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thleensd

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by thleensd

  1. thleensd
    Thanks for the sympathies. I'm still hoping there will be a way to crawl out of this hole. Isn't chronic fatigue syndrome considered a diagnosis based on excluding everything else they can come up with to test? Please correct me if I'm wrong. There seems to also be a variety of theories on the best treatment for it.
  2. thleensd
    Hi all, I haven't been to the forum for a while, so a quick recap: Got really ill (downhill for years, then acutely), misdiagnosed terribly for who knows how long, finally diagnosed February '09. I had a ton of non-GI issues, the longest lasting seems to be fatigue. The brain-fog, neuro, and balance issues have gotten much, much better since first going...
  3. thleensd
    What kinds of foods are you eating? Just because it is gluten-free doesn't mean it's best for you. I didn't turn the corner to feeling better until I started eating only unprocessed foods, then went grain-free/paleo. Now I'm on the GAPS diet which is quite similar to paleo. As you'll see reading this forum, there are many people with secondary intolerances...
  4. thleensd
    That is great news. Celebrate every victory, no matter the size!
  5. thleensd
    Those of you that had to deal with the annual figuring out how you're going to handle food for Christmas/Hannukah/Solstice/etc, how did it go this year? My family is awesome. They were very careful with the food this year. Wasn't a gourmet masterpiece, but it was certainly adequate to celebrate. At the actual meal, the subject of what I can/can't eat was...
  6. thleensd
    You certainly have a right to feel bad about this! People often don't think of how much their words can hurt - even when they are the ones that are closest to us. Please have a talk with your parents (not at mealtime when everyone is hungry or irritable) at a time when your dad seems in a mood to receive what you have to say. Explain very matter of factly...
  7. thleensd
    I definitely need to go thermos shopping. I have one that stays hot quite a while, but it's not really big enough. Or maybe I just need a couple more small ones. I did just buy an assortment of canning jars... a gallon of soup in the fridge so I won't have to do much the next couple of days =) I couldn't make it through stage one of the intro without...
  8. thleensd
    Thanks for the extra info! I'm going to try some regular (tested for heavy metals!) and if I do ok with it, I'll brave the fermented. FUN!
  9. thleensd
    Pretty girl! Dogs (and cats!) are not designed to eat grains! Good for you for getting it out of her diet! =) (makes me miss my furry family while I'm out of town for a few days!)
  10. thleensd
    So, I'm coming up on three years since diagnosis. Not going to lie, it's been a struggle. Not the not eating gluten part - I'm pretty used to that - but my health. Just can't seem to get healthy. SO fatigued. However, since I've been eating cleaner and taking vitamin D I haven't had even a cold in two years (yes, knocking on wood). I'm trying to get...
  11. thleensd
    I totally feel your pain! My last job I had super brain fog during the interview. I was pretty surprised I got it anyway Best of luck to you. I do feel like my brain fog is worst certain times of the day or if I haven't eaten recently. I try to book important things during the best brain times. It's not always that predictable, but I find certain...
  12. thleensd
    LOL.... I know what you mean. People in general don't know what to say about a lot of touchy topics: illnesses, weight loss, break ups... I try to laugh it off. I'm not always successful but I try. ;-) Today at a holiday concert there were free cookies. I'm learning to be happy for other people ( ) and so as I walked past an aquaintance eating cookies...
  13. thleensd
    MMM.....traditional barrel fermentation must smell AMAZING! Thanks for the links.
  14. thleensd
    Ok... Here goes nothin' Still trying to recover after almost 3 yrs carefully gluten free. I've tried a whole bunch of things with limited success... But am definitely better than I was. Long story short, I'm getting ready to do the GAPS diet. It's not that far from how I'm eating, but I need to add in the "fun" stuff like cod liver oil. Yay! If you...
  15. thleensd
    Last week I took a plane trip-5 nights. Rented a car on arrival... we somehow managed one suitcase each (two adults) and brought a whole mobile kitchen (hot plate, frying pan rice cooker, utensils, herbs and spices-don't tell hotel management!). It takes some planning ahead and a some flexibility, but we ate every meal in the hotel room (or packed lunches...
  16. thleensd
    This: "except for rice milk and ground rice/millet porridge" sounds like it could be a problem. Maybe make your own milk from cashews? (Blend with water, strain). Rice milk has a lot of ingredients. I know there are a lot of possibilities, so an elimination diet sounds smart. I personally had to go grain-free. That's just what my body is asking...
  17. thleensd
    Are you ok with nuts? When I travel, nut butter is ALWAYS on my list. I usually just put some almond butter in a little plastic tub with a lid, but you could also go with Justin's nut butters - they're in a little single-serving pouch that can fit in a pocket easily. Whole Foods should have those. Another thing that is good for an instant blood sugar spike...
  18. thleensd
    I did NOT have good luck at Sea World. ....although I'm interested to know what bakery you're talking about. I always bring food with me... even if it has to be smuggled =) But, I also got a doctor's note which I carry when going to airports or other places where they might not let me bring food. I can almost always bring it in by telling them I have a...
  19. thleensd
    Could be any of these, really: Guar Gum Xantham gum Sodium carboxymethyl cellulose Distilled monoglycerides Polysorbate 60 sodium metabisulphite I can't do the gums, personally, and I try to avoid as many additives as possible. Only real way to know (if you want to chance it) is try coconut by itself. Some people that react to trace amounts...
  20. thleensd
    It's a struggle for me to keep it on, but I've been successful - coconut, coconut milk, nuts, nut butters, avocado, lots of smoothies. I eat often. Even though I'm a fan of eating plenty of raw foods, I couldn't break them down for a good year, so lots of soups and stews worked well. Anything in a blender, also! I had to eat about 2x the recommended calories...
  21. thleensd
    Welcome. This is a great forum and you'l learn a lot here. Something to consider - if your test comes back negative (or "equivocal" as mine did), they might want to do an endoscopy/biopsy, which is the "gold standard" diagnosis. You need to be eating gluten for that test to be valid, and once you stop, it's really difficult to go back to it (often the...
  22. thleensd
    +1 to getting a note from the pediatrician! Some schools are notoriously terrible about accommodations, food, tests, etc. I hope the posters here can understand that just because their school was accommodating doesn't mean they all will be. I had some awful professors in college. Once you have a doctors note, disability laws should kick in. A note from an...
  23. thleensd
    UGH! SO frustrated right now. gluten-free 2.5 years. Could hardly lift my hand to my face when I was diagnosed, so where I am is a definite improvement, even though I'm not "healthy". Going grain-free a few months ago has really helped, but I'm not out of the woods yet. That being said, I'm SO tired so often, and I hate food today. I just wish I could...
  24. thleensd
    Come to San Diego. You can get a gluten-free hotdog, gluten-free bun and a gluten-free beer! Of course, I don't eat those either, so yeah, I always carry a giant purse, and sometimes a doctors note...but I usually smile and don't get harassed about it. Honestly, does it make me feel left out? Yes, a bit. But I try to prepare myself extra yummy things...
  25. thleensd

    ARCHIVED Coffee Ugh!

    thleensd replied to GFreeMO's topic in Super Sensitive People

    Wait, what? Ugh, this is not good. Do you have a link or any more info? Would it rinse off?
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