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dixonpete

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by dixonpete

  1. dixonpete
    There's a wide margin of safety for hookworms, probably 10X+, so being a little over probably isn't a big deal. The current methods used by providers and the community these days is to inch up the number of hookworms until there's symptom relief. Finding the right number takes time but once you know, you know. I could go gluten-free but if I did I wouldn...
  2. dixonpete
    If I hadn't embarked on my hookworm journey I likely wouldn't have a colon right now. If all you have to deal with is celiac disease it's manageable. My cousin doesn't seem to mind being celiac. Celiac disease was maybe 15-20% of my calculation to do hookworms. I simply couldn't take the colitis pain anymore.
  3. dixonpete
    A 94-week study was guaranteed to fail. My hookworms have never lasted longer than 26 weeks - they die off by then or age out, I'm not sure which. If I want continuous symptom relief I have to reinoculate a month or so before that.
  4. dixonpete
    There are lots of reasons for the low interest. Skepticism, cost, revulsion, fear of the unknown. Also helminths don't work for everyone, and if they do the improvement may only be partial. I won the helminth lottery and that's why I'm so enthusiastic. Most of the people habiting this site would benefit from hosting but convincing anyone is like pulling...
  5. dixonpete
    My renewal date came up on the weekend based on my new inoculation schedule of 5 months and I reordered larvae. All much simpler than it used to be, but I guess that's what you get once you learn the angles. Just a quick email to confirm the price and a visit to PayPal to send the money, and then the Provider then gave me a tracking code. The larvae should...
  6. dixonpete
    That was going to be my point. The odds of vomiting were directly related to the amount of gluten exposure.
  7. dixonpete
    This week I've been reading up on self supply of hookworms, not just to save money but to ensure access. Covid made getting larvae difficult, and here in Canada it's hit or miss once the cold weather sets in. Larvae don't like temps below 5C and they can die in transit because of the cold. Providers usually resend for free but that still means being symptomatic...
  8. dixonpete
    A few weeks ago I had a bad day marked by considerable GI distress. It was bad enough I figured I must have lost my hookworm colony. Immediately I went gluten-free and was better, so I thought I'd have to pony up earlier than I expected for my next inoculation. After a further 4-5 gluten-free days I reintroduced meat and gluten expecting the worst, but...
  9. dixonpete
    The next step of looking for efficacy complicated by the fact that there are multiple conditions helminths are used for, and some helminths seem to be more effective for different conditions than others. This page from the HT Wiki illustrates the scope of the problem: https://helminthictherapywiki.org/wiki/Selecting_a_therapeutic_helminth. At a rough count...
  10. dixonpete
    https://doi.org/10.1093/ibd/izad110 Published June 15, 2023 in the journal of Inflammatory Bowel Diseases, this study is expressly for ulcerative colitis, but because the focus was on safety and tolerance of hookworms as a treatment, the results should apply for any of the myriad conditions people use hookworms to treat. It's a pilot study paving the...
  11. dixonpete
    By species I meant strain. The only species of hookworm ever used in Helminthic Therapy is Necator americanus. It's well adapted to humans and a pussycat compared to other species of hookworms.
  12. dixonpete
    So you've made the decision to try Helminthic Therapy. What do you do now? 1) First you join the Facebook Helminthic Therapy Group @ https://www.facebook.com/groups/htsupport and make an introductory post. Tell the members about what you hope to achieve and a bit about your medical history. The regulars there are veterans at HT, use helminths (usually...
  13. dixonpete
    As followers of this blog are aware I recently demonstrated that it took 30 days from larvae inoculation to recover my ability to consume gluten. You, as a visitor to celiac.com, are obviously concerned enough about your celiac status to want to seek out information on how to deal with your condition. Well boys and girls, aside from going completely...
  14. dixonpete
    I believe the answer to that question is an unequivocal yes. Celiac disease is a debilitating condition that uncontrolled exacts a huge toll on people impacting both their health and their quality of life. Controlled, by which I mean sufferers make serious effort to avoid gluten, celiac disease still lurks in the background waiting to act on diet...
  15. dixonpete
    One person I know provides others local to her with hookworms. She mentioned of the 9 people she supplies none have experienced any side effects. Unfortunately statistics aren't yet available on how frequently side effects occur. Medically it's widely acknowledged that a small hookworm infection of Necator americanus is usually asymptomatic and harmless...
  16. dixonpete
    I suppose it's to be expected that a treatment that has the goal of manipulating the immune system could have side effects, and for some people that appears to be true. Back when I started in 2018 with Helminthic Therapy (HT) I simply asked for 25 larvae from my provider because, well, the price was the same whether I ordered one or 25, so I tried to...
  17. dixonpete
    Someone recently posted their HT story with the HT Support Group. It's probably the most riveting account I've read yet where a person was rescued from a life living with devastating illness to making a near full recovery. https://helminthictherapywiki.org/wiki/Hookworms_literally_saved_my_life?fbclid=IwAR2h6DKBYwZaWEGjcrr6CYgAHia4HP5aJMHiCM0nT1yzrRgQSl...
  18. dixonpete
    I have several feelings on the matter. First and foremost I feel gratitude. Beginning in my early 40s I was very sick. Because of my out of control immune system I was in great pain and suffered tremendous disability, social isolation, deprivation and vulnerability. With hookworms on board, all that is gone. Sure, with the best knowledge of exactly what foods...
  19. dixonpete
    Hookworms and the three other helminths are used for a variety of immune conditions, not just celiac disease. John Scott just pointed me towards a collection of blogs like mine where people discuss their experiences at length like I do: https://helminthictherapywiki.org/wiki/Helminthic_therapy_blogs?fbclid=IwAR0U6tvguzLaQ0Tl-0gwC-zMPkJrMKIn2tZk018iHiDGuN...
  20. dixonpete
    One video I watched had the main complaint that hookworms allowed the host to eat junk (gluten, for example). That misses the point. I was down to 12 foods I thought were relatively ok to eat but I still suffered from mild colitis and usually had 6 unpredictable bowel movements per day. I was miserable. Before hosting hookworms, the fellow that...
  21. dixonpete
    The Helminthic Therapy Support Group on Facebook maintains a repository of all its gained knowledge in the form of the freely available Helminthic Therapy Wiki (Google it). In it there's a listing of videos that the group has found most useful: https://helminthictherapywiki.org/wiki/Helminthic_therapy_in_the_media#Featured_videos I did a YouTube search...
  22. dixonpete
    In case there was any doubt I'm pleased to report everything is fine. I've resumed a gluten containing diet and haven't experienced any issues. I mentioned my success to the people over at the Facebook Helminthic Therapy Support Group and they were all happy for me. One person said in the five years she's been hosting hookworms she's never considered consuming...
  23. dixonpete
    For those curious where the 30 days comes from it's probably simply a reflection of the fact the hookworm larvae need time that to grow up to be mature 1 cm long adults. On receipt in the vial the larvae are microscopic, invisible to the naked eye.
  24. dixonpete
    I've had plenty of gluten goodness sitting in my freezer for a month now and the siren call from them was too much for me to bear. A donut and a Crustini sacrificed themselves for science last night. Aside from a little gas I've had no reaction - just feeling fine. So that it's it, 30 days and I'm back in remission. I apologize for the dramatics but...
  25. dixonpete

    So far so good

    dixonpete commented on dixonpete's blog entry in Pete Dixon

    Impatient am I. I just ate another 10 Wheat Thins. Still no reaction. If I survive this I'm back on a regular diet tomorrow.
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