagnosed. I cleaned them thoroughly and if there is any gluten left in the pores it is of a finite amount and it could gluten me at most a few times before it is gone. It helps to be aware of what is too much based on both short...
  11. zero
    On average, a celiac can consume around 20-30 mg of gluten per day without long term consequences which is about a pinch of flour. There can be trace amounts of gluten in any processed food we eat so the goal should always be to eliminate all sources of gluten. It's a personal decision, but for me I put a higher standard on things which I eat on a regular...
  12. zero
    I will just mention that if you are planning on getting a blood test for celiac then you should be consuming gluten in your diet.
  13. zero
    I won't suggest what you should do but I'll give you my logic when in the same situation. I have a bread machine and kept my whole wheat loaves in a plastic container. So what to do after my diagnosis? I know that 1/8 of a teaspoon of flour can cause damage but that is also close to the range by a factor of 2 or 3 which is not harmful to consume per day...
  14. zero

    ARCHIVED Worried!

    zero replied to caek-is-a-lie's topic in Coping with Celiac Disease

    Thank you for the link. I don't see anything overtly contradictory in any of these studies other than reflecting the difficulty in studying this type of thing and the variability of individuals. I think the more science and the less folklore the better. The goal should always be ingesting 0 mg of gluten. But if you tell someone they need to never ingest...
  15. zero

    ARCHIVED Worried!

    zero replied to caek-is-a-lie's topic in Coping with Celiac Disease

    "The gluten-free diet in Finland is considered to have up to 30 mg of gluten per day (a slice of regular bread has 2.25 grams). In a recent Finnish study, all celiacs on this diet improved and showed a normal longevity without an increased risk of cancer." from "Celiac Disease A Hidden Epidemic" by Green and Jones. IMHO this should be required reading...
  16. zero

    ARCHIVED Worried!

    zero replied to caek-is-a-lie's topic in Coping with Celiac Disease

    Most celiacs can tolerate exposure to 30 mg of gluten per day without any long term effects. That is about a pinch or so of flour. So the way I look at it, if I can't see anything on the plate, spoon, pan, ... then it is good enough.
  17. zero
    As I am reading your post I am eating Mi-Del chocolate chip cookies. I have become addicted to them unfortunately. Another good chocolate sweet tooth desert is Frankly Natural Bakers Gluten-Free Misty Mint Brownies.
  18. zero
    Malt is bad, dextrin can be bad but maltodextrin of the USA kind is ok. Welcome to being celiac. Try not to beat yourself up too much on making mistakes. The thing I noticed the most at the beginning was a change in the bowel as I was no longer getting all those whole grains anymore. I would also suggest the book "Celiac Disease: A Hidden Epidemic".
  19. zero
    26. You are afraid of and have nightmares about bagels, pizza, and cake. I actually had a nightmare about a cupcake. I hope I have touched bottom with this disease. It had white frosting...
  20. zero
    The gene test sounds like a good suggestion. Have you been tested for a wheat allergy (are there skin tests for that)? It is nice having a label of celiac to justify the dietary restriction but your reaction is so severe that you might just be going through a lot of pain, hassle and expense to finally be told to avoid gluten which you already know. I...
  21. zero
    Perhaps this site can help, Open Original Shared Link. I exercise a lot and don't eat meat. My main meal is usually brown rice and beans (I'm not a cook) though I also get some milk in the morning and soy milk in the afternoon. I am also concerned about the protein thing though I wouldn't know how a deficiency would manifest itself. I may start supplementing...
  22. zero
    I will wildly speculate that your gluten free diet is missing or is deficient in nutrients that is in your gluten filled diet. In my case, I was not getting enough fiber once I eliminated all those whole grain items in my diet. I've also heard something about being addicted to gluten but don't know too much about that.
  23. zero
    Disney World is likely the most celiac friendly place to visit. Try sending an email to WDW.MK.Special.Diets@disney.com requesting information on dining with celiac or a gluten allergy and you should get a ton of information. Also try these links Open Original Shared Link Open Original Shared Link I especially liked having a list of things...
  24. zero

    ARCHIVED Frustrated

    zero replied to tsewa's topic in Coping with Celiac Disease

    A positive side is that for a lot of restaurants you will get special treatment. This can be anywhere from a slightly modified dish to a conversation with the cook and a specially prepared and unique meal. I never really like it when the cook comes out to talk to me but I could see how some people might enjoy that experience. I try to be pretty careful...
  25. zero
    Yikes! You have been on quite a roller coaster so I wish you luck in your exam. I was put to sleep for mine so it was probably the easiest medical thing I ever did. The biopsy results took about a week or two to come back and my insurance covered it. Have you had a blood test? It seems like everybody's symptoms and experience with celiac is different...
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