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still tiredofdoctors

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Everything posted by still tiredofdoctors

  1. still tiredofdoctors
    Susie, IgeneX caught all four of my tick diseases: Lyme, Babesia, Bartonella and Erlichia. Oddly, my veterinarian told the MD's YEARS ago that I needed to have the type of testing that they do -- he mentioned specifically the Erlichia because of the way I was walking. Please tell your friend that it is important to use a laboratory such as IgeneX...
  2. still tiredofdoctors
    Congratulations, Deb. You are such a blessing not only to your husband, but to all who you encounter. Your determination to help him - and the others on here you have helped SO much (including me) is inspiring. I am so happy for you both. Have a GREAT anniversary celebration. You deserve it. ((((((((((((((((((((((((((((((((Many, MANY hugs...
  3. still tiredofdoctors
    "Just for the record, I do not take issue with anyone disagreeing with me or with a correction of my information. I DO take issue with the tone and the nastiness directed at me by PM. I will forward those to the administrator I suppose, but there's really no need." It is necessary to correct one highly inaccurate statement in this thread, however: antibodies...
  4. still tiredofdoctors
    I was a member on the forum as "Tiredofdoctors!!!", but had so much trouble trying to log in, I just created a new account. My new account at the bottom has Warn: (0%) with blocks behind it. What is that???
  5. still tiredofdoctors
    I have been a member of the forum for five years, but had to "re-name" myself in order to be able to log in! Some bizarre computer glitch . . . . In that time, I have had encounters with the absolute WORST excuses for physicians you could possibly imagine. I was misdiagnosed with five different illnesses that almost cost me my life during that time...
  6. still tiredofdoctors
    Hmmmm . . . . kind of take issue with "you will never have a normal sed rate." When your body is in homeostasis, even with Celiac, you should NOT have an elevated sedimentation rate. I have run the GAMUT with physicians for quite some time. My philosophy is this: Some are great, some good, some fair and some -- well, they're just idiots. Also, some...
  7. still tiredofdoctors
    I think cake & cookie mixes, Thai Kitchen boxed noodle meals, Lundberg chips (I don't know if you live close - if so, add some hummus and/or fresh salsa), gluten-free broth, Biscotti's, PEANUT BUTTER PANDA PUFFS (!), again if you live close - Van's frozen waffles, Kinnick Kinnick (one "n" or two??!!) doughnuts -- OMG -- Vanilla and Cinnamon Sugar are...
  8. still tiredofdoctors
    oooooohhhhhh -- BAD article! I don't discount natural medicine, either -- in fact, in addition to a massive complex of antibiotics for Lyme & other tick-borne diseases, I am taking a rather full "cocktail" of natural supplements, as well. These folks, however, seem to have discounted the fact that Celiac Disease is just that -- a DISEASE -- and...
  9. still tiredofdoctors
    I'm with Peter on this one . . . I'm not a doctor, either. It does appear that your titres indicate celiac. The antigliadin antibodies alone are high enough to cause Neurogenic Celiac Disease (the latest term for "Gluten Ataxia", "Sprue-Related Ataxia" and/or "Neurological Celiac. I had only the antigliadin antibodies, and the only manifestation...
  10. still tiredofdoctors
    Keila, Would you mind giving me the name of the cleaner you are using? It's a little disconcerting that it tested positive for gluten. Thank you, Lynne
  11. still tiredofdoctors
    Oops -- quoted before I read the entire thread . . . It is true - particularly if it is a state or teaching hospital - but I think even private hospitals post that they will NOT turn you away because of lack of ability to pay. You could be seen in the emergency room, receive some what sounds like like MUCH needed blood testing as poorly as you are feeling...
  12. still tiredofdoctors
    I'm late in the topic, also. I guess my all-time favorite read is one of those touchy-feely books: All I Really Need to Know I Learned in Kindergarten. I'm currently reading The Four Agreements I found a fantastic book (and now can't find it because I unpacked and don't know where I put it when I came home!) with regard to Celiac Nutrition vs...
  13. still tiredofdoctors
    More true words were never written . . . Living a gluten-free lifestyle is a really large learning curve. Nikki is right, also. Ingredients are constantly changing, even within the medications that are supposed to help us. Staying on top of that is no small task. There is no magic wand that someone can wave that lets you have all the answers right...
  14. still tiredofdoctors
    Sheesh . . . I was only asking where you studied. What type of counseling do you perform?
  15. still tiredofdoctors
    "For many women, the desire is no where near their male partners. This is "normal" and "natural" from what I have studied" I guess my question is to what extent have you studied Human Sexuality? I have a dual major with the second being Psychology with emphasis on Human Sexuality. My studies indicated that the majority of men reach their sexual peak at...
  16. still tiredofdoctors
    Give yourself time . . . you'll find the happy medium. Again, Karen is the Altoids expert, NOT me. Just clarifying, folks -- don't want to cause any trouble this early BACK in the game!!
  17. still tiredofdoctors
    Thanks for the welcome! To answer your question: Yes, all but the Chocolate Covered ones, I believe. For a definitive anwer, ask Karen !!
  18. still tiredofdoctors
    In your experience, can DH occur from TOPICAL application of gluten? My dermatologist told me "Absolutely not." He also said that what I describe is not indicative of DH and that it only develops after ingesting gluten. I have been gluten-free for over three years now - and I am extremely compliant and am scrupulous about watching for cross-contamination...
  19. still tiredofdoctors
    Given that tonight I had a "celiac moment" with the neurological stuff, no one would even howl at the moon with me. So, no "antics" to report . . . First: Normal is just a setting on the washing machine. Next: I think that all relationships have an "ebb and flow" with regard to frequency. I think a lot of external factors apply in addition...
  20. still tiredofdoctors
    Hi guys . . . just popped in to say "Hello". I'm down at the beach, and everyone said you were still here, so I wanted to make sure to see how you're doing . . . {{{{{{Smoochies}}}}} Lynne
  21. still tiredofdoctors
    JWSoFla - welcome to the board. Even though my "history" shows very few posts, I am an "old-timer"! Just couldn't get my password . . . That being said Given that Celiac disease is an autoimmune disease, it is not uncommon having concommitant autoimmune diseases. Hashimoto's Thyroiditis is very common with Celiacs. I was treated for years for a ...
  22. still tiredofdoctors
    Thanks! Just can't stay away from you guys - I miss you too much! And, of course, I have heard "through the grapevine" that some of my antics - albeit NOT singular - may be needed . . .
  23. still tiredofdoctors
    I was surprised at how quickly I was granted disability benefits. I have "neurological celiac" and because of it, have significant cerebellar damage. I insisted when talking with my neurologist that I was going to overcome this, despite his suggestion on my second visit (!) that I apply - I was forced to close my Physical Therapy practice due to my limitations...
  24. still tiredofdoctors
    While my log-in name is new, I am actually an old-timer! I simply can't log in under my previous name . . . despite numerous tries - just wanted to let you know I'm not new and "butting in". With regard to the bone growth, my son was diagnosed with a bone growth delay of 3 years, 5 months when he was in the 5th grade (he's 26 now). I asked the endocrinologist...
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