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still tiredofdoctors

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Everything posted by still tiredofdoctors

  1. still tiredofdoctors
    Goodness . . . Yes, there IS a difference between gluten sensitivity and Celiac disease. I was gluten sensitive for many years -- diagnosed as "irritable bowel syndrome" and at one point, "ulcerative colitis". It wasn't until I encountered a tick that decided I looked somewhat like a delicacy and developed Lyme and three other tick-borne diseases...
  2. still tiredofdoctors
    I had really started getting concerned. His doctor here did all the "perfunctory" tests: thyroid, CMP . . those things. Wouldn't take into account the celiac component, though. Even though he's 27, when he called from Houston and was SO sick, I had that incredibly scared feeling. I was so worried and felt helpless. I can't drive -- can't even travel...
  3. still tiredofdoctors
    My son, Brandon, is 27 and just moved to Houston, TX at the beginning of the month. He has been having some GI difficulty for the past few months, and a few days ago when I spoke with him it had gotten REALLY bad. I told him that he really needed to find a GI doc in Houston and have a work-up. He was able to schedule an appointment within two days of...
  4. still tiredofdoctors
    My home health nurse is guessing that I had it. I was too sick to get out of bed to go to the doctor. I had only gone out once -- and was really not around a lot of people. Because our house has toxic mold, though, we're living with my mother. My nephews are here after school, and my granddaughter goes to day care 1/2 days three days a week, so we...
  5. still tiredofdoctors
    My sister and I are a lot older than you and your brother . . . ( a little "caveat" there!) and quite frankly, it seems that younger siblings must not change much. She was cutting an Angel Food cake (not gluten-free) very close to the strawberries we were all going to share. I had gluten-free poundcake. I asked her if she could please stop for a moment...
  6. still tiredofdoctors
    Peter, you're right. Our house is a dedicated gluten-free house. We ensure no cross-contamination. In fact, we only purchase items that state, "Produced in a dedicated gluten-free facility". My husband -- bless his heart -- is gluten-free, too.
  7. still tiredofdoctors
    Oh My Gosh!! Get him to a sleep study!!!!! I would almost GUARANTEE you that he has apnea!! If he does, there is no way he is getting into a "repairing" sleep mode. Unfortunately, I think that Elavil DOES increase your appetite. My patients complained of that, as well! Also -- and this is going to be the one that he won't like -- he desperately...
  8. still tiredofdoctors
    I can't remember when I wasn't sick when I was in school. I had allergies like you can't imagine, and I was obviously gluten-sensitive -- just not celiac yet. I can remember one year that I missed two months of school because I had diarrhea so badly that I literally could not go anywhere. The bullying and abuse I took? Outrageous. To this day, I can...
  9. still tiredofdoctors
    While I know there are stringent rules for washing down the equipment, I still question whether flour dust is "looming" in facilities that process wheat products! I'm somewhat paranoid about gluten, though - my only reaction is degeneration of the cerebellum - and it takes about 9 months before the next MRI shows how much - so I avoid any possible gluten...
  10. still tiredofdoctors
    KPanther -- Thank you for a GREAT list! That is fantastic. I don't know about soy-free, but my kids' friend (my kids are grown . . . ) started selling Arbonne. She got a list of gluten-free products for me -- I'd be happy to share it -- and I can give you her email address, if you'd like it. With regard to Estee Lauder? YIKES. They own an INCREDIBLE...
  11. still tiredofdoctors
    Now I am going to sound like a stereotypical physical therapist! I treated Pelvic Pain prior to having to "retire" and close my clinic due to illness . . . I agree that your husband needs to have additional testing to find out if anything additional is "brewing" in his testicular and/or perineal area. Perhaps an MRI? I actually treated a patient...
  12. still tiredofdoctors
    You might ask the people who are selling the other things if they have to abide by the stringent rules. This probably sounds awful, but if they aren't, why not go ahead and chance it? Of course, if I did it, it would be my luck that I would be the ONE person who would get nailed by the Health Department!!
  13. still tiredofdoctors
    I agree with Ravenwood Glass. I posted this earlier, but I think it warrants an additional post: Open Original Shared Link Open Original Shared Link Open Original Shared Link Open Original Shared Link Open Original Shared Link Open Original Shared Link Open Original Shared Link Open Original Shared Link Open Original Shared Link Open Original...
  14. still tiredofdoctors
    I'm not sure about the regulations. I apologize for that. I do know, however, that one particular Mom in our city has an autistic child for whom she makes only gluten-free/CF items. From that, she started her own business selling through a locally owned "chain" (three stores!) of health-food stores. I do know that in order to do this, she had to have...
  15. still tiredofdoctors
    Someone sent me a PM with regard to journal articles stating celiac neurological manifestations. I am sorry that I lost your PM . . . it is no longer in my mailbox. Since it originated from this particular category, I am posting my reply openly in the hope that you will see it. Here are a few of the research articles I have found: Open Original...
  16. still tiredofdoctors
    This sounds FANTASTIC! Thanks for a great recipe . . .
  17. still tiredofdoctors
  18. still tiredofdoctors
    It was a long time ago that I started gluten-free lifestyle, but from what I remember, I didn't have the reaction you are having. Is there anything containing gluten that you were eating frequently? (I'm thinking caffeine withdrawal from chocolate or something like that, maybe?) That's not to say that you couldn't have that reaction to refraining from...
  19. still tiredofdoctors
    Honest to goodness, I don't KNOW how he knew by my walking! I forgot to ask him! I was to the point of using the walker - not in the wheelchair yet - and while, yes, I definitely had a typical "widened" cerebellar gait, I did have some unusual characteristics to it. My doctor and I once joked that it was a cross between "Herman Munster" and a "Royal Lippizon...
  20. still tiredofdoctors
    I was kind of shocked at how easy an electric rice steamer is! I didn't know how convenient, either, until we got one. It takes about twenty minutes -- the time it takes me (or less) to prepare the stuff going ON it! I still put the sauce & cheese in the enchiladas, along with anything else I'm deciding upon . . . but I DO withhold putting the sauce...
  21. still tiredofdoctors
    I didn't say it contained gluten . . . I said my home health nurse wasn't able to use it.
  22. still tiredofdoctors
    I thought they were supposed to be gluten-free, too. My reaction to gluten is so delayed (neurogenic vs. gut) that I'm not someone to run immediate reaction by. I'll ask my home health nurse. Her celiac is severe and her sensitivity is almost hair-trigger. She is constantly reading about gluten-free status of foods, and is a really valuable resource....
  23. still tiredofdoctors
    I've had success freezing meals with rice when I have made it in the electric steamer. For whatever reason, it doesn't seem to get quite as mushy. I have had really GOOD success freezing enchiladas with corn tortillas. I've usually withheld putting sauce and/or cheese on top when I freeze them . . . then bake with sauce & cheese in an oven after...
  24. still tiredofdoctors
    With regard to alcohol being gluten-free after distillation: After YEARS of knowing Richard, if he says something is gluten-free, it is. He also is EXPERT at providing links to sites available. He rocks!!
  25. still tiredofdoctors
    I'll withhold personal comments about accuracy . . . I'm already in trouble! My home health nurse is my "acid test" with regard to gluten-free safety. Her celiac is very severe, and her sensitivity to the slightest amount of gluten is very high. She has not been able to use stevia. While it does have carbohydrates and "sugars", I use Agave nectar...
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